ADDISON'S DISEASE SELF HELP GROUP — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 5 September 2018
Removed: Not supplied
Financial period: 1 January 2025 – 31 December 2025
Latest income: £389,162
Latest expenditure: £333,115
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: 117 Kingsley Avenue, RUGBY, Warwickshire, CV21 4JZ

Website recorded by the regulator: www.addisonsdisease.org.uk (displayed as text)

02 Activities

What the charity does

Addison's Disease Self Help Group covers the UK and Ireland. It promotes the relief of persons with Addison's Disease and other forms of adrenal insufficiency, in particular by the provision of support, information and communication for such persons, their families and carers and by such charitable means as the trustees determine.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 October 2026
Date Annual Return Received: 4 June 2026
Date Accounts Received: 4 June 2026
Total Gross Income: £389,162
Total Gross Expenditure: £333,115

Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 October 2025
Date Annual Return Received: 10 July 2025
Date Accounts Received: 10 July 2025
Total Gross Income: £316,000
Total Gross Expenditure: £324,000

Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 October 2024
Date Annual Return Received: 23 July 2024
Date Accounts Received: 23 July 2024
Total Gross Income: £209,915
Total Gross Expenditure: £228,542

Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 October 2023
Date Annual Return Received: 28 July 2023
Date Accounts Received: 28 July 2023
Total Gross Income: £281,973
Total Gross Expenditure: £256,464

Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 October 2022
Date Annual Return Received: 29 July 2022
Date Accounts Received: 29 July 2022
Total Gross Income: £212,568
Total Gross Expenditure: £204,296

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Due Date: 31 October 2026
Ar Received Date: 4 June 2026
Total Gross Income: £389,162
Total Gross Expenditure: £333,115
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 12

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 10 July 2025
Total Gross Income: £316,000
Total Gross Expenditure: £324,000
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 12

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 23 July 2024
Total Gross Income: £209,915
Total Gross Expenditure: £228,542
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 18

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 28 July 2023
Total Gross Income: £281,973
Total Gross Expenditure: £256,464
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: Yes
Charity Agreement Commerical Participator: Yes
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: Yes
Employees Salary Over 60k: No
Count Volunteers: 20

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 29 July 2022
Total Gross Income: £212,568
Total Gross Expenditure: £204,296
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 12

05 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 202
Classification Type: Who
Classification Description: Elderly/old People

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

07 Official extract

Charity Event History

Charity Name: ADDISON'S DISEASE SELF HELP GROUP
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2018-09-05T00:00:00

Charity Name: ADDISON'S DISEASE SELF HELP GROUP
Charity Event Order: 2
Event Type: Asset transfer in
Date Of Event: 2019-03-22T00:00:00
Assoc Organisation Number: 4007989
Assoc Registered Charity Number: 1106791
Assoc Charity Name: THE ADDISON'S DISEASE SELF-HELP GROUP

08 Official extract

Charity Governing Document

Governing Document Description: CIO - ASSOCIATION Registered 05 Sep 2018 as amended on 28 Jul 2022
Charitable Objects: TO PROMOTE THE RELIEF OF PERSONS WITH ADDISON'S DISEASE, IN PARTICULAR BY THE PROVISION OF SUPPORT, INFORMATION AND COMMUNICATION FOR SUCH PERSONS, THEIR FAMILIES AND CARERS AND BY SUCH CHARITABLE MEANS AS THE TRUSTEES DETERMINE.

09 Official extract

Charity Other Names

Charity Name Id: 605635
Charity Name Type: Previous name
Charity Name: THE ADDISON'S DISEASE SELF-HELP GROUP

10 Official extract

Charity Policy

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Risk management

Policy Name: Engaging external speakers at charity events policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Paying staff

Policy Name: Safeguarding policy and procedures

Policy Name: Conflicting interests

Policy Name: Complaints policy and procedures

Policy Name: Volunteer management

Policy Name: Complaints handling

Policy Name: Financial reserves policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Investing charity funds policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Campaigns and political activity policy and procedures

Policy Name: Social media policy and procedures