IMMUNODEFICIENCY UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 20 January 2021
Removed: Not supplied
Financial period: 2 April 2024 – 1 April 2025
Latest income: £115,552
Latest expenditure: £114,253
Gift Aid: No
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: Immunodeficiency UK, C/O Tudor John Accountants, Nightingale House, 46-48 East Street, Epsom, KT17 1HQ

Website recorded by the regulator: www.immunodeficiencyuk.org (displayed as text)

02 Activities

What the charity does

Advancement of health and the relief of people affected by primary and secondary immunodeficiency and their families by providing assistance, advice or guidance in relation to managing their condition, treatment and quality of life; promoting awareness and understanding of these conditions and to encourage and support research into causes, treatments and prevention.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 2 April 2024
Fin Period End Date: 1 April 2025
Ar Cycle Reference: AR25
Reporting Due Date: 1 February 2026
Date Annual Return Received: 26 January 2026
Date Accounts Received: 26 January 2026
Total Gross Income: £115,552
Total Gross Expenditure: £114,253

Fin Period Start Date: 2 April 2023
Fin Period End Date: 1 April 2024
Ar Cycle Reference: AR24
Reporting Due Date: 1 February 2025
Date Annual Return Received: 23 January 2025
Date Accounts Received: 23 January 2025
Total Gross Income: £89,709
Total Gross Expenditure: £112,809

Fin Period Start Date: 2 April 2022
Fin Period End Date: 1 April 2023
Ar Cycle Reference: AR23
Reporting Due Date: 1 February 2024
Date Annual Return Received: 31 January 2024
Date Accounts Received: 31 January 2024
Total Gross Income: £131,269
Total Gross Expenditure: £116,426

Fin Period Start Date: 20 January 2021
Fin Period End Date: 1 April 2022
Ar Cycle Reference: AR22
Reporting Due Date: 1 February 2023
Date Annual Return Received: 27 January 2023
Date Accounts Received: 27 January 2023
Total Gross Income: £100,451
Total Gross Expenditure: £122,240

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 2 April 2024
Fin Period End Date: 1 April 2025
Ar Due Date: 1 February 2026
Ar Received Date: 26 January 2026
Total Gross Income: £115,552
Total Gross Expenditure: £114,253
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Volunteers: 14

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 2 April 2023
Fin Period End Date: 1 April 2024
Ar Due Date: 1 February 2025
Ar Received Date: 23 January 2025
Total Gross Income: £89,709
Total Gross Expenditure: £112,809
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: Yes
Count Salary Band 60001 70000: 1
Count Volunteers: 14

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 2 April 2022
Fin Period End Date: 1 April 2023
Ar Due Date: 1 February 2024
Ar Received Date: 31 January 2024
Total Gross Income: £131,269
Total Gross Expenditure: £116,426
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 10

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 4
Ar Cycle Reference: AR22
Fin Period Start Date: 20 January 2021
Fin Period End Date: 1 April 2022
Ar Due Date: 1 February 2023
Ar Received Date: 27 January 2023
Total Gross Income: £100,451
Total Gross Expenditure: £122,240
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Grant Making Is Main Activity: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 14

05 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Northern Ireland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 201
Classification Type: Who
Classification Description: Children/young People

Classification Code: 202
Classification Type: Who
Classification Description: Elderly/old People

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 309
Classification Type: How
Classification Description: Acts As An Umbrella Or Resource Body

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 301
Classification Type: How
Classification Description: Makes Grants To Individuals

Classification Code: 102
Classification Type: What
Classification Description: Education/training

Classification Code: 104
Classification Type: What
Classification Description: Disability

Classification Code: 302
Classification Type: How
Classification Description: Makes Grants To Organisations

Classification Code: 306
Classification Type: How
Classification Description: Provides Services

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

07 Official extract

Charity Event History

Charity Name: IMMUNODEFICIENCY UK
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2021-01-20T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 20 Jan 2021
Charitable Objects: THE OBJECTS OF THE CIO ARE, FOR THE PUBLIC BENEFIT: (1) THE ADVANCEMENT OF HEALTH AND THE RELIEF OF PEOPLE AFFECTED BY PRIMARY AND SECONDARY IMMUNODEFICIENCY AND THEIR FAMILIES AND PEOPLE RESPONSIBLE FOR THEIR WELFARE, INCLUDING IN PARTICULAR WITHOUT LIMITATION: (A) BY PROVIDING ASSISTANCE, ADVICE OR GUIDANCE IN RELATION TO MANAGING THEIR CONDITION AND IMPROVING THE DIAGNOSIS OF THESE CONDITIONS, THEIR TREATMENT AND THE QUALITY OF LIFE OF THOSE AFFECTED;(B) PROMOTING AWARENESS AND UNDERSTANDING OF PRIMARY AND SECONDARY IMMUNODEFICIENCY WITHIN THE GENERAL PUBLIC AND MEDICAL PROFESSION IN ORDER TO BETTER UNDERSTAND THESE CONDITIONS AND THEIR IMPACT; AND(C) PROVIDING A HELPLINE SERVICE, EVENTS AND PRACTICAL HELP AND ADVICE.(2) TO ENCOURAGE AND SUPPORT RESEARCH INTO THE CAUSES, TREATMENTS, PREVENTION AND CURES FOR PRIMARY AND SECONDARY IMMUNODEFICIENCY, AND TO PUBLISH THE USEFUL RESULTS OF THAT RESEARCH.

09 Official extract

Charity Other Names

Charity Name Id: 638234
Charity Name Type: Working name
Charity Name: PRIMARY IMMUNODEFICIENCY UK

10 Official extract

Charity Policy

Policy Name: Serious incident reporting policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Complaints handling

Policy Name: Social media policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Volunteer management

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Safeguarding policy and procedures

Policy Name: Conflicting interests

Policy Name: Trustee expenses policy and procedures

Policy Name: Financial reserves policy and procedures