01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- Trust
- Registered
- 20 January 2020
- Removed
- Not supplied
- Financial period
- 7 April 2024 – 6 April 2025
- Latest income
- £1,200
- Latest expenditure
- £585
- Gift Aid
- No
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- No
Public contact address: 42 Coronel Close, SWINDON, SN3 4FW
Website recorded by the regulator: www.myhresyndrome.com (displayed as text)
02 Activities
What the charity does
To provide support, respite & counsel to those suffering with or supporting those who are from Myhre Syndrome. Activites are not limited to interventions, with support & advice, alongside building of Myhre Awareness across the UK, and the building of an Advocacy Group. Strategically, inception of a Myhre Centre of Excellence & strong associations with sister organisation's who share our outlook.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 7 April 2024
- Fin Period End Date
- 6 April 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 6 February 2026
- Date Annual Return Received
- 28 May 2026
- Total Gross Income
- £1,200
- Total Gross Expenditure
- £585
- Fin Period Start Date
- 7 April 2023
- Fin Period End Date
- 6 April 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 6 February 2025
- Date Annual Return Received
- 15 February 2025
- Total Gross Income
- £516
- Total Gross Expenditure
- £1,636
- Fin Period Start Date
- 7 April 2022
- Fin Period End Date
- 6 April 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 6 February 2024
- Date Annual Return Received
- 22 June 2024
- Total Gross Income
- £558
- Total Gross Expenditure
- £1,823
- Fin Period Start Date
- 7 April 2021
- Fin Period End Date
- 6 April 2022
- Ar Cycle Reference
- AR22
- Reporting Due Date
- 6 February 2023
- Date Annual Return Received
- 21 January 2023
- Total Gross Income
- £3,347
- Total Gross Expenditure
- £2,815
- Fin Period Start Date
- 7 April 2020
- Fin Period End Date
- 6 April 2021
- Ar Cycle Reference
- AR21
- Reporting Due Date
- 6 February 2022
- Date Annual Return Received
- 1 February 2022
- Total Gross Income
- £2,402
- Total Gross Expenditure
- £329
04 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
05 Official extract
Charity Classification
- Classification Code
- 306
- Classification Type
- How
- Classification Description
- Provides Services
- Classification Code
- 104
- Classification Type
- What
- Classification Description
- Disability
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 302
- Classification Type
- How
- Classification Description
- Makes Grants To Organisations
- Classification Code
- 117
- Classification Type
- What
- Classification Description
- Other Charitable Purposes
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 309
- Classification Type
- How
- Classification Description
- Acts As An Umbrella Or Resource Body
- Classification Code
- 202
- Classification Type
- Who
- Classification Description
- Elderly/old People
- Classification Code
- 101
- Classification Type
- What
- Classification Description
- General Charitable Purposes
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
06 Official extract
Charity Event History
- Charity Name
- MYHRE SYNDROME UK & EUROPE
- Charity Event Order
- 1
- Event Type
- Standard registration
- Date Of Event
- 2020-01-20T00:00:00
07 Official extract
Charity Governing Document
- Governing Document Description
- TRUST DEED DATED 14 JAN 2020
- Charitable Objects
- 1) THE RELIEF OF SICKNESS AND PRESERVATION OF HEALTH AMONG THOSE SUFFERING FROM MYHRE SYNDROME, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF: A) ADVICE, COUNSELLING AND SUPPORT TO THOSE SUFFERING FROM MYHRE SYNDROME. B) INFORMATION SHARING PROGRAMMES TO RAISE AWARENESS ON ALL ASPECTS OF MYHRE SYNDROME. C) SUPPORT TO DEVELOP MEDICAL PRACTICES RELATING TO THE DIAGNOSES AND TREATMENT OF MYHRE SYNDROME. 2) TO RELIEVE THE NEEDS OF THOSE SUFFERING FROM MYHRE SYNDROME, AND THEIR FAMILIES, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF RESPITE, ADVICE AND SUPPORT.
08 Official extract
Charity Other Names
- Charity Name Id
- 619333
- Charity Name Type
- Working name
- Charity Name
- MYHRE SYNDROME UK