DDX3X SUPPORT UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 10 February 2020
Removed: Not supplied
Financial period: 1 April 2024 – 31 March 2025
Latest income: £16,137
Latest expenditure: £1,364
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: Biggins Lodge Farm, High Biggins, CARNFORTH, LA6 2NP

Website recorded by the regulator: https://ddx3xsupportuk.co.uk (displayed as text)

02 Activities

What the charity does

1. TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AND MEDICAL PROFESSION IN ALL AREAS RELATING TO THE CONDITIONS CAUSED BY MUTATIONS OF THE DDX3X GENE.2. THE RELIEF OF SICKNESS AND PRESERVATION AND PROTECTION OF GOOD HEALTH BY SHARING INFORMATION ON THE DDX3X CONDITION.3. TO PROMOTE AND PROTECT THE PHYSICAL AND GOOD MENTAL HEALTH OF SUFFERERS OF DDX3X IN THE UK, THEIR FAMILIES AND CARERS.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 January 2026
Date Annual Return Received: 8 October 2025
Date Accounts Received: 8 October 2025
Total Gross Income: £16,137
Total Gross Expenditure: £1,364

Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 January 2025
Date Annual Return Received: 20 January 2025
Date Accounts Received: 20 January 2025
Total Gross Income: £12,834
Total Gross Expenditure: £1,294

Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 January 2024
Date Annual Return Received: 30 January 2024
Date Accounts Received: 30 January 2024
Total Gross Income: £5,256
Total Gross Expenditure: £1,916

Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 January 2023
Date Annual Return Received: 15 January 2023
Date Accounts Received: 15 January 2023
Total Gross Income: £6,745
Total Gross Expenditure: £2,749

Fin Period Start Date: 10 February 2020
Fin Period End Date: 31 March 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 January 2022
Date Annual Return Received: 10 January 2022
Date Accounts Received: 10 January 2022
Total Gross Income: £4,566
Total Gross Expenditure: £283

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Due Date: 31 January 2026
Ar Received Date: 8 October 2025
Total Gross Income: £16,137
Total Gross Expenditure: £1,364
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 2

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Due Date: 31 January 2025
Ar Received Date: 20 January 2025
Total Gross Income: £12,834
Total Gross Expenditure: £1,294
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 2

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 1 April 2022
Fin Period End Date: 31 March 2023
Ar Due Date: 31 January 2024
Ar Received Date: 30 January 2024
Total Gross Income: £5,256
Total Gross Expenditure: £1,916
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 3

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 1 April 2021
Fin Period End Date: 31 March 2022
Ar Due Date: 31 January 2023
Ar Received Date: 15 January 2023
Total Gross Income: £6,745
Total Gross Expenditure: £2,749
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 3

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 10 February 2020
Fin Period End Date: 31 March 2021
Ar Due Date: 31 January 2022
Ar Received Date: 10 January 2022
Total Gross Income: £4,566
Total Gross Expenditure: £283
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 2

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 206
Classification Type: Who
Classification Description: Other Defined Groups

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 303
Classification Type: How
Classification Description: Provides Other Finance

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 115
Classification Type: What
Classification Description: Human Rights/religious Or Racial Harmony/equality Or Diversity

Classification Code: 309
Classification Type: How
Classification Description: Acts As An Umbrella Or Resource Body

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

07 Official extract

Charity Event History

Charity Name: DDX3X SUPPORT UK
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2020-02-10T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 10 Feb 2020
Charitable Objects: 1. TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AND MEDICAL PROFESSION IN ALL AREAS RELATING TO THE CONDITIONS CAUSED BY MUTATIONS OF THE DDX3X GENE.2. THE RELIEF OF SICKNESS AND PRESERVATION AND PROTECTION OF GOOD HEALTH BY SHARING INFORMATION ON THE DDX3X CONDITION.3. TO PROMOTE AND PROTECT THE PHYSICAL AND GOOD MENTAL HEALTH OF SUFFERERS OF DDX3X IN THE UK, THEIR FAMILIES AND CARERS THROUGH THE PROVISION OF OPPORTUNITIES TO MEET TOGETHER FOR MUTUAL SUPPORT.

09 Official extract

Charity Policy

Policy Name: Safeguarding policy and procedures