PTEN UK AND IRELAND PATIENT GROUP — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 22 March 2017
Removed: Not supplied
Financial period: 1 January 2025 – 31 December 2025
Latest income: £42,208
Latest expenditure: £47,421
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: 11 Whinchat Close, Hartley Wintney, Hook, RG27 8TT

Website recorded by the regulator: www.ptenuki.org (displayed as text)

02 Activities

What the charity does

Promote, protect and improve healthcare of persons affected by PTEN Hamatoma Tumour SyndromeSupport and promote research into the Syndrome

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 October 2026
Date Annual Return Received: 7 October 2026
Date Accounts Received: 7 October 2026
Total Gross Income: £42,208
Total Gross Expenditure: £47,421

Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 October 2025
Date Annual Return Received: 24 October 2025
Date Accounts Received: 24 October 2025
Total Gross Income: £47,904
Total Gross Expenditure: £29,236

Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 October 2024
Date Annual Return Received: 17 October 2024
Date Accounts Received: 17 October 2024
Total Gross Income: £31,411
Total Gross Expenditure: £24,739

Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 October 2023
Date Annual Return Received: 2 December 2023
Date Accounts Received: 2 December 2023
Total Gross Income: £9,454
Total Gross Expenditure: £10,212

Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 October 2022
Date Annual Return Received: 5 October 2022
Date Accounts Received: 5 October 2022
Total Gross Income: £1,776
Total Gross Expenditure: £1,908

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Due Date: 31 October 2026
Ar Received Date: 7 October 2026
Total Gross Income: £42,208
Total Gross Expenditure: £47,421
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: Yes
Employees Salary Over 60k: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 24 October 2025
Total Gross Income: £47,904
Total Gross Expenditure: £29,236
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 17 October 2024
Total Gross Income: £31,411
Total Gross Expenditure: £24,739
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: Yes
Employees Salary Over 60k: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 2 December 2023
Total Gross Income: £9,454
Total Gross Expenditure: £10,212
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 5

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 5 October 2022
Total Gross Income: £1,776
Total Gross Expenditure: £1,908
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

05 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 202
Classification Type: Who
Classification Description: Elderly/old People

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

07 Official extract

Charity Event History

Charity Name: PTEN UK AND IRELAND PATIENT GROUP
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2017-03-22T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 22 Mar 2017
Charitable Objects: A) TO PROMOTE AND PROTECT THE HEALTH OF PERSONS AFFECTED BY PTEN HAMARTOMA TUMOUR SYNDROME AND RELATED SYNDROMES IN THE UK AND IRELAND BY THE PROVISION OF SUPPORT, INFORMATION AND PRACTICAL ADVICE FOR SUCH PERSONS, THEIR FAMILIES AND CARERS.B) TO IMPROVE THE HEALTHCARE OF PERSONS AFFECTED BY PTEN HAMARTOMA TUMOUR SYNDROME AND RELATED SYNDROMES IN THE UK AND IRELAND THROUGH ADVANCING THE EDUCATION AND AWARENESS OF MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC. C) TO SUPPORT AND PROMOTE RESEARCH, ESPECIALLY BUT NOT EXCLUSIVELY INTO THE DIAGNOSIS, TREATMENT AND PREVENTION OF PTEN HAMARTOMA TUMOUR SYNDROME AND RELATED SYNDROMES IN THE UK AND IRELAND.

09 Official extract

Charity Policy

Policy Name: Serious incident reporting policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Conflicting interests

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Trustee expenses policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Internal risk management policy and procedures