CCEW Charity Commission profile

PTEN RESEARCH FOUNDATION

Registered charity 1173589 · organisation 5100535

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
27 June 2017
Removed
Not supplied
Company number supplied
10529899
Financial period
1 April 2025 – 31 March 2026
Latest income
£618,591
Latest expenditure
£2,925,849
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: Crowe (Uk) Llp, St. James House, St. James Square, CHELTENHAM, Gloucestershire, GL50 3PR

Website recorded by the regulator: www.ptenresearch.org (displayed as text)

02 Activities

What the charity does

We build and work with the community around PHTS, engaging leaders in the fields of research and clinical care, to collaborate, and identify research projects and potential treatments that will lead to effective therapies. We fund academic and clinical research projects, and we provide support for building networks between clinicians, researchers, corporate partners and patients.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2025
Fin Period End Date
31 March 2026
Ar Cycle Reference
AR26
Reporting Due Date
31 January 2027
Date Annual Return Received
30 October 2026
Date Accounts Received
30 October 2026
Total Gross Income
£618,591
Total Gross Expenditure
£2,925,849
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
9 December 2025
Date Accounts Received
9 December 2025
Total Gross Income
£715,577
Total Gross Expenditure
£3,246,468
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
20 December 2024
Date Accounts Received
20 December 2024
Total Gross Income
£681,591
Total Gross Expenditure
£4,363,673
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
1 December 2023
Date Accounts Received
1 December 2023
Total Gross Income
£646,935
Total Gross Expenditure
£4,104,540
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
15 December 2022
Date Accounts Received
15 December 2022
Total Gross Income
£921,274
Total Gross Expenditure
£3,702,779

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR26
Fin Period Start Date
1 April 2025
Fin Period End Date
31 March 2026
Ar Due Date
31 January 2027
Ar Received Date
30 October 2026
Total Gross Income
£618,591
Total Gross Expenditure
£2,925,849
Grant Making Is Main Activity
Yes
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 70001 80000
1
Count Salary Band 80001 90000
1
Count Salary Band 90001 100000
1
Count Salary Band 150001 200000
1
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
9 December 2025
Total Gross Income
£715,577
Total Gross Expenditure
£3,246,468
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 70001 80000
1
Count Salary Band 80001 90000
1
Count Salary Band 90001 100000
1
Count Salary Band 150001 200000
1
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
20 December 2024
Total Gross Income
£681,591
Total Gross Expenditure
£4,363,673
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
Yes
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
Yes
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 70001 80000
2
Count Salary Band 90001 100000
1
Count Salary Band 150001 200000
1
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
1 December 2023
Total Gross Income
£646,935
Total Gross Expenditure
£4,104,540
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 70001 80000
2
Count Salary Band 80001 90000
1
Count Salary Band 150001 200000
1
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
15 December 2022
Total Gross Income
£921,274
Total Gross Expenditure
£3,702,779
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
Yes
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
Yes
Count Salary Band 60001 70000
1
Count Salary Band 100001 110000
2
Count Salary Band 150001 200000
1
Count Volunteers
0

