01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- Charitable company
- Registered
- 27 October 2020
- Removed
- Not supplied
- Company number supplied
- 06653373
- Financial period
- 1 January 2025 – 31 December 2025
- Latest income
- £258,120
- Latest expenditure
- £248,056
- Gift Aid
- No
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- No
Public contact address: 86-90 Paul Street, London, EC2A 4NE
Website recorded by the regulator: www.gaucheralliance.org (displayed as text)
02 Activities
What the charity does
The IGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as rare disease groups throughout the world.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 1 January 2025
- Fin Period End Date
- 31 December 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 31 October 2026
- Date Annual Return Received
- 8 October 2026
- Date Accounts Received
- 8 October 2026
- Total Gross Income
- £258,120
- Total Gross Expenditure
- £248,056
- Fin Period Start Date
- 1 January 2024
- Fin Period End Date
- 31 December 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 31 October 2025
- Date Annual Return Received
- 28 May 2026
- Date Accounts Received
- 28 May 2026
- Total Gross Income
- £335,442
- Total Gross Expenditure
- £383,772
- Fin Period Start Date
- 1 January 2023
- Fin Period End Date
- 31 December 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 31 October 2024
- Date Annual Return Received
- 24 October 2024
- Date Accounts Received
- 24 October 2024
- Total Gross Income
- £395,659
- Total Gross Expenditure
- £365,122
- Fin Period Start Date
- 1 January 2022
- Fin Period End Date
- 31 December 2022
- Ar Cycle Reference
- AR22
- Reporting Due Date
- 31 October 2023
- Date Annual Return Received
- 24 October 2023
- Date Accounts Received
- 24 October 2023
- Total Gross Income
- £251,407
- Total Gross Expenditure
- £293,233
- Fin Period Start Date
- 1 January 2021
- Fin Period End Date
- 31 December 2021
- Ar Cycle Reference
- AR21
- Reporting Due Date
- 31 October 2022
- Date Annual Return Received
- 26 October 2022
- Date Accounts Received
- 26 October 2022
- Total Gross Income
- £293,567
- Total Gross Expenditure
- £267,491
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 1 January 2025
- Fin Period End Date
- 31 December 2025
- Ar Due Date
- 31 October 2026
- Ar Received Date
- 8 October 2026
- Total Gross Income
- £258,120
- Total Gross Expenditure
- £248,056
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 70001 80000
- 1
- Count Volunteers
- 50
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 1 January 2024
- Fin Period End Date
- 31 December 2024
- Ar Due Date
- 31 October 2025
- Ar Received Date
- 28 May 2026
- Total Gross Income
- £335,442
- Total Gross Expenditure
- £383,772
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 70001 80000
- 1
- Count Volunteers
- 0
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 3
- Ar Cycle Reference
- AR23
- Fin Period Start Date
- 1 January 2023
- Fin Period End Date
- 31 December 2023
- Ar Due Date
- 31 October 2024
- Ar Received Date
- 24 October 2024
- Total Gross Income
- £395,659
- Total Gross Expenditure
- £365,122
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- Yes
- Trustee Also Director Of Subsidiary
- Yes
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 60001 70000
- 0
- Count Salary Band 70001 80000
- 1
- Count Salary Band 80001 90000
- 0
- Count Salary Band 90001 100000
- 0
- Count Salary Band 100001 110000
- 0
- Count Salary Band 110001 120000
- 0
- Count Salary Band 120001 130000
- 0
- Count Salary Band 130001 140000
- 0
- Count Salary Band 140001 150000
- 0
- Count Salary Band 150001 200000
- 0
- Count Salary Band 200001 250000
- 0
- Count Salary Band 250001 300000
- 0
- Count Salary Band 300001 350000
- 0
- Count Salary Band 350001 400000
- 0
- Count Salary Band 400001 450000
- 0
- Count Salary Band 450001 500000
- 0
- Count Salary Band Over 500000
- 0
- Count Volunteers
- 0
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 4
- Ar Cycle Reference
- AR22
- Fin Period Start Date
- 1 January 2022
- Fin Period End Date
- 31 December 2022
- Ar Due Date
- 31 October 2023
- Ar Received Date
- 24 October 2023
- Total Gross Income
- £251,407
- Total Gross Expenditure
- £293,233
- Charity Raises Funds From Public
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- Yes
- Trustee Also Director Of Subsidiary
- Yes
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 70001 80000
- 1
- Count Volunteers
- 1
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 5
- Ar Cycle Reference
- AR21
- Fin Period Start Date
- 1 January 2021
- Fin Period End Date
- 31 December 2021
- Ar Due Date
- 31 October 2022
- Ar Received Date
- 26 October 2022
- Total Gross Income
- £293,567
- Total Gross Expenditure
- £267,491
- Charity Raises Funds From Public
- No
- Charity Receives Govt Funding Contracts
- No
- Charity Receives Govt Funding Grants
- No
- Charity Has Trading Subsidiary
- Yes
- Trustee Also Director Of Subsidiary
- Yes
- Does Trustee Receive Any Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 60001 70000
- 1
- Count Volunteers
- 0
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Country
- Geographic Area Description
- Jordan
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Asia
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Croatia
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Canada
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Switzerland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Mongolia
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Asia
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Paraguay
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- South America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Germany
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Macedonia
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Mozambique
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Africa
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Australia
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Oceania
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Mexico
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Japan
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Asia
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Norway
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- France
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Poland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Finland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Albania
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Portugal
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Greece
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Czech Republic
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
Showing 20 of 56 supplied records in this dataset.
