RARE AUTOINFLAMMATORY CONDITIONS COMMUNITY - UK (RACC - UK) — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 9 August 2019
Removed: Not supplied
Financial period: 23 February 2025 – 22 February 2026
Latest income: £2,834
Latest expenditure: £2,245
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: Prime Apartments, 483 Green Lanes, LONDON, N13 4FG

Website recorded by the regulator: https://www.raccuk.com/ (displayed as text)

02 Activities

What the charity does

RACC-UK is a registered charity dedicated to improving the lives of people living with rare autoinflammatory conditions. RACC-UK was created to ensure that no one has to face the challenges of a rare condition alone.We provide tailored support, resources and a safe space to talk, recognising that every individual's experience is different.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 23 February 2025
Fin Period End Date: 22 February 2026
Ar Cycle Reference: AR26
Reporting Due Date: 22 December 2026
Date Annual Return Received: 10 August 2026
Date Accounts Received: 10 August 2026
Total Gross Income: £2,834
Total Gross Expenditure: £2,245

Fin Period Start Date: 23 February 2024
Fin Period End Date: 22 February 2025
Ar Cycle Reference: AR25
Reporting Due Date: 22 December 2025
Date Annual Return Received: 27 October 2025
Date Accounts Received: 27 October 2025
Total Gross Income: £6,497
Total Gross Expenditure: £2,685

Fin Period Start Date: 23 February 2023
Fin Period End Date: 22 February 2024
Ar Cycle Reference: AR24
Reporting Due Date: 22 December 2024
Date Annual Return Received: 5 September 2024
Date Accounts Received: 5 September 2024
Total Gross Income: £3,341
Total Gross Expenditure: £2,522

Fin Period Start Date: 23 February 2022
Fin Period End Date: 22 February 2023
Ar Cycle Reference: AR23
Reporting Due Date: 22 December 2023
Date Annual Return Received: 29 November 2023
Date Accounts Received: 29 November 2023
Total Gross Income: £1,158
Total Gross Expenditure: £2,360

Fin Period Start Date: 23 February 2021
Fin Period End Date: 22 February 2022
Ar Cycle Reference: AR22
Reporting Due Date: 22 December 2022
Date Annual Return Received: 31 October 2022
Date Accounts Received: 31 October 2022
Total Gross Income: £2,916
Total Gross Expenditure: £2,113

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR26
Fin Period Start Date: 23 February 2025
Fin Period End Date: 22 February 2026
Ar Due Date: 22 December 2026
Ar Received Date: 10 August 2026
Total Gross Income: £2,834
Total Gross Expenditure: £2,245
Grant Making Is Main Activity: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 3

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR25
Fin Period Start Date: 23 February 2024
Fin Period End Date: 22 February 2025
Ar Due Date: 22 December 2025
Ar Received Date: 27 October 2025
Total Gross Income: £6,497
Total Gross Expenditure: £2,685
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 3

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR24
Fin Period Start Date: 23 February 2023
Fin Period End Date: 22 February 2024
Ar Due Date: 22 December 2024
Ar Received Date: 5 September 2024
Total Gross Income: £3,341
Total Gross Expenditure: £2,522
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR23
Fin Period Start Date: 23 February 2022
Fin Period End Date: 22 February 2023
Ar Due Date: 22 December 2023
Ar Received Date: 29 November 2023
Total Gross Income: £1,158
Total Gross Expenditure: £2,360
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: Yes
Count Volunteers: 5

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR22
Fin Period Start Date: 23 February 2021
Fin Period End Date: 22 February 2022
Ar Due Date: 22 December 2022
Ar Received Date: 31 October 2022
Total Gross Income: £2,916
Total Gross Expenditure: £2,113
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 5

05 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 202
Classification Type: Who
Classification Description: Elderly/old People

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

07 Official extract

Charity Event History

Charity Name: RARE AUTOINFLAMMATORY CONDITIONS COMMUNITY - UK (RACC - UK)
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2019-08-09T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 09 Aug 2019
Charitable Objects: TO RELIEVE THE NEEDS OF PATIENTS, FAMILIES AND CARERS AFFECTED BY AUTOINFLAMMATORY CONDITIONS IN THE UK BY:(A)PROVIDING INFORMATION, SUPPORT AND ADVICE.(B)RAISING AWARENESS OF AUTOINFLAMMATORY CONDITIONS.(C PROVIDING DATA WHEN SUPPORTING RESEARCH IN RELATION TO AUTOINFLAMMATORY CONDITIONS.

09 Official extract

Charity Other Names

Charity Name Id: 611858
Charity Name Type: Working name
Charity Name: RACC - UK

10 Official extract

Charity Policy

Policy Name: Safeguarding policy and procedures

Policy Name: Conflicting interests

Policy Name: Volunteer management

Policy Name: Bullying and harassment policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Risk management

Policy Name: Complaints handling

Policy Name: Complaints policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Social media policy and procedures