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR26
Fin Period Start Date
1 April 2025
Fin Period End Date
31 March 2026
Ar Due Date
31 January 2027
Ar Received Date
30 October 2026
Income Donations And Legacies
837
Income Other Trading Activities
0
Income Charitable Activities
0
Income Investments
617754
Income Other
0
Income Total Income And Endowments
618591
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£50,233
Expenditure Charitable Expenditure
£2,874,779
Expenditure Other
0
Expenditure Total
2925012
Expenditure Investment Management
20110
Expenditure Grants Institution
1836248
Expenditure Governance
23000
Expenditure Support Costs
368076
Expenditure Depreciation
705
Gain Loss Investment
142285
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
196883
Gain Loss Other
0
Reserves
£18,822,172
Assets Total Fixed
7213268
Assets Own Use
138
Assets Long Term Investment
7213130
Defined Benefit Pension Scheme
0
Assets Other Assets
£11,784,293
Assets Total Liabilities
£175,389
Assets Current Investment
8199832
Assets Total Assets And Liabilities
£18,822,172
Creditors One Year Total Current
175389
Creditors Falling Due After One Year
0
Assets Cash
£3,576,320
Funds Endowment
0
Funds Unrestricted
18822172
Funds Restricted
0
Funds Total
18822172
Count Employees
6
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
9 December 2025
Income Donations And Legacies
309
Income Other Trading Activities
0
Income Charitable Activities
0
Income Investments
715268
Income Other
0
Income Total Income And Endowments
715577
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£57,716
Expenditure Charitable Expenditure
£3,188,752
Expenditure Other
0
Expenditure Total
3246468
Expenditure Investment Management
15000
Expenditure Grants Institution
2177127
Expenditure Governance
15557
Expenditure Support Costs
438412
Expenditure Depreciation
1803
Gain Loss Investment
-54966
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
184758
Gain Loss Other
0
Reserves
£21,184,028
Assets Total Fixed
8314926
Assets Own Use
843
Assets Long Term Investment
8314083
Defined Benefit Pension Scheme
0
Assets Other Assets
£13,099,265
Assets Total Liabilities
£230,163
Assets Current Investment
8828686
Assets Total Assets And Liabilities
£21,184,028
Creditors One Year Total Current
230163
Creditors Falling Due After One Year
0
Assets Cash
£4,265,650
Funds Endowment
0
Funds Unrestricted
21184028
Funds Restricted
0
Funds Total
21184028
Count Employees
6
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
20 December 2024
Income Donations And Legacies
207
Income Other Trading Activities
0
Income Charitable Activities
0
Income Investments
681384
Income Other
0
Income Total Income And Endowments
681591
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£102,117
Expenditure Charitable Expenditure
£4,261,556
Expenditure Other
0
Expenditure Total
4363673
Expenditure Investment Management
70188
Expenditure Grants Institution
3257267
Expenditure Governance
20781
Expenditure Support Costs
441094
Expenditure Depreciation
2151
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
1278480
Gain Loss Other
-254196
Reserves
£23,741,548
Assets Total Fixed
15786430
Assets Own Use
2646
Assets Long Term Investment
15783784
Defined Benefit Pension Scheme
0
Assets Other Assets
£8,344,328
Assets Total Liabilities
£389,210
Assets Current Investment
4510798
Assets Total Assets And Liabilities
£23,741,548
Creditors One Year Total Current
389210
Creditors Falling Due After One Year
0
Assets Cash
£3,828,592
Funds Endowment
0
Funds Unrestricted
23741548
Funds Restricted
0
Funds Total
23741548
Count Employees
6
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
1 December 2023
Income Donations And Legacies
911
Income Other Trading Activities
0
Income Charitable Activities
0
Income Investments
646024
Income Other
0
Income Total Income And Endowments
646935
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£97,085
Expenditure Charitable Expenditure
£4,007,455
Expenditure Other
0
Expenditure Total
4104540
Expenditure Investment Management
97085
Expenditure Grants Institution
3206886
Expenditure Governance
800569
Expenditure Support Costs
213806
Expenditure Depreciation
2085
Gain Loss Investment
-1217732
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
-1182938
Gain Loss Other
924425
Reserves
£26,399,346
Assets Total Fixed
20055998
Assets Own Use
3276
Assets Long Term Investment
20052722
Defined Benefit Pension Scheme
0
Assets Other Assets
£7,125,465
Assets Total Liabilities
£782,117
Assets Current Investment
3745907
Assets Total Assets And Liabilities
£26,399,346
Creditors One Year Total Current
782117
Creditors Falling Due After One Year
0
Assets Cash
£3,374,828
Funds Endowment
0
Funds Unrestricted
26399346
Funds Restricted
0
Funds Total
26399346
Count Employees
5
Charity Only Accounts
Yes
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
15 December 2022
Income Donations And Legacies
3361
Income Other Trading Activities
0
Income Charitable Activities
0
Income Investments
921274
Income Other
0
Income Total Income And Endowments
924635
Income Legacies
0
Income Endowments
3361
Expenditure Raising Funds
£98,903
Expenditure Charitable Expenditure
£3,603,876
Expenditure Other
0
Expenditure Total
3702779
Expenditure Investment Management
76920
Expenditure Grants Institution
2769052
Expenditure Governance
834824
Expenditure Support Costs
142232
Expenditure Depreciation
1240
Gain Loss Investment
-1905871
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
621965
Reserves
£30,150,258
Assets Total Fixed
21821440
Assets Own Use
4092
Assets Long Term Investment
21817348
Defined Benefit Pension Scheme
0
Assets Other Assets
£8,624,928
Assets Total Liabilities
£296,110
Assets Current Investment
6223219
Assets Total Assets And Liabilities
£30,150,258
Creditors One Year Total Current
296110
Creditors Falling Due After One Year
0
Assets Cash
£2,397,117
Funds Endowment
0
Funds Unrestricted
30150258
Funds Restricted
0
Funds Total
30150258
Count Employees
6
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Germany
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
United States
Parent Geographic Area Type
Continent
Parent Geographic Area Description
North America
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Spain
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Australia
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Oceania
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Netherlands
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
101
Classification Type
What
Classification Description
General Charitable Purposes
Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind

08 Official extract

Charity Event History

Charity Name
PTEN RESEARCH FOUNDATION
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2017-06-27T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM AND ARTICLES INCORPORATED 16 DEC 2016 as amended on 18 Jul 2022
Charitable Objects
3.1 THE CHARITY'S OBJECTS ARE SPECIFICALLY RESTRICTED TO:3.1.1 THE PROTECTION AND PROMOTION OF THE HEALTH OF INDIVIDUALS DIAGNOSED WITH PTEN HAMARTOMA TUMOUR SYNDROME (PHTS) OR OTHER RELATED CONDITIONS (BY MECHANISM, CLINICAL PRESENTATION OR OTHER FACTORS) IN PARTICULAR BY RESEARCH INTO THE NATURE, CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF PHTS OR OTHER RELATED CONDITIONS, INCLUDING THE DEVELOPMENT OF FINDINGS OF RESEARCH INTO PRACTICAL APPLICATIONS FOR THE PREVENTION, TREATMENT AND CURE OF PHTS OR OTHER RELATED CONDITIONS, AND IN FURTHERANCE OF THAT PRIMARY OBJECT, TO INCREASE AWARENESS OF PHTS OR OTHER RELATED CONDITIONS AND PROVIDE INFORMATION AND SUPPORT AS APPROPRIATE TO AFFECTED INDIVIDUALS AND FAMILIES; AND3.1.2 ALL PURPOSES THAT ARE FOR THE PUBLIC BENEFIT AND ARE EXCLUSIVELY CHARITABLE UNDER THE LAW OF ENGLAND AND WALES.

10 Official extract

Charity Policy

Policy Name
Complaints policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Conflicting interests
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Investment
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Volunteer management
Policy Name
Paying staff
Policy Name
Financial reserves policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Risk management
Policy Name
Complaints handling