01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- CIO
- Registered
- 28 May 2020
- Removed
- Not supplied
- Financial period
- 11 November 2024 – 10 November 2025
- Latest income
- £15,796
- Latest expenditure
- £19,260
- Gift Aid
- No
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: 10 Ruskin Road, New Costessey, NORWICH, NR5 0LL
Website recorded by the regulator: WWW.GPAC-PORPHYRIA.ORG (displayed as text)
02 Activities
What the charity does
The Global Porphyria Advocacy Coalition (GPAC) operates as an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. We work to support all individuals impacted by porphyria and to safeguard their interests. GPAC connects, supports and engages porphyria patients around the world through an integrated international network.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 11 November 2024
- Fin Period End Date
- 10 November 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 10 September 2026
- Date Annual Return Received
- 9 September 2026
- Date Accounts Received
- 9 September 2026
- Total Gross Income
- £15,796
- Total Gross Expenditure
- £19,260
- Fin Period Start Date
- 11 November 2023
- Fin Period End Date
- 10 November 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 10 September 2025
- Date Annual Return Received
- 10 September 2025
- Date Accounts Received
- 10 September 2025
- Total Gross Income
- £24,853
- Total Gross Expenditure
- £4,313
- Fin Period Start Date
- 11 November 2022
- Fin Period End Date
- 10 November 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 10 September 2024
- Date Annual Return Received
- 10 September 2024
- Date Accounts Received
- 10 September 2024
- Total Gross Income
- £8,884
- Total Gross Expenditure
- £6,917
- Fin Period Start Date
- 11 November 2021
- Fin Period End Date
- 10 November 2022
- Ar Cycle Reference
- AR22
- Reporting Due Date
- 10 September 2023
- Date Annual Return Received
- 6 October 2023
- Date Accounts Received
- 6 October 2023
- Total Gross Income
- £6,867
- Total Gross Expenditure
- £714
- Fin Period Start Date
- 28 May 2020
- Fin Period End Date
- 10 November 2021
- Ar Cycle Reference
- AR21
- Reporting Due Date
- 10 September 2022
- Date Annual Return Received
- 16 December 2021
- Date Accounts Received
- 16 December 2021
- Total Gross Income
- £0
- Total Gross Expenditure
- £0
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 11 November 2024
- Fin Period End Date
- 10 November 2025
- Ar Due Date
- 10 September 2026
- Ar Received Date
- 9 September 2026
- Total Gross Income
- £15,796
- Total Gross Expenditure
- £19,260
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 10
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 11 November 2023
- Fin Period End Date
- 10 November 2024
- Ar Due Date
- 10 September 2025
- Ar Received Date
- 10 September 2025
- Total Gross Income
- £24,853
- Total Gross Expenditure
- £4,313
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 6
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 3
- Ar Cycle Reference
- AR23
- Fin Period Start Date
- 11 November 2022
- Fin Period End Date
- 10 November 2023
- Ar Due Date
- 10 September 2024
- Ar Received Date
- 10 September 2024
- Total Gross Income
- £8,884
- Total Gross Expenditure
- £6,917
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 6
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 4
- Ar Cycle Reference
- AR22
- Fin Period Start Date
- 11 November 2021
- Fin Period End Date
- 10 November 2022
- Ar Due Date
- 10 September 2023
- Ar Received Date
- 6 October 2023
- Total Gross Income
- £6,867
- Total Gross Expenditure
- £714
- Charity Raises Funds From Public
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 3
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 5
- Ar Cycle Reference
- AR21
- Fin Period Start Date
- 28 May 2020
- Fin Period End Date
- 10 November 2021
- Ar Due Date
- 10 September 2022
- Ar Received Date
- 16 December 2021
- Total Gross Income
- £0
- Total Gross Expenditure
- £0
- Charity Raises Funds From Public
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 2
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Country
- Geographic Area Description
- Netherlands
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Austria
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Scotland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- South Africa
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Africa
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Ireland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Brazil
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- South America
- Welsh Ind
- No
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Canada
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Northern Ireland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Australia
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Oceania
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Germany
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- United States
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Sweden
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Spain
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Italy
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Denmark
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Poland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- France
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Switzerland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Mexico
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
Showing 20 of 21 supplied records in this dataset.
06 Official extract
Charity Classification
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 306
- Classification Type
- How
- Classification Description
- Provides Services
- Classification Code
- 104
- Classification Type
- What
- Classification Description
- Disability
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 309
- Classification Type
- How
- Classification Description
- Acts As An Umbrella Or Resource Body
- Classification Code
- 202
- Classification Type
- Who
- Classification Description
- Elderly/old People
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 205
- Classification Type
- Who
- Classification Description
- Other Charities Or Voluntary Bodies
- Classification Code
- 206
- Classification Type
- Who
- Classification Description
- Other Defined Groups
07 Official extract
Charity Event History
- Charity Name
- GLOBAL PORPHYRIA ADVOCACY COALITION
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2020-05-28T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- CIO - ASSOCIATION Registered 28 May 2020
- Charitable Objects
- FOR THE PUBLIC BENEFIT, TO RELIEVE THE NEEDS OF PATIENTS SUFFERING FROM PORPHYRIA WORLDWIDE, IN PARTICULAR, BUT NOT EXCLUSIVELY, BY PROVIDING SUPPORT AND INFORMATION TO PATIENTS AND PATIENT GROUPS, AND BY RAISING AWARENESS OF THE DISORDER AMONGST HEALTH PROFESSIONALS, POLICY MAKERS AND THE GENERAL PUBLIC, INCLUDING BY PROVIDING INFORMATION ABOUT THE PORPHYRIA GROUP OF DISEASES, THEIR DIAGNOSES AND TREATMENTS, PROMOTING RESEARCH AND SHARING THE USEFUL RESULTS OF LATEST RESEARCH.
09 Official extract
Charity Other Names
- Charity Name Id
- 619830
- Charity Name Type
- Previous name
- Charity Name
- GLOBAL PORPHYRIA ADVOCACY COALITON
10 Official extract
Charity Policy
- Policy Name
- Risk management
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Social media policy and procedures
- Policy Name
- Engaging external speakers at charity events policy and procedures
- Policy Name
- Conflicting interests
- Policy Name
- Complaints policy and procedures
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Serious incident reporting policy and procedures
- Policy Name
- Bullying and harassment policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Investing charity funds policy and procedures