01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- CIO
- Registered
- 15 February 2018
- Removed
- Not supplied
- Financial period
- 1 January 2025 – 31 December 2025
- Latest income
- £15,913
- Latest expenditure
- £17,037
- Gift Aid
- Yes
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: c/o Shaw Gibbs, Wey Court West, Union Road, FARNHAM, Surrey, GU9 7PT
Website recorded by the regulator: mindbodyeds.org.uk (displayed as text)
02 Activities
What the charity does
Our Charity provides grants to individuals with, or suspected of having, the condition of Ehlers Danlos syndromes to allow for timely treatment and diagnosis of the disease and its symptoms; we also aim to raise awareness among the public and within the medical profession. We operate across the UK.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 1 January 2025
- Fin Period End Date
- 31 December 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 31 October 2026
- Date Annual Return Received
- 24 August 2026
- Date Accounts Received
- 24 August 2026
- Total Gross Income
- £15,913
- Total Gross Expenditure
- £17,037
- Fin Period Start Date
- 1 January 2024
- Fin Period End Date
- 31 December 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 31 October 2025
- Date Annual Return Received
- 15 October 2025
- Date Accounts Received
- 15 October 2025
- Total Gross Income
- £6,458
- Total Gross Expenditure
- £28,497
- Fin Period Start Date
- 1 January 2023
- Fin Period End Date
- 31 December 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 31 October 2024
- Date Annual Return Received
- 24 June 2024
- Date Accounts Received
- 24 June 2024
- Total Gross Income
- £23,109
- Total Gross Expenditure
- £16,738
- Fin Period Start Date
- 1 January 2022
- Fin Period End Date
- 31 December 2022
- Ar Cycle Reference
- AR22
- Reporting Due Date
- 31 October 2023
- Date Annual Return Received
- 29 October 2023
- Date Accounts Received
- 29 October 2023
- Total Gross Income
- £31,125
- Total Gross Expenditure
- £31,065
- Fin Period Start Date
- 1 January 2021
- Fin Period End Date
- 31 December 2021
- Ar Cycle Reference
- AR21
- Reporting Due Date
- 31 October 2022
- Date Annual Return Received
- 1 September 2022
- Date Accounts Received
- 1 September 2022
- Total Gross Income
- £41,600
- Total Gross Expenditure
- £18,954
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 1 January 2025
- Fin Period End Date
- 31 December 2025
- Ar Due Date
- 31 October 2026
- Ar Received Date
- 24 August 2026
- Total Gross Income
- £15,913
- Total Gross Expenditure
- £17,037
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 5
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 1 January 2024
- Fin Period End Date
- 31 December 2024
- Ar Due Date
- 31 October 2025
- Ar Received Date
- 15 October 2025
- Total Gross Income
- £6,458
- Total Gross Expenditure
- £28,497
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 4
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 3
- Ar Cycle Reference
- AR23
- Fin Period Start Date
- 1 January 2023
- Fin Period End Date
- 31 December 2023
- Ar Due Date
- 31 October 2024
- Ar Received Date
- 24 June 2024
- Total Gross Income
- £23,109
- Total Gross Expenditure
- £16,738
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 3
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 4
- Ar Cycle Reference
- AR22
- Fin Period Start Date
- 1 January 2022
- Fin Period End Date
- 31 December 2022
- Ar Due Date
- 31 October 2023
- Ar Received Date
- 29 October 2023
- Total Gross Income
- £31,125
- Total Gross Expenditure
- £31,065
- Charity Raises Funds From Public
- Yes
- Charity Professional Fundraiser
- No
- Charity Commercial Participator
- No
- Grant Making Is Main Activity
- Yes
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 3
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 5
- Ar Cycle Reference
- AR21
- Fin Period Start Date
- 1 January 2021
- Fin Period End Date
- 31 December 2021
- Ar Due Date
- 31 October 2022
- Ar Received Date
- 1 September 2022
- Total Gross Income
