LIPODYSTROPHY UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 30 October 2017
Removed: Not supplied
Financial period: 27 October 2024 – 26 October 2025
Latest income: £6,313
Latest expenditure: £25,569
Gift Aid: No
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: 29 Collington Way, Kingston Bagpuize, ABINGDON, OX13 5GP

Website recorded by the regulator: www.lipodystrophyuk.org (displayed as text)

02 Activities

What the charity does

Lipodystrophy UK is a dedicated UK patient group set up to support people with Lipodystrophy. Our mission is to raise awareness of Lipodystrophy, support those who may be affected by Lipodystrophy and advocate for excellent clinical care and scientific research into these conditions.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 27 October 2024
Fin Period End Date: 26 October 2025
Ar Cycle Reference: AR25
Reporting Due Date: 26 August 2026
Date Annual Return Received: 5 March 2026
Date Accounts Received: 5 March 2026
Total Gross Income: £6,313
Total Gross Expenditure: £25,569

Fin Period Start Date: 27 October 2023
Fin Period End Date: 26 October 2024
Ar Cycle Reference: AR24
Reporting Due Date: 26 August 2025
Date Annual Return Received: 5 March 2026
Date Accounts Received: 5 March 2026
Total Gross Income: £27,554
Total Gross Expenditure: £525

Fin Period Start Date: 27 October 2022
Fin Period End Date: 26 October 2023
Ar Cycle Reference: AR23
Reporting Due Date: 26 August 2024
Date Annual Return Received: 5 March 2026
Date Accounts Received: 5 March 2026
Total Gross Income: £29,204
Total Gross Expenditure: £27,139

Fin Period Start Date: 27 October 2021
Fin Period End Date: 26 October 2022
Ar Cycle Reference: AR22
Reporting Due Date: 26 August 2023
Date Annual Return Received: 31 August 2023
Date Accounts Received: 31 August 2023
Total Gross Income: £918
Total Gross Expenditure: £1,487

Fin Period Start Date: 27 October 2020
Fin Period End Date: 26 October 2021
Ar Cycle Reference: AR21
Reporting Due Date: 26 August 2022
Date Annual Return Received: 30 January 2022
Date Accounts Received: 30 January 2022
Total Gross Income: £941
Total Gross Expenditure: £276

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 27 October 2024
Fin Period End Date: 26 October 2025
Ar Due Date: 26 August 2026
Ar Received Date: 5 March 2026
Total Gross Income: £6,313
Total Gross Expenditure: £25,569
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 27 October 2023
Fin Period End Date: 26 October 2024
Ar Due Date: 26 August 2025
Ar Received Date: 5 March 2026
Total Gross Income: £27,554
Total Gross Expenditure: £525
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 27 October 2022
Fin Period End Date: 26 October 2023
Ar Due Date: 26 August 2024
Ar Received Date: 5 March 2026
Total Gross Income: £29,204
Total Gross Expenditure: £27,139
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 27 October 2021
Fin Period End Date: 26 October 2022
Ar Due Date: 26 August 2023
Ar Received Date: 31 August 2023
Total Gross Income: £918
Total Gross Expenditure: £1,487
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 27 October 2020
Fin Period End Date: 26 October 2021
Ar Due Date: 26 August 2022
Ar Received Date: 30 January 2022
Total Gross Income: £941
Total Gross Expenditure: £276
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 5

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 206
Classification Type: Who
Classification Description: Other Defined Groups

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 102
Classification Type: What
Classification Description: Education/training

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

07 Official extract

Charity Event History

Charity Name: LIPODYSTROPHY UK
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2017-10-30T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 30 Oct 2017
Charitable Objects: I. TO RAISE AWARENESS OF LIPODYSTROPHY CONDITIONS, BOTH WITHIN THE MEDICAL PROFESSION AND THEGENERAL PUBLIC;II. TO PROVIDE INFORMATION AND SUPPORT TO PEOPLE WITH LIPODYSTROPHY AND THOSE AFFECTED BY IT;III. TO ADVOCATE FOR EXCELLENT CARE AND IMPROVED TREATMENT OPTIONS FOR PEOPLE WITH LIPODYSTROPHY;IV. TO ENCOURAGE RESEARCH ADDRESSING THE CONCERNS OF PEOPLE WITH LIPODYSTROPHY