CDLS - HOPE FOR HASTI — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 25 March 2020
Removed: Not supplied
Financial period: 31 March 2024 – 30 March 2025
Latest income: £41,673
Latest expenditure: £37,967
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: 7 Bucks Close, WEST BYFLEET, Surrey, KT14 6RU

Website recorded by the regulator: www.hopeforhasti.org (displayed as text)

02 Activities

What the charity does

Hope for Hasti provides grants to organisations conducting research on Cornelia de Lange Syndrome (CdLS), and guides research projects with the aim of finding treatments for this rare genetic condition.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 31 March 2024
Fin Period End Date: 30 March 2025
Ar Cycle Reference: AR25
Reporting Due Date: 30 January 2026
Date Annual Return Received: 29 January 2026
Date Accounts Received: 29 January 2026
Total Gross Income: £41,673
Total Gross Expenditure: £37,967

Fin Period Start Date: 31 March 2023
Fin Period End Date: 30 March 2024
Ar Cycle Reference: AR24
Reporting Due Date: 30 January 2025
Date Annual Return Received: 30 January 2025
Date Accounts Received: 30 January 2025
Total Gross Income: £67,677
Total Gross Expenditure: £25,446

Fin Period Start Date: 31 March 2022
Fin Period End Date: 30 March 2023
Ar Cycle Reference: AR23
Reporting Due Date: 30 January 2024
Date Annual Return Received: 3 January 2024
Date Accounts Received: 3 January 2024
Total Gross Income: £32,165
Total Gross Expenditure: £23,233

Fin Period Start Date: 31 March 2021
Fin Period End Date: 30 March 2022
Ar Cycle Reference: AR22
Reporting Due Date: 30 January 2023
Date Annual Return Received: 31 August 2022
Date Accounts Received: 31 August 2022
Total Gross Income: £269,682
Total Gross Expenditure: £108,339

Fin Period Start Date: 25 March 2020
Fin Period End Date: 30 March 2021
Ar Cycle Reference: AR21
Reporting Due Date: 30 January 2022
Date Annual Return Received: 25 January 2022
Date Accounts Received: 25 January 2022
Total Gross Income: £897,100
Total Gross Expenditure: £29,386

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 31 March 2024
Fin Period End Date: 30 March 2025
Ar Due Date: 30 January 2026
Ar Received Date: 29 January 2026
Total Gross Income: £41,673
Total Gross Expenditure: £37,967
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 31 March 2023
Fin Period End Date: 30 March 2024
Ar Due Date: 30 January 2025
Ar Received Date: 30 January 2025
Total Gross Income: £67,677
Total Gross Expenditure: £25,446
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 2

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 31 March 2022
Fin Period End Date: 30 March 2023
Ar Due Date: 30 January 2024
Ar Received Date: 3 January 2024
Total Gross Income: £32,165
Total Gross Expenditure: £23,233
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 6

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 31 March 2021
Fin Period End Date: 30 March 2022
Ar Due Date: 30 January 2023
Ar Received Date: 31 August 2022
Total Gross Income: £269,682
Total Gross Expenditure: £108,339
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 15

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 25 March 2020
Fin Period End Date: 30 March 2021
Ar Due Date: 30 January 2022
Ar Received Date: 25 January 2022
Total Gross Income: £897,100
Total Gross Expenditure: £29,386
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 200

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 25 March 2020
Fin Period End Date: 30 March 2021
Ar Due Date: 30 January 2022
Ar Received Date: 25 January 2022
Income Donations And Legacies: 897054
Income Other Trading Activities: 0
Income Charitable Activities: 0
Income Investments: 0
Income Other: 46
Income Total Income And Endowments: 897100
Income Legacies: 0
Income Endowments: 0
Expenditure Raising Funds: £2,021
Expenditure Charitable Expenditure: £25,325
Expenditure Other: 2040
Expenditure Total: 29386
Expenditure Investment Management: 0
Expenditure Grants Institution: 0
Expenditure Governance: 0
Expenditure Support Costs: 0
Expenditure Depreciation: 0
Gain Loss Investment: 0
Gain Loss Pension Fund: 0
Gain Loss Revaluation Fixed Investment: 0
Gain Loss Other: 0
Reserves: £0
Assets Total Fixed: 0
Assets Own Use: 0
Assets Long Term Investment: 0
Defined Benefit Pension Scheme: 0
Assets Other Assets: £869,514
Assets Total Liabilities: £1,800
Assets Current Investment: 0
Assets Total Assets And Liabilities: £867,714
Creditors One Year Total Current: 1800
Creditors Falling Due After One Year: 0
Assets Cash: £848,324
Funds Endowment: 0
Funds Unrestricted: 0
Funds Restricted: 867714
Funds Total: 867714
Count Employees: 0
Charity Only Accounts: Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

07 Official extract

Charity Classification

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 206
Classification Type: Who
Classification Description: Other Defined Groups

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

08 Official extract

Charity Event History

Charity Name: CDLS - HOPE FOR HASTI
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2020-03-25T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 25 Mar 2020
Charitable Objects: THE OBJECTS OF THE CIO IS:FOR THE PUBLIC BENEFIT, THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH AMONG PEOPLE SUFFERING FROM CORNELIA DE LANGE SYNDROME (CDLS) IN PARTICULAR BY: (1) PROVIDING GRANTS OF FINANCIAL ASSISTANCE TO ORGANISATIONS AND INDIVIDUALS UNDERTAKING RESEARCH INTO CORNELIA DE LANGE SYNDROME (CDLS) ANYWHERE IN THE WORLD, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE PUBLIC BENEFIT.(2) ESTABLISHING AND OPERATING A PATIENT REGISTRY FOR PERSONS SUFFERING FROM CORNELIA DE LANGE SYNDROME (CDLS) ANYWHERE IN THE WORLD AS A MEANS TO SUPPORT CLINICAL TRIALS, STUDIES AND RESEARCH INTO THE CONDITION.

10 Official extract

Charity Other Names

Charity Name Id: 626914
Charity Name Type: Working name
Charity Name: HOPE FOR HASTI

11 Official extract

Charity Policy

Policy Name: Safeguarding policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Engaging external speakers at charity events policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Investing charity funds policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Campaigns and political activity policy and procedures