- £41,600
- Total Gross Expenditure
- £18,954
- Charity Raises Funds From Public
- Yes
- Charity Professional Fundraiser
- No
- Charity Commercial Participator
- No
- Grant Making Is Main Activity
- Yes
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 1
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 202
- Classification Type
- Who
- Classification Description
- Elderly/old People
- Classification Code
- 302
- Classification Type
- How
- Classification Description
- Makes Grants To Organisations
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 207
- Classification Type
- Who
- Classification Description
- The General Public/mankind
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 306
- Classification Type
- How
- Classification Description
- Provides Services
- Classification Code
- 303
- Classification Type
- How
- Classification Description
- Provides Other Finance
- Classification Code
- 205
- Classification Type
- Who
- Classification Description
- Other Charities Or Voluntary Bodies
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 102
- Classification Type
- What
- Classification Description
- Education/training
- Classification Code
- 104
- Classification Type
- What
- Classification Description
- Disability
- Classification Code
- 101
- Classification Type
- What
- Classification Description
- General Charitable Purposes
07 Official extract
Charity Event History
- Charity Name
- MIND BODY EDS
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2018-02-15T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION Registered 15 Feb 2018
- Charitable Objects
- 1) THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROMOTION OF GOOD HEALTH AMONG PEOPLE SUFFERING FROM EHLERS DANLOS SYNDROMES, COMORBIDITIES AND RELATED CONDITIONS IN PARTICULAR BUT NOT EXCLUSIVELY BY: A) PROVIDING INFORMATION AND GRANTS OF FINANCIAL ASSISTANCE TO THOSE DIAGNOSED WITH SUCH CONDITIONS, AND THOSE SEEKING A DIAGNOSIS. B) PROVIDING GRANTS OF FINANCIAL ASSISTANCE TO ORGANISATIONS UNDERTAKING RESEARCH INTO EHLERS DANLOS SYNDROMES, COMORBIDITIES AND RELATED CONDITIONS, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE PUBLIC BENEFIT. 2) TO ADVANCE THE EDUCATION OF THE PUBLIC IN EHLERS DANLOS SYNDROMES, COMORBIDITIES AND RELATED CONDITIONS IN PARTICULAR BUT NOT EXCLUSIVELY BY PROVIDING INFORMATIVE TALKS DESIGNED TO RAISE AWARENESS AND FURTHER KNOWLEDGE OF THE CONDITIONS AMONG THE MEDICAL PROFESSION. FOR THE PURPOSES OF THIS CLAUSE: EHLERS-DANLOS SYNDROMES (EDS) ARE A GROUP OF RARE INHERITED CONDITIONS THAT AFFECT CONNECTIVE TISSUE. CONNECTIVE TISSUES PROVIDE SUPPORT IN SKIN, TENDONS, LIGAMENTS, BLOOD VESSELS, INTERNAL ORGANS AND BONES. THERE ARE THIRTEEN DIFFERENT TYPES OF EDS THAT MAY SHARE SOME SYMPTOMS, INCLUDING: AN INCREASED RANGE OF JOINT MOVEMENT, STRETCHY SKIN, FRAGILE SKIN THAT BREAKS OR BRUISES EASILY. THE DIFFERENT TYPES OF EDS ARE CAUSED BY FAULTS IN CERTAIN GENES THAT MAKE CONNECTIVE TISSUE WEAKER. DEPENDING ON THE TYPE OF EDS, THE FAULTY GENE MAY HAVE BEEN INHERITED FROM ONE PARENT, OR BOTH PARENTS. SOMETIMES THE FAULTY GENE ISN'T INHERITED, BUT OCCURS IN THE PERSON FOR THE FIRST TIME. EDS CAN AFFECT PEOPLE IN DIFFERENT WAYS. FOR SOME, THE CONDITION IS RELATIVELY MILD, WHILE FOR OTHERS THEIR SYMPTOMS CAN BE DISABLING AND LIFE-THREATENING. COMORBIDITIES AND RELATED CONDITIONS INCLUDE: AUTONOMIC NERVOUS SYSTEM DISORDERS; CARDIOVASCULAR DYSAUTONOMIA; FUNCTIONAL GASTROINTESTINAL DISORDERS; IMMUNE SYSTEM DYSREGULATION; EXOCRINE GLAND DYSFUNCTION; MAST CELL ACTIVATION DISORDER; MUSCULOSKELETAL SYSTEM DISORDERS; SKIN AND MUCOSA DISORDERS; NERVOUS SYSTEM DISORDERS; GYNAECOLOGICAL DISORDERS; CHRONIC FATIGUE SYNDROME; CHRONIC PAIN SYNDROME AND PSYCHIATRIC DISORDERS.
09 Official extract
Charity Policy
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Investing charity funds policy and procedures
- Policy Name
- Social media policy and procedures
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Internal charity financial controls policy and procedures