CCEW Charity Commission profile

CONGENITAL ADRENAL HYPERPLASIA SUPPORT GROUP

Registered charity 1178951 · organisation 5117182

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
27 June 2018
Removed
Not supplied
Financial period
1 April 2024 – 31 March 2025
Latest income
£10,527
Latest expenditure
£22,080
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: 27 Fircroft, Kingsbury, TAMWORTH, B78 2JU

Website recorded by the regulator: livingwithcah.com (displayed as text)

02 Activities

What the charity does

For public benefit, to preserve and protect the health of patients with Congenital Adrenal Hyperplasia (CAH) by providing support and information to individuals with CAH, their families and carers, raising awareness among the public and the medical profession and advancing care/treatment of CAH by funding research into CAH.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
1 January 2026
Date Accounts Received
1 January 2026
Total Gross Income
£10,527
Total Gross Expenditure
£22,080
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
7 December 2024
Date Accounts Received
7 December 2024
Total Gross Income
£22,692
Total Gross Expenditure
£6,464
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
10 December 2023
Date Accounts Received
10 December 2023
Total Gross Income
£8,953
Total Gross Expenditure
£3,544
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
8 November 2022
Date Accounts Received
8 November 2022
Total Gross Income
£14,845
Total Gross Expenditure
£5,082
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 January 2022
Date Annual Return Received
23 December 2021
Date Accounts Received
23 December 2021
Total Gross Income
£16,869
Total Gross Expenditure
£14,158

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
1 January 2026
Total Gross Income
£10,527
Total Gross Expenditure
£22,080
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
7
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
7 December 2024
Total Gross Income
£22,692
Total Gross Expenditure
£6,464
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
4
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
10 December 2023
Total Gross Income
£8,953
Total Gross Expenditure
£3,544
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
6
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
8 November 2022
Total Gross Income
£14,845
Total Gross Expenditure
£5,082
Charity Raises Funds From Public
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
2
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
1 April 2020
Fin Period End Date
31 March 2021
Ar Due Date
31 January 2022
Ar Received Date
23 December 2021
Total Gross Income
£16,869
Total Gross Expenditure
£14,158
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
2

05 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
202
Classification Type
Who
Classification Description
Elderly/old People
Classification Code
309
Classification Type
How
Classification Description
Acts As An Umbrella Or Resource Body
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
101
Classification Type
What
Classification Description
General Charitable Purposes
Classification Code
306
Classification Type
How
Classification Description
Provides Services

07 Official extract

Charity Event History

Charity Name
CONGENITAL ADRENAL HYPERPLASIA SUPPORT GROUP
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2018-06-27T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - ASSOCIATION Registered 27 Jun 2018
Charitable Objects
THE OBJECTS OF THE CIO ARE FOR PUBLIC BENEFIT, TO PRESERVE AND PROTECT THE HEALTH OF PATIENTS WITH CONGENITAL ADRENAL HYPERPLASIA (CAH) BY PROVIDING SUPPORT AND INFORMATION TO INDIVIDUALS WITH CAH, THEIR FAMILIES AND CARERS, RAISING AWARENESS AMONG THE PUBLIC AND THE MEDICAL PROFESSION AND ADVANCING CARE/TREATMENT OF CAH BY FUNDING RESEARCH INTO CAH, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE PUBLIC BENEFIT.

09 Official extract

Charity Other Names

Charity Name Id
598394
Charity Name Type
Working name
Charity Name
LIVING WITH CAH
Charity Name Id
598393
Charity Name Type
Working name
Charity Name
CAH SUPPORT GROUP

10 Official extract

Charity Policy

Policy Name
Volunteer management
Policy Name
Conflicting interests
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Investing charity funds policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Serious incident reporting policy and procedures