Ataxia aware — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 21 June 2019
Removed: Not supplied
Financial period: 31 March 2024 – 30 March 2025
Latest income: £348
Latest expenditure: £561
Gift Aid: No
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: Tybach, Cefnbrafle, Llanboidy, SA34 0SA

Website recorded by the regulator: www.ataxia-aware.org (displayed as text)

02 Activities

What the charity does

A patients focused charityRaising Awareness of Ataxia.Sharing Ataxia, associated rare disease, movement and health information to Empower the patient, family member, carer of this Life limiting rare disease.Collaborating within these communities to advance and amplify the Patients voice within the health arena.Participating in fundraising events to allow this task

03 Official extract

Charity Annual Return History

Fin Period Start Date: 31 March 2024
Fin Period End Date: 30 March 2025
Ar Cycle Reference: AR25
Reporting Due Date: 30 January 2026
Date Annual Return Received: 19 January 2026
Date Accounts Received: 19 January 2026
Total Gross Income: £348
Total Gross Expenditure: £561

Fin Period Start Date: 31 March 2023
Fin Period End Date: 30 March 2024
Ar Cycle Reference: AR24
Reporting Due Date: 30 January 2025
Date Annual Return Received: 17 January 2025
Date Accounts Received: 17 January 2025
Total Gross Income: £284
Total Gross Expenditure: £1,591

Fin Period Start Date: 31 March 2022
Fin Period End Date: 30 March 2023
Ar Cycle Reference: AR23
Reporting Due Date: 30 January 2024
Date Annual Return Received: 9 May 2024
Date Accounts Received: 10 May 2024
Total Gross Income: £1,211
Total Gross Expenditure: £1,335

Fin Period Start Date: 31 March 2021
Fin Period End Date: 30 March 2022
Ar Cycle Reference: AR22
Reporting Due Date: 30 January 2023
Date Annual Return Received: 24 January 2023
Date Accounts Received: 24 January 2023
Total Gross Income: £2,603
Total Gross Expenditure: £1,595

Fin Period Start Date: 31 March 2020
Fin Period End Date: 30 March 2021
Ar Cycle Reference: AR21
Reporting Due Date: 30 January 2022
Date Annual Return Received: 26 January 2022
Date Accounts Received: 28 January 2022
Total Gross Income: £2,161
Total Gross Expenditure: £1,144

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 31 March 2024
Fin Period End Date: 30 March 2025
Ar Due Date: 30 January 2026
Ar Received Date: 19 January 2026
Total Gross Income: £348
Total Gross Expenditure: £561
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 2

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 31 March 2023
Fin Period End Date: 30 March 2024
Ar Due Date: 30 January 2025
Ar Received Date: 17 January 2025
Total Gross Income: £284
Total Gross Expenditure: £1,591
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 2

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 31 March 2022
Fin Period End Date: 30 March 2023
Ar Due Date: 30 January 2024
Ar Received Date: 9 May 2024
Total Gross Income: £1,211
Total Gross Expenditure: £1,335
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 2

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 31 March 2021
Fin Period End Date: 30 March 2022
Ar Due Date: 30 January 2023
Ar Received Date: 24 January 2023
Total Gross Income: £2,603
Total Gross Expenditure: £1,595
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 31 March 2020
Fin Period End Date: 30 March 2021
Ar Due Date: 30 January 2022
Ar Received Date: 26 January 2022
Total Gross Income: £2,161
Total Gross Expenditure: £1,144
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 2

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 102
Classification Type: What
Classification Description: Education/training

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

07 Official extract

Charity Event History

Charity Name: Ataxia aware
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2019-06-21T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 21 Jun 2019 as amended on 16 May 2026
Charitable Objects: TO RELIEVE THE NEEDS OF SUFFERERS OF ATAXIA OR OTHER NEUROLOGICAL DISORDERS, THEIR FAMILIES AND CARERS FOR THE PUBLIC BENEFIT BY PROVIDING PATIENT LED SUPPORT AND BY RAISING AWARENESS OF SUCH CONDITIONS.

09 Official extract

Charity Other Names

Charity Name Id: 616623
Charity Name Type: Previous name
Charity Name: ATACSIA A FI / ATAXIA AND ME