01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- Charitable company
- Registered
- 8 November 2017
- Removed
- Not supplied
- Company number supplied
- 10336269
- Financial period
- 1 April 2024 – 31 March 2025
- Latest income
- £14,123
- Latest expenditure
- £1,357
- Gift Aid
- Yes
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- No
Public contact address: 82 Nottingham Road, Somercotes, Alfreton, Derbyshire, DE55 4LY
Website recorded by the regulator: www.fdssuk.org.uk (displayed as text)
02 Activities
What the charity does
The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 1 April 2024
- Fin Period End Date
- 31 March 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 31 January 2026
- Date Annual Return Received
- 8 January 2026
- Total Gross Income
- £14,123
- Total Gross Expenditure
- £1,357
- Fin Period Start Date
- 1 April 2023
- Fin Period End Date
- 31 March 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 31 January 2025
- Date Annual Return Received
- 3 January 2025
- Total Gross Income
- £2,092
- Total Gross Expenditure
- £2,816
- Fin Period Start Date
- 1 April 2022
- Fin Period End Date
- 31 March 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 31 January 2024
- Date Annual Return Received
- 29 December 2023
- Total Gross Income
- £1,451
- Total Gross Expenditure
- £730
- Fin Period Start Date
- 1 April 2021
- Fin Period End Date
- 31 March 2022
- Ar Cycle Reference
- AR22
- Reporting Due Date
- 31 January 2023
- Date Annual Return Received
- 23 December 2022
- Total Gross Income
- £8,618
- Total Gross Expenditure
- £1,465
- Fin Period Start Date
- 1 April 2020
- Fin Period End Date
- 31 March 2021
- Ar Cycle Reference
- AR21
- Reporting Due Date
- 31 January 2022
- Date Annual Return Received
- 29 December 2021
- Total Gross Income
- £6,078
- Total Gross Expenditure
- £3,171
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 1 April 2024
- Fin Period End Date
- 31 March 2025
- Ar Due Date
- 31 January 2026
- Ar Received Date
- 8 January 2026
- Total Gross Income
- £14,123
- Total Gross Expenditure
- £1,357
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 0
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Scotland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
07 Official extract
Charity Event History
- Charity Name
- FIBROUS DYSPLASIA SUPPORT SOCIETY
- Charity Event Order
- 1
- Event Type
- Standard registration
- Date Of Event
- 2017-11-08T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- MEMORANDUM AND ARTICLES INCORPORATED 18 AUG 2016AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 30 OCT 2017
- Charitable Objects
- TO RELIEVE SICKNESS AND TO PROMOTE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT OF THOSE DIAGNOSED AND SUFFERING FROM FIBROUS DYSPLASIA AND MCCUNE-ALBRIGHT SYNDROME (INCLUDING ASSOCIATED CONDITIONS) AND THEIR CARERS IN PARTICULAR BUT NOT LIMITED TO THE FOLLOWING:-A)ENCOURAGING, PROMOTING AND ASSISTING IN A BETTER UNDERSTANDING OF THE CONDITIONS AND POSSIBLE TREATMENT OF THEM;B)PROMOTE INCREASED AWARENESS AMONGST MEDICAL PROFESSIONALS AND GENERALLY;ANDD)ENCOURAGE PERSONS MEET OTHER SUFFERERS AND TO SHARE THEIR EXPERIENCES.
09 Official extract
Charity Other Names
- Charity Name Id
- 589589
- Charity Name Type
- Working name
- Charity Name
- FDSSUK
10 Official extract
Charity Policy
- Policy Name
- Risk management
- Policy Name
- Investing charity funds policy and procedures
- Policy Name
- Complaints handling
- Policy Name
- Engaging external speakers at charity events policy and procedures
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Campaigns and political activity policy and procedures
- Policy Name
- Complaints policy and procedures
- Policy Name
- Volunteer management
- Policy Name
- Serious incident reporting policy and procedures
- Policy Name
- Social media policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Bullying and harassment policy and procedures