HUNTINGTON DISEASE LIVIN — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Overdue
Charity type: CIO
Registered: 23 June 2020
Removed: Not supplied
Financial period: 1 January 2024 – 31 December 2024
Latest income: £34,716
Latest expenditure: £14,206
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: 1 Oakdene Rise, PLYMOUTH, PL9 8RU

Website recorded by the regulator: www.hdlivin.org.uk (displayed as text)

02 Activities

What the charity does

As a recently established charity we are raising funds to create purpose built Respite Centres.In the past 12 months we have adapted our fundraising to accommodate Covid restrictions.Events included Launch party in Plymouth (just got in before lockdown) & sponsored walk. Many Activities were moved to online including - Raffles, Bingo, Quiz's & Selling donated items on our on line shop.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 January 2025
Fin Period End Date: 31 December 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 October 2026

Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 October 2025
Date Annual Return Received: 29 October 2025
Date Accounts Received: 29 October 2025
Total Gross Income: £34,716
Total Gross Expenditure: £14,206

Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 October 2024
Date Annual Return Received: 14 November 2024
Date Accounts Received: 14 November 2024
Total Gross Income: £41,872
Total Gross Expenditure: £16,682

Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 October 2023
Date Annual Return Received: 31 October 2023
Date Accounts Received: 31 October 2023
Total Gross Income: £21,585
Total Gross Expenditure: £11,779

Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Cycle Reference: AR21
Reporting Due Date: 31 October 2022
Date Annual Return Received: 31 October 2022
Date Accounts Received: 31 October 2022
Total Gross Income: £35,252
Total Gross Expenditure: £11,540

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 29 October 2025
Total Gross Income: £34,716
Total Gross Expenditure: £14,206
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 30

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 14 November 2024
Total Gross Income: £41,872
Total Gross Expenditure: £16,682
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 50

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR22
Fin Period Start Date: 1 January 2022
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 31 October 2023
Total Gross Income: £21,585
Total Gross Expenditure: £11,779
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 30

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR21
Fin Period Start Date: 1 January 2021
Fin Period End Date: 31 December 2021
Ar Due Date: 31 October 2022
Ar Received Date: 31 October 2022
Total Gross Income: £35,252
Total Gross Expenditure: £11,540
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 15

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR20
Fin Period Start Date: 23 June 2020
Fin Period End Date: 31 December 2020
Ar Due Date: 31 October 2021
Ar Received Date: 31 October 2021
Total Gross Income: £17,003
Total Gross Expenditure: £6,494
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: Yes
Charity Agreement Commerical Participator: Yes
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 11

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

07 Official extract

Charity Event History

Charity Name: HUNTINGTON DISEASE LIVIN
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2020-06-23T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 23 Jun 2020
Charitable Objects: THE OBJECTS OF THE CIO ARE TO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT BY:--(1) PROVIDING RELIEF FOR FULL TIME CARERS ACROSS ENGLAND, THROUGH DELIVERING TEMPORARY INSTITUTIONAL CARE FOR (BUT NOT EXCLUSIVELY FOR) PEOPLE WHO SUFFER FROM HUNTINGTONÆS DISEASE OR JUVENILE HUNTINGTONÆS DISEASE (PEOPLE SUFFERING FROM OTHER ILLNESSES THAT REQUIRE FULL TIME CARE CAN BE CATERED FOR IF SPACE IS AVAILABLE); AND(2) TO PROVIDE SAFE AN ENJOYABLE MEETING PLACES ACROSS ENGLAND WHERE ANYONE IMPACTED BY HUNTINGTONÆS DISEASE OR JUVENILE HUNTINGTONÆS DISEASE (SUFFERERS, FAMILIES, FRIENDS AND CARERS) CAN GO TO SUPPORT EACH OTHER AND GET PROFESSIONAL ADVICE THROUGH IN PARTICULARLY BUT NOT EXCLUSIVELY DROP IN SESSIONS, COFFEE MORNINGS AND OTHER SOCIAL EVENTS.

09 Official extract

Charity Other Names

Charity Name Id: 630083
Charity Name Type: Working name
Charity Name: HD LIVIN’

10 Official extract

Charity Policy

Policy Name: Complaints policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Engaging external speakers at charity events policy and procedures