06 Official extract
Charity Classification
- Classification Code
- 206
- Classification Type
- Who
- Classification Description
- Other Defined Groups
- Classification Code
- 207
- Classification Type
- Who
- Classification Description
- The General Public/mankind
- Classification Code
- 309
- Classification Type
- How
- Classification Description
- Acts As An Umbrella Or Resource Body
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 205
- Classification Type
- Who
- Classification Description
- Other Charities Or Voluntary Bodies
- Classification Code
- 102
- Classification Type
- What
- Classification Description
- Education/training
07 Official extract
Charity Event History
- Charity Name
- INTERNATIONAL GAUCHER ALLIANCE
- Charity Event Order
- 1
- Event Type
- Standard registration
- Date Of Event
- 2020-10-27T00:00:00
- Charity Name
- INTERNATIONAL GAUCHER ALLIANCE
- Charity Event Order
- 2
- Event Type
- Asset transfer in
- Date Of Event
- 2020-12-21T00:00:00
- Reason
- Funds transferred (gi)
- Assoc Organisation Number
- 297271
- Assoc Registered Charity Number
- 297271
- Assoc Charity Name
- THE HELEN MANUEL FOUNDATION
08 Official extract
Charity Governing Document
- Governing Document Description
- MEMORANDUM AND ARTICLES INCORPORATED 22 JUL 2008AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 12 OCT 2020 as amended on 19 Sept 2026
- Charitable Objects
- THE OBJECTS FOR WHICH THE COMPANY IS ESTABLISHED ARE THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH AMONGST PEOPLE SUFFERING FROM THE RARE GENETICALLY INHERITED CONDITION OF GAUCHER DISEASE WHEREVER THEY ARE IN THE WORLD ("OBJECTS") AND IN DOING SO THE COMPANY WILL: 1.1 COLLECT INFORMATION ON THE LATEST DEVELOPMENTS IN THE UNDERSTANDING, MANAGEMENT AND TREATMENT OF GAUCHER DISEASE AND TO DISSEMINATE SUCH INFORMATION TO ALL PARTIES WHO HAVE AN INTEREST IN GAUCHER DISEASE AND OTHER SIMILAR DISORDERS;1.2 PROVIDE INFORMATION SUPPORT GUIDANCE AND ENCOURAGEMENT TO GROUPS OF INDIVIDUALS REPRESENTING GAUCHER PATIENTS GLOBALLY;1.3 REPRESENT THE INTERESTS OF GAUCHER PATIENTS TO EUROPEAN AND INTERNATIONAL ORGANISATIONS AND BODIES AND TO ENSURE THAT THE VOICE OF THE GAUCHER PATIENT IS HEARD AT ALL TIMES.1.4 ENCOURAGE AND PROMOTE SCIENTIFIC AND MEDICAL RESEARCH INTO GAUCHER DISEASE AND IMPROVED THERAPEUTIC APPROACHES AND TO SEEK TO ENSURE ALL SUCH RESEARCH RECOGNISES THE CENTRALITY OF THE GAUCHER PATIENT.1.5 WORK WITH THE MEDICAL AND SCIENTIFIC COMMUNITY TO DEFINE PRIORITIES IN THE UNDERSTANDING OF GAUCHER DISEASE ITS MANAGEMENT AND TREATMENT.1.6 WORK WITH, FACILITATE, SUPPORT AND ENCOURAGE THE ACTIVITIES OF THE EUROPEAN WORKING GROUP ON GAUCHER DISEASE (EWGGD) AND OTHER ORGANISATIONS OR WORKING GROUPS WITH SIMILAR OBJECTIVES.1.7 BE A FORUM TO ADDRESS ETHICAL ISSUES ARISING FROM THE STUDY OF GAUCHER DISEASE 1.8 ENSURE THAT APPROPRIATE TREATMENT IS AVAILABLE TO ALL PATIENTS WITH GAUCHER DISEASE WHO REQUIRE TREATMENT REGARDLESS OF RACE, CREED, COLOUR ETHNIC ORIGIN OR NATIONAL OR RELIGIOUS BACKGROUND; AND1.9 CARRY OUT ANY OTHER ACTIVITIES THAT ADVANCE THE OBJECTS.
09 Official extract
Charity Policy
- Policy Name
- Volunteer management
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Bullying and harassment policy and procedures
- Policy Name
- Risk management
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Campaigns and political activity policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Complaints policy and procedures
- Policy Name
- Engaging external speakers at charity events policy and procedures
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Paying staff
- Policy Name
- Social media policy and procedures
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Serious incident reporting policy and procedures
- Policy Name
- Conflicting interests