CURE MYOTONIC DYSTROPHY UK CHARITY (CDM) — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 9 September 2020
Removed: Not supplied
Financial period: 6 April 2024 – 5 April 2025
Latest income: £71,611
Latest expenditure: £66,853
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: Riverside View, Station Road, Whitton, SCUNTHORPE, DN15 9LR

Website recorded by the regulator: www.curedm.co.uk (displayed as text)

02 Activities

What the charity does

Preserve and protect good health among, and relieve the needs of, people living with Myotonic Dystrophy, their families and carers, in particular but not exclusively by: (a) providing information, help and support; (b) making financial donations to support research into Myotonic Dystrophy;(c) raising awareness of Myotonic Dystrophy within the general public, medical and scientific community

03 Official extract

Charity Annual Return History

Fin Period Start Date: 6 April 2024
Fin Period End Date: 5 April 2025
Ar Cycle Reference: AR25
Reporting Due Date: 5 February 2026
Date Annual Return Received: 1 February 2026
Date Accounts Received: 1 February 2026
Total Gross Income: £71,611
Total Gross Expenditure: £66,853

Fin Period Start Date: 6 April 2023
Fin Period End Date: 5 April 2024
Ar Cycle Reference: AR24
Reporting Due Date: 5 February 2025
Date Annual Return Received: 7 August 2024
Date Accounts Received: 7 August 2024
Total Gross Income: £64,030
Total Gross Expenditure: £78,232

Fin Period Start Date: 6 April 2022
Fin Period End Date: 5 April 2023
Ar Cycle Reference: AR23
Reporting Due Date: 5 February 2024
Date Annual Return Received: 6 October 2023
Date Accounts Received: 6 October 2023
Total Gross Income: £52,013
Total Gross Expenditure: £53,661

Fin Period Start Date: 6 April 2021
Fin Period End Date: 5 April 2022
Ar Cycle Reference: AR22
Reporting Due Date: 5 February 2023
Date Annual Return Received: 6 July 2022
Date Accounts Received: 6 July 2022
Total Gross Income: £37,137
Total Gross Expenditure: £17,505

Fin Period Start Date: 9 September 2020
Fin Period End Date: 5 April 2021
Ar Cycle Reference: AR21
Reporting Due Date: 5 February 2022
Date Annual Return Received: 25 January 2022
Date Accounts Received: 25 January 2022
Total Gross Income: £19,596
Total Gross Expenditure: £2,845

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 6 April 2024
Fin Period End Date: 5 April 2025
Ar Due Date: 5 February 2026
Ar Received Date: 1 February 2026
Total Gross Income: £71,611
Total Gross Expenditure: £66,853
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: Yes
Trustee Also Director Of Subsidiary: Yes
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 6

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 6 April 2023
Fin Period End Date: 5 April 2024
Ar Due Date: 5 February 2025
Ar Received Date: 7 August 2024
Total Gross Income: £64,030
Total Gross Expenditure: £78,232
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: Yes
Trustee Also Director Of Subsidiary: Yes
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 2

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 6 April 2022
Fin Period End Date: 5 April 2023
Ar Due Date: 5 February 2024
Ar Received Date: 6 October 2023
Total Gross Income: £52,013
Total Gross Expenditure: £53,661
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: Yes
Trustee Also Director Of Subsidiary: Yes
Does Trustee Receive Any Benefit: Yes
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: Yes
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 2

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 6 April 2021
Fin Period End Date: 5 April 2022
Ar Due Date: 5 February 2023
Ar Received Date: 6 July 2022
Total Gross Income: £37,137
Total Gross Expenditure: £17,505
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: Yes
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: Yes
Trustee Also Director Of Subsidiary: Yes
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 2

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 5
Ar Cycle Reference: AR21
Fin Period Start Date: 9 September 2020
Fin Period End Date: 5 April 2021
Ar Due Date: 5 February 2022
Ar Received Date: 25 January 2022
Total Gross Income: £19,596
Total Gross Expenditure: £2,845
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: Yes
Trustee Also Director Of Subsidiary: Yes
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 2

05 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 310
Classification Type: How
Classification Description: Other Charitable Activities

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 301
Classification Type: How
Classification Description: Makes Grants To Individuals

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 205
Classification Type: Who
Classification Description: Other Charities Or Voluntary Bodies

Classification Code: 117
Classification Type: What
Classification Description: Other Charitable Purposes

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 102
Classification Type: What
Classification Description: Education/training

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 302
Classification Type: How
Classification Description: Makes Grants To Organisations

Classification Code: 202
Classification Type: Who
Classification Description: Elderly/old People

07 Official extract

Charity Event History

Charity Name: CURE MYOTONIC DYSTROPHY UK CHARITY (CDM)
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2020-09-09T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 09 Sep 2020
Charitable Objects: THE OBJECTS OF THE CIO ARE: TO PRESERVE AND PROTECT GOOD HEALTH AMONG, AND RELIEVE THE NEEDS OF, PEOPLE LIVING WITH MYOTONIC DYSTROPHY, THEIR FAMILIES AND CARERS, IN PARTICULAR BUT NOT EXCLUSIVELY BY: (A) PROVIDING INFORMATION, HELP AND SUPPORT TO SUCH PEOPLE AND THEIR FAMILIES AND CARERS;(B) MAKING FINANCIAL DONATIONS TO SUPPORT ORGANISATIONS AND INDIVIDUALS CARRYING OUT RESEARCH INTO MYOTONIC DYSTROPHY, THE USEFUL RESULTS OF WHICH WILL BE PUBLISHED FOR PUBLIC BENEFIT; AND(C) RAISING AWARENESS OF MYOTONIC DYSTROPHY WITHIN THE GENERAL PUBLIC, MEDICAL AND SCIENTIFIC COMMUNITIES.

09 Official extract

Charity Other Names

Charity Name Id: 632286
Charity Name Type: Working name
Charity Name: CURE DM

10 Official extract

Charity Policy

Policy Name: Safeguarding policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Financial reserves policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Risk management

Policy Name: Bullying and harassment policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Volunteer management

Policy Name: Conflicting interests

Policy Name: Complaints policy and procedures

Policy Name: Social media policy and procedures