Cure Usher Syndrome — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 20 December 2018
Removed: Not supplied
Financial period: 1 January 2024 – 31 December 2024
Latest income: £144,886
Latest expenditure: £158,474
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: 6, Valdene Drive, Worsley, Manchester, M28 7GA

Website recorded by the regulator: www.cureushersyndrome.com (displayed as text)

02 Activities

What the charity does

Working to increase awareness and raise funds for research into a cure for Usher syndrome, the leading cause of genetically inherited combined hearing and sight loss.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 October 2025
Date Annual Return Received: 11 September 2025
Date Accounts Received: 11 September 2025
Total Gross Income: £144,886
Total Gross Expenditure: £158,474

Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 October 2024
Date Annual Return Received: 3 October 2024
Date Accounts Received: 3 October 2024
Total Gross Income: £158,361
Total Gross Expenditure: £63,036

Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 October 2023
Date Annual Return Received: 31 October 2023
Date Accounts Received: 31 October 2023
Total Gross Income: £41,782
Total Gross Expenditure: £49,420

Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 October 2022
Date Annual Return Received: 31 August 2022
Date Accounts Received: 31 August 2022
Total Gross Income: £6,625
Total Gross Expenditure: £7,461

Fin Period Start Date: 1 January 2020
Fin Period End Date: 31 December 2020
Ar Cycle Reference: AR20
Reporting Due Date: 31 October 2021
Date Annual Return Received: 15 April 2021
Date Accounts Received: 15 April 2021
Total Gross Income: £27,326
Total Gross Expenditure: £6,072

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 11 September 2025
Total Gross Income: £144,886
Total Gross Expenditure: £158,474
Grant Making Is Main Activity: Yes
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 11

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 3 October 2024
Total Gross Income: £158,361
Total Gross Expenditure: £63,036
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 31 October 2023
Total Gross Income: £41,782
Total Gross Expenditure: £49,420
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 31 August 2022
Total Gross Income: £6,625
Total Gross Expenditure: £7,461
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR20
Fin Period Start Date: 1 January 2020
Fin Period End Date: 31 December 2020
Ar Due Date: 31 October 2021
Ar Received Date: 15 April 2021
Total Gross Income: £27,326
Total Gross Expenditure: £6,072
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 302
Classification Type: How
Classification Description: Makes Grants To Organisations

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 301
Classification Type: How
Classification Description: Makes Grants To Individuals

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 309
Classification Type: How
Classification Description: Acts As An Umbrella Or Resource Body

Classification Code: 206
Classification Type: Who
Classification Description: Other Defined Groups

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 202
Classification Type: Who
Classification Description: Elderly/old People

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

07 Official extract

Charity Event History

Charity Name: Cure Usher Syndrome
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2018-12-20T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 20 Dec 2018 as amended on 13 Apr 2024 as amended on 22 Aug 2025
Charitable Objects: TO PROMOTE AND PROTECT THE HEALTH OF THOSE SUFFERING FROM GENETICALLY INHERITED USHER SYNDROME, THROUGH THE PROVISION OF INFORMATION FOR PEOPLE AFFECTED BY THIS CONDITION, AND BY FUNDING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF ALL TYPES OF THE CONDITION AND PUBLISHING THE USEFUL RESULTS.

09 Official extract

Charity Other Names

Charity Name Id: 609568
Charity Name Type: Previous name
Charity Name: CUREUSHER

Charity Name Id: 679309
Charity Name Type: Working name
Charity Name: Cure Usher

Charity Name Id: 607085
Charity Name Type: Previous name
Charity Name: CURE