OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 19 June 2020
Removed: Not supplied
Financial period: 1 January 2025 – 31 December 2025
Latest income: £8,000
Latest expenditure: £8,000
Gift Aid: No
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: 74 Ladies Grove, ST. ALBANS, Hertfordshire, AL3 5TW

Website recorded by the regulator: www.oifn.org (displayed as text)

02 Activities

What the charity does

The Osteogenesis Imperfecta Foundation Network support those living with Osteogenesis Imperfecta (OI). Our purposes are to: promote public awareness on the condition, provide information, give advice support and provide equipment to anyone affected by OI; making connections to both the medical community and those living with OI for treatment purposes where necessary.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 October 2026
Date Annual Return Received: 30 January 2026
Date Accounts Received: 30 January 2026
Total Gross Income: £8,000
Total Gross Expenditure: £8,000

Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 October 2025
Date Annual Return Received: 10 March 2025
Date Accounts Received: 10 March 2025
Total Gross Income: £3,000
Total Gross Expenditure: £3,000

Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 October 2024
Date Annual Return Received: 15 January 2024
Date Accounts Received: 15 January 2024
Total Gross Income: £12,000
Total Gross Expenditure: £11,000

Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 October 2023
Date Annual Return Received: 3 November 2023
Date Accounts Received: 3 November 2023
Total Gross Income: £1,047
Total Gross Expenditure: £688

Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 October 2022
Date Annual Return Received: 26 April 2022
Date Accounts Received: 26 April 2022
Total Gross Income: £243
Total Gross Expenditure: £115

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Due Date: 31 October 2026
Ar Received Date: 30 January 2026
Total Gross Income: £8,000
Total Gross Expenditure: £8,000
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 10 March 2025
Total Gross Income: £3,000
Total Gross Expenditure: £3,000
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £3,000
Income From Government Grants: £3,000
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 15 January 2024
Total Gross Income: £12,000
Total Gross Expenditure: £11,000
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £1
Income From Government Grants: £10,000
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 3 November 2023
Total Gross Income: £1,047
Total Gross Expenditure: £688
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 4

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 26 April 2022
Total Gross Income: £243
Total Gross Expenditure: £115
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 4

05 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Kenya
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Africa
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Botswana
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Africa
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Ghana
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Africa
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Nigeria
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Africa
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 202
Classification Type: Who
Classification Description: Elderly/old People

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 105
Classification Type: What
Classification Description: The Prevention Or Relief Of Poverty

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 205
Classification Type: Who
Classification Description: Other Charities Or Voluntary Bodies

Classification Code: 310
Classification Type: How
Classification Description: Other Charitable Activities

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 102
Classification Type: What
Classification Description: Education/training

07 Official extract

Charity Event History

Charity Name: OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2020-06-19T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 19 Jun 2020
Charitable Objects: 1)THE RELIEF OF POVERTY FOR THE PUBLIC BENEFIT IN ANY PART OF THE WORLD THROUGH THE PROVISION OF ADVICE, SUPPORT, GRANTS, EQUIPMENT, TREATMENTS AND CARE TO THOSE THAT SUFFER FROM OSTEOGENESIS IMPERFECTA; AND2)TO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT BY PROMOTING, MAINTAINING, IMPROVING AND ADVANCING RESEARCH INTO THE NATURE, CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF OSTEOGENESIS AND TO EDUCATE THE PUBLIC IN ANY PART OF THE WORLD CONCERNING THE NATURE, CAUSES AND EFFECT OF OSTEOGENESIS IMPERFECTA BY PROMOTING, RAISING AWARENESS AND PROVIDING INFORMATION ABOUT IT TO BOTH THE MEDICAL COMMUNITY AND GENERAL POPULATION.

09 Official extract

Charity Other Names

Charity Name Id: 625937
Charity Name Type: Working name
Charity Name: OIFN

10 Official extract

Charity Policy

Policy Name: Risk management

Policy Name: Bullying and harassment policy and procedures

Policy Name: Complaints handling

Policy Name: Engaging external speakers at charity events policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Volunteer management

Policy Name: Complaints policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Conflicting interests

Policy Name: Social media policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Internal charity financial controls policy and procedures