CCEW Charity Commission profile

A RARE CAUSE

Registered charity 1198461 · organisation 5187622

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
31 March 2022
Removed
Not supplied
Financial period
1 January 2024 – 31 December 2024
Latest income
£120
Latest expenditure
£0
Gift Aid
No
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: 6 The Green, Burley In Wharfedale, ILKLEY, West Yorkshire, LS29 7FF

Website recorded by the regulator: https://ararecause.org/ (displayed as text)

02 Activities

What the charity does

The objects of A Rare Cause (ARC) are the advancement of health or the saving of lives in relation to the global, rare disease community in particular by providing information and resources to raise knowledge and increase awareness.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 October 2025
Date Annual Return Received
26 October 2025
Date Accounts Received
26 October 2025
Total Gross Income
£120
Total Gross Expenditure
£0
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 October 2024
Date Annual Return Received
27 September 2024
Date Accounts Received
27 September 2024
Total Gross Income
£0
Total Gross Expenditure
£0
Fin Period Start Date
31 March 2022
Fin Period End Date
31 December 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 October 2023
Date Annual Return Received
15 February 2023
Date Accounts Received
14 June 2024
Total Gross Income
£0
Total Gross Expenditure
£0

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR24
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Due Date
31 October 2025
Ar Received Date
26 October 2025
Total Gross Income
£120
Total Gross Expenditure
£0
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
Yes
Count Volunteers
2
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR23
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Due Date
31 October 2024
Ar Received Date
27 September 2024
Total Gross Income
£0
Total Gross Expenditure
£0
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
2
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR22
Fin Period Start Date
31 March 2022
Fin Period End Date
31 December 2022
Ar Due Date
31 October 2023
Ar Received Date
15 February 2023
Total Gross Income
£0
Total Gross Expenditure
£0
Charity Raises Funds From Public
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
4

05 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
South Africa
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Africa
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Botswana
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Africa
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Rwanda
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Africa
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
United States
Parent Geographic Area Type
Continent
Parent Geographic Area Description
North America
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
205
Classification Type
Who
Classification Description
Other Charities Or Voluntary Bodies
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
306
Classification Type
How
Classification Description
Provides Services
Classification Code
206
Classification Type
Who
Classification Description
Other Defined Groups
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
202
Classification Type
Who
Classification Description
Elderly/old People

07 Official extract

Charity Event History

Charity Name
A RARE CAUSE
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2022-03-31T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - FOUNDATION Registered 31 Mar 2022
Charitable Objects
THE OBJECTS OF THE CIO ARE THE ADVANCEMENT OF HEALTH OR THE SAVING OF LIVES IN RELATION TO THE GLOBAL RARE DISEASE COMMUNITY IN PARTICULAR BY PROVIDING INFORMATION AND RESOURCES TO RAISE KNOWLEDGE AND INCREASE AWARENESS.

09 Official extract

Charity Other Names

Charity Name Id
646693
Charity Name Type
Working name
Charity Name
ARC

10 Official extract

Charity Policy

Policy Name
Internal charity financial controls policy and procedures
Policy Name
Complaints handling
Policy Name
Complaints policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Conflicting interests
Policy Name
Safeguarding policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Internal risk management policy and procedures