CCEW Charity Commission profile

ACE SMA

Registered charity 1191179 · organisation 5165004

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
7 September 2020
Removed
Not supplied
Financial period
1 August 2024 – 31 July 2025
Latest income
£77,741
Latest expenditure
£95,071
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: GLEBE COTTAGE, SUTTON MANDEVILLE, SALISBURY, SP3 5NA

02 Activities

What the charity does

Making grants to fund research for the improvement to the lives of children living with Spinal Muscular Atrophy.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 August 2024
Fin Period End Date
31 July 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 May 2026
Date Annual Return Received
14 January 2026
Date Accounts Received
14 January 2026
Total Gross Income
£77,741
Total Gross Expenditure
£95,071
Fin Period Start Date
1 August 2023
Fin Period End Date
31 July 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 May 2025
Date Annual Return Received
9 June 2025
Date Accounts Received
9 June 2025
Total Gross Income
£14,991
Total Gross Expenditure
£152,972
Fin Period Start Date
1 August 2022
Fin Period End Date
31 July 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 May 2024
Date Annual Return Received
3 October 2024
Date Accounts Received
3 October 2024
Total Gross Income
£29,355
Total Gross Expenditure
£2,688
Fin Period Start Date
1 August 2021
Fin Period End Date
31 July 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 May 2023
Date Annual Return Received
27 March 2024
Date Accounts Received
27 March 2024
Total Gross Income
£173,208
Total Gross Expenditure
£35,819
Fin Period Start Date
7 September 2020
Fin Period End Date
31 July 2021
Ar Cycle Reference
AR21
Reporting Due Date
31 May 2022
Date Annual Return Received
8 January 2024
Date Accounts Received
8 January 2024
Total Gross Income
£18,235
Total Gross Expenditure
£7,108

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 August 2024
Fin Period End Date
31 July 2025
Ar Due Date
31 May 2026
Ar Received Date
14 January 2026
Total Gross Income
£77,741
Total Gross Expenditure
£95,071
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 August 2023
Fin Period End Date
31 July 2024
Ar Due Date
31 May 2025
Ar Received Date
9 June 2025
Total Gross Income
£14,991
Total Gross Expenditure
£152,972
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
6
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 August 2022
Fin Period End Date
31 July 2023
Ar Due Date
31 May 2024
Ar Received Date
3 October 2024
Total Gross Income
£29,355
Total Gross Expenditure
£2,688
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
1 August 2021
Fin Period End Date
31 July 2022
Ar Due Date
31 May 2023
Ar Received Date
27 March 2024
Total Gross Income
£173,208
Total Gross Expenditure
£35,819
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
0
Latest Fin Period Submitted Ind
No
Fin Period Order Number
5
Ar Cycle Reference
AR21
Fin Period Start Date
7 September 2020
Fin Period End Date
31 July 2021
Ar Due Date
31 May 2022
Ar Received Date
8 January 2024
Total Gross Income
£18,235
Total Gross Expenditure
£7,108
Charity Raises Funds From Public
Yes
Charity Professional Fundraiser
No
Charity Commercial Participator
No
Grant Making Is Main Activity
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
0

05 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research

07 Official extract

Charity Event History

Charity Name
ACE SMA
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2020-09-07T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - FOUNDATION Registered 07 Sep 2020
Charitable Objects
THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH, IN PARTICULAR BUT NOT EXCLUSIVELY BY:(A) THE RELIEF AND TREATMENT OF PEOPLE WITH SPINAL MUSCULAR ATROPHY;(B) THE PROMOTION AND SUPPORT OF RESEARCH INTO THE CAUSE, TREATMENT AND POSSIBLE PREVENTION OF SPINAL MUSCULAR ATROPHY AND THE PUBLICATION AND DISSEMINATION OF THAT RESEARCH FOR THE PUBLIC BENEFIT; AND(C) THE ADVANCEMENT OF THE EDUCATION OF THE GENERAL PUBLIC IN SPINAL MUSCULAR ATROPHY.

09 Official extract

Charity Policy

Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Financial reserves policy and procedures