01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- CIO
- Registered
- 14 December 2018
- Removed
- Not supplied
- Financial period
- 1 January 2024 – 31 December 2024
- Latest income
- £220,195
- Latest expenditure
- £152,874
- Gift Aid
- Yes
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: 1 Ethley Drive, Raglan, Usk, Monmouthshire, NP15 2FD
Website recorded by the regulator: www.alkpositive.org.uk (displayed as text)
02 Activities
What the charity does
We provide a support network in the UK for patients with ALK-positive lung cancer and their families. We provide advice and information so that patients can be empowered to have meaningful conversations with their healthcare professionals. We advocate on their behalf at a national level so that patients receive a high level of care wherever they live in the UK
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 1 January 2024
- Fin Period End Date
- 31 December 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 31 October 2025
- Date Annual Return Received
- 18 September 2025
- Date Accounts Received
- 18 September 2025
- Total Gross Income
- £220,195
- Total Gross Expenditure
- £152,874
- Fin Period Start Date
- 1 January 2023
- Fin Period End Date
- 31 December 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 31 October 2024
- Date Annual Return Received
- 15 October 2024
- Date Accounts Received
- 15 October 2024
- Total Gross Income
- £182,857
- Total Gross Expenditure
- £201,511
- Fin Period Start Date
- 1 January 2022
- Fin Period End Date
- 31 December 2022
- Ar Cycle Reference
- AR22
- Reporting Due Date
- 31 October 2023
- Date Annual Return Received
- 19 October 2023
- Date Accounts Received
- 19 October 2023
- Total Gross Income
- £130,582
- Total Gross Expenditure
- £114,553
- Fin Period Start Date
- 1 January 2021
- Fin Period End Date
- 31 December 2021
- Ar Cycle Reference
- AR21
- Reporting Due Date
- 31 October 2022
- Date Annual Return Received
- 25 July 2022
- Date Accounts Received
- 25 July 2022
- Total Gross Income
- £164,415
- Total Gross Expenditure
- £107,572
- Fin Period Start Date
- 1 January 2020
- Fin Period End Date
- 31 December 2020
- Ar Cycle Reference
- AR20
- Reporting Due Date
- 31 October 2021
- Date Annual Return Received
- 15 September 2021
- Date Accounts Received
- 15 September 2021
- Total Gross Income
- £56,113
- Total Gross Expenditure
- £23,560
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 1 January 2024
- Fin Period End Date
- 31 December 2024
- Ar Due Date
- 31 October 2025
- Ar Received Date
- 18 September 2025
- Total Gross Income
- £220,195
- Total Gross Expenditure
- £152,874
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 13
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR23
- Fin Period Start Date
- 1 January 2023
- Fin Period End Date
- 31 December 2023
- Ar Due Date
- 31 October 2024
- Ar Received Date
- 15 October 2024
- Total Gross Income
- £182,857
- Total Gross Expenditure
- £201,511
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 19
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 3
- Ar Cycle Reference
- AR22
- Fin Period Start Date
- 1 January 2022
- Fin Period End Date
- 31 December 2022
- Ar Due Date
- 31 October 2023
- Ar Received Date
- 19 October 2023
- Total Gross Income
- £130,582
- Total Gross Expenditure
- £114,553
- Charity Raises Funds From Public
- Yes
- Charity Professional Fundraiser
- No
- Charity Commercial Participator
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 18
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 4
- Ar Cycle Reference
- AR21
- Fin Period Start Date
- 1 January 2021
- Fin Period End Date
- 31 December 2021
- Ar Due Date
- 31 October 2022
- Ar Received Date
- 25 July 2022
- Total Gross Income
- £164,415
- Total Gross Expenditure
- £107,572
- Charity Raises Funds From Public
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 0
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 5
- Ar Cycle Reference
- AR20
- Fin Period Start Date
- 1 January 2020
- Fin Period End Date
- 31 December 2020
- Ar Due Date
- 31 October 2021
- Ar Received Date
- 15 September 2021
- Total Gross Income
- £56,113
- Total Gross Expenditure
- £23,560
- Charity Raises Funds From Public
- Yes
- Charity Professional Fundraiser
- No
- Charity Commercial Participator
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 0
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 206
- Classification Type
- Who
- Classification Description
- Other Defined Groups
07 Official extract
Charity Event History
- Charity Name
- ALK POSITIVE LUNG CANCER (UK)
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2018-12-14T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- CIO - ASSOCIATION Registered 14 Dec 2018
- Charitable Objects
- TO RELIEVE SICKNESS AND TO PRESERVE AND PROTECT GOOD HEALTH OF UK ANAPLASTIC LYMPHOMA KINASE (ALK) POSITIVE LUNG CANCER PATIENTS BY:-A. PROVIDING AN INFORMATION RESOURCE, IN PARTICULAR ACCESS TO INFORMATION ABOUT LATEST DEVELOPMENTS AND CLINICAL TRIALS;B. IDENTIFYING AND LOCATING UK ALK PATIENTS AND OFFERING SUPPORT AND GUIDANCE ON THE LOCATION OF UK ALK SPECIALISTS AND SERVICES;C. LIAISING WITH AND INFLUENCING DECISION MAKERS, E.G. NICE, NHS, DVLA;D. RAISING AWARENESS OF ALK LUNG CANCER, PARTICULARLY AMONGST THE MEDICAL PROFESSION SO AS TO PROMOTE THE BEST TREATMENT FOR PATIENTS;E. LIAISING WITH RELEVANT ORGANISATIONS, IN PARTICULAR ROY CASTLE LUNG CANCER FOUNDATION AND THE PHARMACEUTICAL INDUSTRY;F. RAISING FUNDS FOR THE ABOVE PURPOSES.
09 Official extract
Charity Policy
- Policy Name
- Investing charity funds policy and procedures
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Complaints handling
- Policy Name
- Complaints policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Conflicting interests