CCEW Charity Commission profile

LYME DISEASE UK

Registered charity 1182212 · organisation 5132040

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
26 February 2019
Removed
Not supplied
Financial period
26 February 2024 – 25 February 2025
Latest income
£61,091
Latest expenditure
£74,795
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: Lyme Disease UK (LDUK), Lytchett House, 13 Freeland Park, Wareham Road, Poole, Dorset

Website recorded by the regulator: www.lymediseaseuk.com (displayed as text)

02 Activities

What the charity does

Lyme Disease UK strives to raise awareness of Lyme disease and provide support for those suffering from the illness. We operate online but also attend and host a range of events. Our aim is to raise money to continue spreading awareness but also to help fund research and patient grants in the future. We are very active on social media and we provide a wealth of information on our website.

03 Official extract

Charity Annual Return History

Fin Period Start Date
26 February 2024
Fin Period End Date
25 February 2025
Ar Cycle Reference
AR25
Reporting Due Date
25 December 2025
Date Annual Return Received
2 December 2025
Date Accounts Received
2 December 2025
Total Gross Income
£61,091
Total Gross Expenditure
£74,795
Fin Period Start Date
26 February 2023
Fin Period End Date
25 February 2024
Ar Cycle Reference
AR24
Reporting Due Date
25 December 2024
Date Annual Return Received
4 December 2024
Date Accounts Received
4 December 2024
Total Gross Income
£43,608
Total Gross Expenditure
£37,442
Fin Period Start Date
26 February 2022
Fin Period End Date
25 February 2023
Ar Cycle Reference
AR23
Reporting Due Date
25 December 2023
Date Annual Return Received
7 December 2023
Date Accounts Received
7 December 2023
Total Gross Income
£34,826
Total Gross Expenditure
£45,134
Fin Period Start Date
26 February 2021
Fin Period End Date
25 February 2022
Ar Cycle Reference
AR22
Reporting Due Date
25 December 2022
Date Annual Return Received
27 November 2022
Date Accounts Received
27 November 2022
Total Gross Income
£45,292
Total Gross Expenditure
£31,696
Fin Period Start Date
26 February 2020
Fin Period End Date
25 February 2021
Ar Cycle Reference
AR21
Reporting Due Date
25 December 2021
Date Annual Return Received
17 November 2021
Date Accounts Received
17 November 2021
Total Gross Income
£23,727
Total Gross Expenditure
£14,302

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
26 February 2024
Fin Period End Date
25 February 2025
Ar Due Date
25 December 2025
Ar Received Date
2 December 2025
Total Gross Income
£61,091
Total Gross Expenditure
£74,795
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
5
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
26 February 2023
Fin Period End Date
25 February 2024
Ar Due Date
25 December 2024
Ar Received Date
4 December 2024
Total Gross Income
£43,608
Total Gross Expenditure
£37,442
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
6
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
26 February 2022
Fin Period End Date
25 February 2023
Ar Due Date
25 December 2023
Ar Received Date
7 December 2023
Total Gross Income
£34,826
Total Gross Expenditure
£45,134
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
5
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
26 February 2021
Fin Period End Date
25 February 2022
Ar Due Date
25 December 2022
Ar Received Date
27 November 2022
Total Gross Income
£45,292
Total Gross Expenditure
£31,696
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
3
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
26 February 2020
Fin Period End Date
25 February 2021
Ar Due Date
25 December 2021
Ar Received Date
17 November 2021
Total Gross Income
£23,727
Total Gross Expenditure
£14,302
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
Yes
Charity Agreement Commerical Participator
Yes
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
11

05 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations
Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
206
Classification Type
Who
Classification Description
Other Defined Groups
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information

07 Official extract

Charity Event History

Charity Name
LYME DISEASE UK
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2019-02-26T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - FOUNDATION Registered 26 Feb 2019
Charitable Objects
FOR THE PUBLIC BENEFIT, THE PREVENTION OF LYME DISEASE AND THE RELIEF OF PEOPLE WITHLYME DISEASE, IN PARTICULAR BUT NOT EXCLUSIVELY BY:(1) RAISING AWARENESS ABOUT THE CAUSES AND DANGERS OF LYME DISEASE AND WAYS TOPREVENT TICK BITES;(2) PROVIDING AND PUBLISHING INFORMATION ABOUT LYME DISEASE AND WHERE PRACTICALHELP AND SUPPORT CAN BE FOUND FOR SUFFERERS;(3) MAKING GRANTS TO FUND RESEARCH INTO LYME DISEASE AND THE TREATMENT OF THEDISEASE, PROVIDED THE USEFUL RESULTS OF SUCH RESEARCH ARE PUBLISHED;(4) WORKING WITH OTHERS TO SUPPORT IMPROVEMENTS TO THE DIAGNOSIS AND TREATMENT OFLYME DISEASE, INCLUDING TO THE NATIONAL GUIDELINES FOR DIAGNOSIS, TREATMENT ANDCARE;(5) MAKING GRANTS TO PAY FOR PERSONAL CARE AND OTHER CHARITABLE SHORT OR LONG TERMNEEDS OF PEOPLE WITH LYME DISEASE.

09 Official extract

Charity Other Names

Charity Name Id
608878
Charity Name Type
Working name
Charity Name
LDUK

10 Official extract

Charity Policy

Policy Name
Bullying and harassment policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Risk management
Policy Name
Volunteer management
Policy Name
Investing charity funds policy and procedures
Policy Name
Campaigns and political activity policy and procedures
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Complaints handling
Policy Name
Complaints policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Conflicting interests
Policy Name
Engaging external speakers at charity events policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Social media policy and procedures