FOWLER'S SYNDROME UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 3 December 2021
Removed: Not supplied
Financial period: 1 January 2024 – 31 December 2024
Latest income: £98,652
Latest expenditure: £63,925
Gift Aid: No
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: Fowler's Syndrome UK (FSUK), 42 York Street, TWICKENHAM, London Borough Of Richmond, Upon Thames, TW1 3BW

Website recorded by the regulator: www.fowlerssyndrome.co.uk (displayed as text)

02 Activities

What the charity does

THE ADVANCEMENT OF EDUCATION AMONGST THE MEDICAL PROFESSION AND THE PUBLIC ON THE SYMPTOMS, CAUSES AND TREATMENT OF FOWLERS SYNDROME LIVING IN ENGLAND AND WALES BY OFFERING SUPPORT TO ANYONE CURRENTLY LIVING WITH THIS CONDITION, IN PARTICULAR THROUGH RAISING AWARENESS AND MEDICAL RESEARCH INTO THE CAUSES, COMPLICATIONS, TREATMENTS, MEDICATIONS AND RESEARCH FOR THIS CONDITION.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 October 2025
Date Annual Return Received: 24 October 2025
Date Accounts Received: 24 October 2025
Total Gross Income: £98,652
Total Gross Expenditure: £63,925

Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 October 2024
Date Annual Return Received: 25 October 2024
Date Accounts Received: 25 October 2024
Total Gross Income: £29,820
Total Gross Expenditure: £28,074

Fin Period Start Date: 3 December 2021
Fin Period End Date: 31 December 2022
Ar Cycle Reference: AR22
Reporting Due Date: 31 October 2023
Date Annual Return Received: 27 October 2023
Date Accounts Received: 27 October 2023
Total Gross Income: £40,724
Total Gross Expenditure: £897

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR24
Fin Period Start Date: 1 January 2024
Fin Period End Date: 31 December 2024
Ar Due Date: 31 October 2025
Ar Received Date: 24 October 2025
Total Gross Income: £98,652
Total Gross Expenditure: £63,925
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: Yes
Employees Salary Over 60k: No
Count Volunteers: 30

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR23
Fin Period Start Date: 1 January 2023
Fin Period End Date: 31 December 2023
Ar Due Date: 31 October 2024
Ar Received Date: 25 October 2024
Total Gross Income: £29,820
Total Gross Expenditure: £28,074
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: Yes
Employees Salary Over 60k: No
Count Volunteers: 30

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR22
Fin Period Start Date: 3 December 2021
Fin Period End Date: 31 December 2022
Ar Due Date: 31 October 2023
Ar Received Date: 27 October 2023
Total Gross Income: £40,724
Total Gross Expenditure: £897
Charity Raises Funds From Public: Yes
Charity Professional Fundraiser: No
Charity Commercial Participator: No
Charity Receives Govt Funding Contracts: No
Charity Receives Govt Funding Grants: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Resigned Employment: No
Employees Salary Over 60k: No
Count Volunteers: 15

05 Official extract

Charity Area Of Operation

Geographic Area Type: Country
Geographic Area Description: Scotland
Parent Geographic Area Type: Continent
Parent Geographic Area Description: Europe
Welsh Ind: No

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 206
Classification Type: Who
Classification Description: Other Defined Groups

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 203
Classification Type: Who
Classification Description: People With Disabilities

Classification Code: 102
Classification Type: What
Classification Description: Education/training

07 Official extract

Charity Event History

Charity Name: FOWLER'S SYNDROME UK
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2021-12-03T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 03 Dec 2021
Charitable Objects: THE OBJECTS ARE:THE ADVANCEMENT OF EDUCATION AMONGST THE MEDICAL PROFESSION AND THE PUBLIC ON THE SYMPTOMS, CAUSES AND TREATMENT OF FOWLER’S SYNDROME LIVING IN ENGLAND AND WALES BY OFFERING SUPPORT TO ANYONE CURRENTLY LIVING WITH THIS CONDITION, IN PARTICULAR THROUGH RAISING AWARENESS AND MEDICAL RESEARCH INTO THE CAUSES, COMPLICATIONS, TREATMENTS, MEDICATIONS AND RESEARCH FOR THIS CONDITION.

09 Official extract

Charity Policy

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Engaging external speakers at charity events policy and procedures

Policy Name: Volunteer management

Policy Name: Safeguarding policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Paying staff

Policy Name: Financial reserves policy and procedures

Policy Name: Complaints handling

Policy Name: Bullying and harassment policy and procedures