01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- Trust
- Registered
- 12 April 2019
- Removed
- Not supplied
- Financial period
- 1 February 2024 – 31 January 2025
- Latest income
- £0
- Latest expenditure
- £41,189
- Gift Aid
- Yes
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- No
Public contact address: 28 Tunbury Avenue, CHATHAM, Kent, ME5 9EJ
Website recorded by the regulator: xlhalliance.org (displayed as text)
02 Activities
What the charity does
To unite and amplify the patient voice by supporting x-linked hypophosphataemia (XLH) groups worldwide and to set a global standard of care and research that ensures all patients receive the care that meets their individual needs.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 1 February 2024
- Fin Period End Date
- 31 January 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 30 November 2025
- Date Annual Return Received
- 30 September 2026
- Total Gross Income
- £0
- Total Gross Expenditure
- £41,189
- Fin Period Start Date
- 1 February 2023
- Fin Period End Date
- 31 January 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 30 November 2024
- Date Annual Return Received
- 5 December 2024
- Total Gross Income
- £690
- Total Gross Expenditure
- £4,390
- Fin Period Start Date
- 1 February 2022
- Fin Period End Date
- 31 January 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 30 November 2023
- Date Annual Return Received
- 30 November 2023
- Date Accounts Received
- 30 November 2023
- Total Gross Income
- £82,141
- Total Gross Expenditure
- £66,295
- Fin Period Start Date
- 1 February 2021
- Fin Period End Date
- 31 January 2022
- Ar Cycle Reference
- AR22
- Reporting Due Date
- 30 November 2022
- Date Annual Return Received
- 30 October 2022
- Total Gross Income
- £7,531
- Total Gross Expenditure
- £1,646
- Fin Period Start Date
- 1 February 2020
- Fin Period End Date
- 31 January 2021
- Ar Cycle Reference
- AR21
- Reporting Due Date
- 30 November 2021
- Date Annual Return Received
- 13 November 2021
- Date Accounts Received
- 13 November 2021
- Total Gross Income
- £66,727
- Total Gross Expenditure
- £578
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 3
- Ar Cycle Reference
- AR23
- Fin Period Start Date
- 1 February 2022
- Fin Period End Date
- 31 January 2023
- Ar Due Date
- 30 November 2023
- Ar Received Date
- 30 November 2023
- Total Gross Income
- £82,141
- Total Gross Expenditure
- £66,295
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 26
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 5
- Ar Cycle Reference
- AR21
- Fin Period Start Date
- 1 February 2020
- Fin Period End Date
- 31 January 2021
- Ar Due Date
- 30 November 2021
- Ar Received Date
- 13 November 2021
- Total Gross Income
- £66,727
- Total Gross Expenditure
- £578
- Charity Raises Funds From Public
- Yes
- Charity Professional Fundraiser
- No
- Charity Commercial Participator
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 3
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Country
- Geographic Area Description
- Austria
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Portugal
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Hungary
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Canada
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- United States
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Hong Kong
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Asia
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Isle Of Man
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Brazil
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- South America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Japan
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Asia
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Sweden
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Israel
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Asia
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Switzerland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Scotland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Chile
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- South America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Bulgaria
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Denmark
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Germany
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Netherlands
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Northern Ireland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- France
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
Showing 20 of 31 supplied records in this dataset.
06 Official extract
Charity Classification
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
07 Official extract
Charity Event History
- Charity Name
- INTERNATIONAL XLH ALLIANCE
- Charity Event Order
- 1
- Event Type
- Standard registration
- Date Of Event
- 2019-04-12T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- TRUST DEED DATED 18 NOV 2017 as amended on 14 Dec 2022
- Charitable Objects
- THE PRESERVATION OF GOOD HEALTH AMONG SUFFERERS OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS BY:A) SUPPORTING RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSES, PREVENTION, DIAGNOSIS AND METHODS OF TREATMENT OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS AND PUBLISHING THE USEFUL RESULTS OF THAT RESEARCH;B) PROVISION OF A SUPPORT NETWORK FOR FAMILIES SUFFERING FROM THE EFFECTS OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS; C) ADVOCATING EARLY DIAGNOSIS AND WELL-MANAGED TREATMENT OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS.
09 Official extract
Charity Other Names
- Charity Name Id
- 608963
- Charity Name Type
- Previous name
- Charity Name
- XLH UK
10 Official extract
Charity Policy
- Policy Name
- Complaints handling
- Policy Name
- Safeguarding vulnerable beneficiaries
- Policy Name
- Risk management
- Policy Name
- Conflicting interests