CCEW Charity Commission profile

FND HOPE UK

Registered charity 1173607 · organisation 5091130

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
28 June 2017
Removed
Not supplied
Financial period
1 January 2024 – 31 December 2024
Latest income
£273,531
Latest expenditure
£92,910
Gift Aid
Yes
Owns or uses land
No
In administration
Yes
Insolvent
No
CIO
Yes

Public contact address: RSM UK RESTRUCTURING ADVISORY LLP, 25 FARRINGDON STREET, LONDON, EC4A 4AB

Website recorded by the regulator: https://fndhope.org/about-fnd-hope/fnd-hope-uk/ (displayed as text)

02 Activities

What the charity does

Offering Patient support and awareness through assisting patients to find help and treatment. Creation of Patient educational materials. Join Research BoardsComplete Research SurveysJoin Scientific Medical RegistryParticipate in research protocolsRead published research articlesEngage with Medical and Allied Health Professionals via medical conferences, meetings

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 October 2025
Date Annual Return Received
29 October 2025
Date Accounts Received
29 October 2025
Total Gross Income
£273,531
Total Gross Expenditure
£92,910
Accounts Qualified
Yes
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 October 2024
Date Annual Return Received
17 October 2024
Date Accounts Received
17 October 2024
Total Gross Income
£120,372
Total Gross Expenditure
£107,937
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 October 2023
Date Annual Return Received
6 September 2023
Date Accounts Received
6 September 2023
Total Gross Income
£76,022
Total Gross Expenditure
£51,283
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 October 2022
Date Annual Return Received
25 August 2022
Date Accounts Received
25 August 2022
Total Gross Income
£71,463
Total Gross Expenditure
£62,943
Fin Period Start Date
1 January 2020
Fin Period End Date
31 December 2020
Ar Cycle Reference
AR20
Reporting Due Date
31 October 2021
Date Annual Return Received
8 September 2021
Date Accounts Received
8 September 2021
Total Gross Income
£43,099
Total Gross Expenditure
£20,235

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR24
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Due Date
31 October 2025
Ar Received Date
29 October 2025
Total Gross Income
£273,531
Total Gross Expenditure
£92,910
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
25
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR23
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Due Date
31 October 2024
Ar Received Date
17 October 2024
Total Gross Income
£120,372
Total Gross Expenditure
£107,937
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
25
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR22
Fin Period Start Date
1 January 2022
Fin Period End Date
31 December 2022
Ar Due Date
31 October 2023
Ar Received Date
6 September 2023
Total Gross Income
£76,022
Total Gross Expenditure
£51,283
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
39
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR21
Fin Period Start Date
1 January 2021
Fin Period End Date
31 December 2021
Ar Due Date
31 October 2022
Ar Received Date
25 August 2022
Total Gross Income
£71,463
Total Gross Expenditure
£62,943
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
18
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR20
Fin Period Start Date
1 January 2020
Fin Period End Date
31 December 2020
Ar Due Date
31 October 2021
Ar Received Date
8 September 2021
Total Gross Income
£43,099
Total Gross Expenditure
£20,235
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
19

05 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
United States
Parent Geographic Area Type
Continent
Parent Geographic Area Description
North America
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
117
Classification Type
What
Classification Description
Other Charitable Purposes
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities

07 Official extract

Charity Event History

Charity Name
FND HOPE UK
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2017-06-28T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - FOUNDATION REGISTERED ON
Charitable Objects
THE RELIEF OF SICKNESS AND PRESERVATION OF HEALTH OF THOSE AFFECTED BY FUNCTIONAL NEUROLOGICAL DISORDER (FND) AND THEIR FAMILIES, CARERS AND COMMUNITIES. IN PARTICULAR, BUT NOT EXCLUSIVELY BY:1. RAISING AWARENESS AND UNDERSTANDING OF THE GENERAL PUBLIC INTO THE NATURE, CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND RECOVERY OF FND THROUGH SOCIAL MEDIA, CHARITABLE EVENTS, MEDICAL CONFERENCES AND ANY OTHER EDUCATIONAL MEANS SUCH AS LEAFLETS AND BOOKLETS.2. COORDINATING A VOLUNTARY FND PATIENTS REGISTER TO ASSIST DOCTORS IN THE ADVANCEMENT OF NEW AND ONGOING RESEARCH, PREVENTION, TREATMENT AND RECOVERY OF FND IN PARTNERSHIP WITH THE GENETIC ALLIANCE3. WORKING WITH MEDICAL AND ALLIED HEALTH PROFESSIONALS TO PROVIDE A BETTER UNDERSTANDING OF FND, IMPROVE MEDICAL PROTOCOLS, AND PROMOTE ETHICAL STANDARDS FOR FUNCTIONAL NEUROLOGICAL DISORDER THROUGH PERSONAL CONTACT, ADVOCACY AND TRAINING.

09 Official extract

Charity Other Names

Charity Name Id
585936
Charity Name Type
Working name
Charity Name
FND HOPE

10 Official extract

Charity Policy

Policy Name
Risk management
Policy Name
Conflicting interests
Policy Name
Volunteer management
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Trustee expenses policy and procedures
Policy Name
Investment
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Complaints handling
Policy Name
Complaints policy and procedures
Policy Name
Safeguarding policy and procedures