ALTERNATING HEMIPLEGIA OF CHILDHOOD UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 8 December 2020
Removed: Not supplied
Financial period: 1 May 2024 – 31 May 2025
Latest income: £534
Latest expenditure: £13,032
Gift Aid: No
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: 82A Sutherland Avenue, Biggin Hill, WESTERHAM, Kent, TN16 3HG

Website recorded by the regulator: ahcuk.org (displayed as text)

02 Activities

What the charity does

To preserve and protect the physical and mental health of families and individuals affected by Alternating Hemiplegia of Childhood (AHC) and associated conditions by:- (a) Providing support and creating and maintaining communication channels between those persons who act as family carers and supporters so as to disseminate knowledge, experience and thereby promote both the health and quality o

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 May 2024
Fin Period End Date: 31 May 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 March 2026
Date Annual Return Received: 30 March 2026
Date Accounts Received: 30 March 2026
Total Gross Income: £534
Total Gross Expenditure: £13,032

Fin Period Start Date: 1 May 2023
Fin Period End Date: 30 April 2024
Ar Cycle Reference: AR24
Reporting Due Date: 28 February 2025
Date Annual Return Received: 28 February 2025
Date Accounts Received: 28 February 2025
Total Gross Income: £8,732
Total Gross Expenditure: £11,486

Fin Period Start Date: 6 April 2022
Fin Period End Date: 30 April 2023
Ar Cycle Reference: AR23
Reporting Due Date: 29 February 2024
Date Annual Return Received: 1 March 2024
Date Accounts Received: 1 March 2024
Total Gross Income: £123,140
Total Gross Expenditure: £45,511

Fin Period Start Date: 8 December 2020
Fin Period End Date: 5 April 2022
Ar Cycle Reference: AR22
Reporting Due Date: 5 February 2023
Date Annual Return Received: 26 March 2023
Date Accounts Received: 16 April 2023
Total Gross Income: £0
Total Gross Expenditure: £0

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 May 2024
Fin Period End Date: 31 May 2025
Ar Due Date: 31 March 2026
Ar Received Date: 30 March 2026
Total Gross Income: £534
Total Gross Expenditure: £13,032
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 1

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 May 2023
Fin Period End Date: 30 April 2024
Ar Due Date: 28 February 2025
Ar Received Date: 28 February 2025
Total Gross Income: £8,732
Total Gross Expenditure: £11,486
Grant Making Is Main Activity: Yes
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 6 April 2022
Fin Period End Date: 30 April 2023
Ar Due Date: 29 February 2024
Ar Received Date: 1 March 2024
Total Gross Income: £123,140
Total Gross Expenditure: £45,511
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 8

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 8 December 2020
Fin Period End Date: 5 April 2022
Ar Due Date: 5 February 2023
Ar Received Date: 26 March 2023
Total Gross Income: £0
Total Gross Expenditure: £0
Charity Raises Funds From Public: No
Grant Making Is Main Activity: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 0

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 302
Classification Type: How
Classification Description: Makes Grants To Organisations

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 202
Classification Type: Who
Classification Description: Elderly/old People

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

Classification Code: 102
Classification Type: What
Classification Description: Education/training

07 Official extract

Charity Event History

Charity Name: ALTERNATING HEMIPLEGIA OF CHILDHOOD UK
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2020-12-08T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 08 Dec 2020
Charitable Objects: THE OBJECTS OF THE CIO ARE:TO PRESERVE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF FAMILIES AND INDIVIDUALS AFFECTED BY ALTERNATING HEMIPLEGIA OF CHILDHOOD (AHC) AND ASSOCIATED CONDITIONS BY:-(A) PROVIDING SUPPORT AND CREATING AND MAINTAINING COMMUNICATION CHANNELS BETWEEN THOSE PERSONS WHO ACT AS FAMILY CARERS AND SUPPORTERS SO AS TO DISSEMINATE KNOWLEDGE, EXPERIENCE AND THEREBY PROMOTE BOTH THE HEALTH AND QUALITY OF LIFE OF AHC PATIENTS AND THEIR FAMILIES;(B) RAISING AWARENESS AND EDUCATION OF THE MEDICAL PROFESSION AND OTHER RELEVANT PROFESSIONALS (INCLUDING BUT NOT LIMITED TO PSYCHOLOGISTS, CARE WORKERS, SCHOOL TEACHERS, THERAPISTS AND SUCHLIKE), TOGETHER WITH THE GENERAL PUBLIC, ON THE NATURE OF AHC (AND ASSOCIATED CONDITIONS) AND ITS IMPLICATION FOR FAMILIES;(C) ACTING AS AN ADVOCATE WITH PUBLIC SERVANTS AND ORGANISATIONS WITHIN THE UK (OTHER THAN THOSE INCLUDED IN OBJECT 2) SO AS TO BECOME THE VOICE OF AHC FAMILIES;(D) PROMOTING, ENCOURAGING AND FACILITATING RESEARCH INTO THE DIAGNOSIS, EFFECTIVE MANAGEMENT AND THERAPIES, AND POTENTIAL CURATIVE PROCEDURES; AND(E) ESTABLISHING AND MAINTAINING CLOSE LINKS WITH COUNTERPART ORGANISATIONS, RESEARCHERS AND SUCH LIKE THAT ARE BASED OUTSIDE THE UNITED KINGDOM, AND TO DISSEMINATE THE GROWING BODY OF KNOWLEDGE INTO THIS RARE CONDITION AMONGST INTERESTED PERSONS AND PARTIES WITHIN THE UK

09 Official extract

Charity Other Names

Charity Name Id: 636096
Charity Name Type: Working name
Charity Name: AHC UK

10 Official extract

Charity Policy

Policy Name: Financial reserves policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Trustee expenses policy and procedures