CCEW Charity Commission profile

NICOLAIDES BARAITSER SYNDROME (NCBRS) WORLDWIDE FOUNDATION

Registered charity 1190194 · organisation 5162706

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
30 June 2020
Removed
Not supplied
Financial period
1 April 2025 – 31 March 2026
Latest income
£20,002
Latest expenditure
£18,142
Gift Aid
No
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: NCBRS Worldwide Foundation, 124 City Road, LONDON, EC1V 2NX

Website recorded by the regulator: www.ncbrs.com (displayed as text)

02 Activities

What the charity does

SUPPORT, EDUCATION, PRACTICAL ADVICE, ANNUAL CONFERENCES, WELCOME PACKAGES, SMALL GRANTS

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2025
Fin Period End Date
31 March 2026
Ar Cycle Reference
AR26
Reporting Due Date
31 January 2027
Date Annual Return Received
29 July 2026
Date Accounts Received
29 July 2026
Total Gross Income
£20,002
Total Gross Expenditure
£18,142
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
27 September 2025
Date Accounts Received
27 September 2025
Total Gross Income
£17,067
Total Gross Expenditure
£12,646
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
12 December 2024
Date Accounts Received
18 October 2024
Total Gross Income
£8,000
Total Gross Expenditure
£1,672
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
2 February 2024
Date Accounts Received
19 October 2023
Total Gross Income
£6,454
Total Gross Expenditure
£1,149
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 January 2023
Date Annual Return Received
16 October 2022
Date Accounts Received
16 October 2022
Total Gross Income
£8,686
Total Gross Expenditure
£4,601

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR26
Fin Period Start Date
1 April 2025
Fin Period End Date
31 March 2026
Ar Due Date
31 January 2027
Ar Received Date
29 July 2026
Total Gross Income
£20,002
Total Gross Expenditure
£18,142
Grant Making Is Main Activity
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
9
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
27 September 2025
Total Gross Income
£17,067
Total Gross Expenditure
£12,646
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
2
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
12 December 2024
Total Gross Income
£8,000
Total Gross Expenditure
£1,672
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
2
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR23
Fin Period Start Date
1 April 2022
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
2 February 2024
Total Gross Income
£6,454
Total Gross Expenditure
£1,149
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
2
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR22
Fin Period Start Date
1 April 2021
Fin Period End Date
31 March 2022
Ar Due Date
31 January 2023
Ar Received Date
16 October 2022
Total Gross Income
£8,686
Total Gross Expenditure
£4,601
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
1

05 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
United States
Parent Geographic Area Type
Continent
Parent Geographic Area Description
North America
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Spain
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Canada
Parent Geographic Area Type
Continent
Parent Geographic Area Description
North America
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Isle Of Man
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Italy
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
France
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Australia
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Oceania
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
303
Classification Type
How
Classification Description
Provides Other Finance
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
101
Classification Type
What
Classification Description
General Charitable Purposes
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
206
Classification Type
Who
Classification Description
Other Defined Groups
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
306
Classification Type
How
Classification Description
Provides Services

07 Official extract

Charity Event History

Charity Name
NICOLAIDES BARAITSER SYNDROME (NCBRS) WORLDWIDE FOUNDATION
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2020-06-30T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - FOUNDATION Registered 30 Jun 2020
Charitable Objects
THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH OF PERSONS SUFFERING FROM NICOLAIDES BARAITSER SYNDROME WORLDWIDE THROUGH THE PROVISION OF SUPPORT, EDUCATION, PRACTICAL ADVICE, ANNUAL CONFERENCES, WELCOME PACKAGES, SMALL GRANTS AND THE FUNDING OF RESEARCH STUDIES INTO NICOLAIDES BARAITSER SYNDROME, THE USEFUL RESULTS OF WHICH WILL BE PUBLISHED FOR THE PUBLIC BENE?T.

09 Official extract

Charity Other Names

Charity Name Id
630598
Charity Name Type
Working name
Charity Name
NCBRS PARENT SUPPORT
Charity Name Id
630597
Charity Name Type
Working name
Charity Name
NCBRS WORLDWIDE FOUNDATION

10 Official extract

Charity Policy

Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Safeguarding policy and procedures