MYELOPATHY.ORG — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 6 June 2018
Removed: Not supplied
Financial period: 1 July 2024 – 30 June 2025
Latest income: £93,075
Latest expenditure: £91,962
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: Lakin Rose Ltd, Oakington Road, Girton, CAMBRIDGE, CB3 0QH

Website recorded by the regulator: www.myelopathy.org (displayed as text)

02 Activities

What the charity does

Supporting and funding scientific research into all aspects of myelopathy and ensuring the useful results are publicly disseminated.Raising awareness and understanding of myelopathy.Supporting and promoting improved physical and mental outcomes for patients and supporting patients, carers and healthcare professionals.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 July 2024
Fin Period End Date: 30 June 2025
Ar Cycle Reference: AR25
Reporting Due Date: 30 April 2026
Date Annual Return Received: 11 April 2026
Date Accounts Received: 11 April 2026
Total Gross Income: £93,075
Total Gross Expenditure: £91,962

Fin Period Start Date: 1 July 2023
Fin Period End Date: 30 June 2024
Ar Cycle Reference: AR24
Reporting Due Date: 30 April 2025
Date Annual Return Received: 8 April 2025
Date Accounts Received: 8 April 2025
Total Gross Income: £74,925
Total Gross Expenditure: £75,118

Fin Period Start Date: 1 July 2022
Fin Period End Date: 30 June 2023
Ar Cycle Reference: AR23
Reporting Due Date: 30 April 2024
Date Annual Return Received: 19 March 2024
Date Accounts Received: 20 March 2024
Total Gross Income: £79,215
Total Gross Expenditure: £97,406

Fin Period Start Date: 1 July 2021
Fin Period End Date: 30 June 2022
Ar Cycle Reference: AR22
Reporting Due Date: 30 April 2023
Date Annual Return Received: 25 April 2023
Date Accounts Received: 25 April 2023
Total Gross Income: £81,608
Total Gross Expenditure: £82,342

Fin Period Start Date: 1 July 2020
Fin Period End Date: 30 June 2021
Ar Cycle Reference: AR21
Reporting Due Date: 30 April 2022
Date Annual Return Received: 27 April 2022
Date Accounts Received: 27 April 2022
Total Gross Income: £123,284
Total Gross Expenditure: £75,354

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 July 2024
Fin Period End Date: 30 June 2025
Ar Due Date: 30 April 2026
Ar Received Date: 11 April 2026
Total Gross Income: £93,075
Total Gross Expenditure: £91,962
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 12

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 July 2023
Fin Period End Date: 30 June 2024
Ar Due Date: 30 April 2025
Ar Received Date: 8 April 2025
Total Gross Income: £74,925
Total Gross Expenditure: £75,118
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 15

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 July 2022
Fin Period End Date: 30 June 2023
Ar Due Date: 30 April 2024
Ar Received Date: 19 March 2024
Total Gross Income: £79,215
Total Gross Expenditure: £97,406
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 15

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 July 2021
Fin Period End Date: 30 June 2022
Ar Due Date: 30 April 2023
Ar Received Date: 25 April 2023
Total Gross Income: £81,608
Total Gross Expenditure: £82,342
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: Yes
Charity Agreement Professional Fundraiser: Yes
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 15

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 July 2020
Fin Period End Date: 30 June 2021
Ar Due Date: 30 April 2022
Ar Received Date: 27 April 2022
Total Gross Income: £123,284
Total Gross Expenditure: £75,354
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: Yes
Charity Agreement Professional Fundraiser: Yes
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 15

05 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: United States
Parent Geographic Area Type: Continent
Parent Geographic Area Description: North America
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 102
Classification Type: What
Classification Description: Education/training

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

07 Official extract

Charity Event History

Charity Name: MYELOPATHY.ORG
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2018-06-06T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 06 Jun 2018
Charitable Objects: TO ADVANCE HEALTH AND EDUCATION IN ALL ASPECTS OF MYELOPATHY IN PARTICULAR BUT NOT EXCLUSIVELY BY:1. SUPPORTING AND FUNDING SCIENTIFIC RESEARCH INTO ALL ASPECTS OF MYELOPATHY AND ENSURING THE USEFUL RESULTS OF SUCH RESEARCH ARE PUBLICLY DISSEMINATED;2. RAISING AWARENESS AND UNDERSTANDING OF THE CONDITION IN ALL ITS FORMS INCLUDING SHARING CURRENT RESEARCH AND HEALTHCARE INFORMATION;3. SUPPORTING AND PROMOTING IMPROVED PHYSICAL AND MENTAL OUTCOMES FOR PATIENTS INCLUDING ESTABLISHING SUPPORTING FOR PATIENTS, CARERS AND HEALTH PROFESSIONALS

09 Official extract

Charity Policy

Policy Name: Trustee expenses policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Volunteer management

Policy Name: Conflicting interests

Policy Name: Complaints policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Complaints handling

Policy Name: Social media policy and procedures