CCEW Charity Commission profile

INTRACTABLE EPILEPSY

Registered charity 1199192 · organisation 5189640

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Charitable company
Registered
6 June 2022
Removed
Not supplied
Company number supplied
13019024
Financial period
1 April 2024 – 31 March 2025
Latest income
£1,537
Latest expenditure
£1,994
Gift Aid
No
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: Fir Tree Barn, Preston Road, Crossmoor, PRESTON, PR4 3XB

Website recorded by the regulator: https://intractable.org.uk/ (displayed as text)

02 Activities

What the charity does

The charity funds prescription costs of medicinal cannabis for those with Intractable Epilepsy when prescribed by a specialist clinician on the GMC register and in line with NHS guidance. The full criteria to qualify for funding are set out in the charity grants policy. Prescription costs will be met strictly in line with our charitable objects.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
28 September 2026
Total Gross Income
£1,537
Total Gross Expenditure
£1,994
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
19 August 2025
Total Gross Income
£15,497
Total Gross Expenditure
£28,157
Fin Period Start Date
1 December 2021
Fin Period End Date
31 March 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 January 2024
Date Annual Return Received
7 April 2025
Date Accounts Received
7 April 2025
Total Gross Income
£27,481
Total Gross Expenditure
£14,405

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 April 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
19 August 2025
Total Gross Income
£15,497
Total Gross Expenditure
£28,157
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
10
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 December 2021
Fin Period End Date
31 March 2023
Ar Due Date
31 January 2024
Ar Received Date
7 April 2025
Total Gross Income
£27,481
Total Gross Expenditure
£14,405
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
10

05 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
309
Classification Type
How
Classification Description
Acts As An Umbrella Or Resource Body
Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
104
Classification Type
What
Classification Description
Disability

07 Official extract

Charity Event History

Charity Name
INTRACTABLE EPILEPSY
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2022-06-06T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
MEMORANDUM AND ARTICLES INCORPORATED 15 NOV 2020AS AMENDED BY SPECIAL RESOLUTION(S) DATED 14 DEC 2020AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 27 MAY 2022 as amended on 27 Jul 2022
Charitable Objects
2.1 THE OBJECTS OF THE CHARITY ARE SPECIFICALLY RESTRICTED TO THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH, IN PARTICULAR FOR CHILDREN WITH INTRACTABLE EPILEPSY, BY:A. PROVIDING FINANCIAL SUPPORT FOR THE COST OF PRESCRIPTIONS FOR MEDICAL GRADE CANNABIS PRESCRIBED BY A NAMED SPECIALIST CLINICIAN ON THE SPECIALIST REGISTER OF THE GENERAL MEDICAL COUNCIL AND THAT MEDICINAL GRADE CANNABIS HAS BEEN SO PRESCRIBED IN ACCORDANCE WITH UK GOVERNMENT LEGISLATION, REGULATIONS, AND NHS GUIDELINES, AS MAY VARY FROM TIME TO TIME, AUTHORISING SUCH A PRESCRIPTION;B. PROVIDING GRANTS OR BURSARIES TO ENABLE SUFFERERS OF THE CONDITION TO ACCESS MEDICAL CARE AND TREATMENT;A. RAISING AWARENESS OF THE CONDITION KNOWN AS INTRACTABLE EPILEPSY;B. SUPPORTING CHILDREN AND THEIR FAMILIES WHO ARE EXPERIENCING THIS CONDITION;C. DISSEMINATING INFORMATION ABOUT THE AVAILABLE TREATMENTS;D. PROVIDING OR ASSISTING IN THE PROVISION OF SUPPORT AND INFORMATION SERVICES;E. SUCH OTHER SUITABLE MEANS AS THE TRUSTEES IN THEIR DISCRETION SEE FIT SUCH AS WHICH FUNDING MEDICAL RESEARCH INTO EPILEPSY WHERE THE RESULTS OF THAT WILL BE DISSEMINATED FOR PUBLIC BENEFIT.

09 Official extract

Charity Other Names

Charity Name Id
656088
Charity Name Type
Previous name
Charity Name
INTRACTABLE EPILEPSY LTD
Charity Name Id
652061
Charity Name Type
Previous name
Charity Name
INTRACTABLE EPILEPSY

10 Official extract

Charity Policy

Policy Name
Risk management
Policy Name
Complaints handling
Policy Name
Conflicting interests