GORLIN SYNDROME GROUP — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 22 December 2021
Removed: Not supplied
Financial period: 1 April 2024 – 31 March 2025
Latest income: £6,739
Latest expenditure: £10,270
Gift Aid: Yes
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: 43 Tor View, Tregadillett, LAUNCESTON, Cornwall, PL15 7HB

Website recorded by the regulator: https://gorlingroup.org/ (displayed as text)

02 Activities

What the charity does

1. The relief of sickness and the protection and preservation of the health of persons affected by Gorlin syndrome and any related condition, their families and carers2. The advancement of the education of the medical professional and the general public3. The promotion of research into the causes, effects, treatment and management of Gorlin syndrome and to disseminate any useful results

03 Official extract

Charity Annual Return History

Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Cycle Reference: AR25
Reporting Due Date: 31 January 2026
Date Annual Return Received: 30 January 2026
Date Accounts Received: 30 January 2026
Total Gross Income: £6,739
Total Gross Expenditure: £10,270

Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Cycle Reference: AR24
Reporting Due Date: 31 January 2025
Date Annual Return Received: 30 January 2025
Date Accounts Received: 30 January 2025
Total Gross Income: £7,455
Total Gross Expenditure: £10,758

Fin Period Start Date: 22 December 2021
Fin Period End Date: 31 March 2023
Ar Cycle Reference: AR23
Reporting Due Date: 31 January 2024
Date Annual Return Received: 14 May 2024
Date Accounts Received: 14 May 2024
Total Gross Income: £16,079
Total Gross Expenditure: £12,565

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR25
Fin Period Start Date: 1 April 2024
Fin Period End Date: 31 March 2025
Ar Due Date: 31 January 2026
Ar Received Date: 30 January 2026
Total Gross Income: £6,739
Total Gross Expenditure: £10,270
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 0

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR24
Fin Period Start Date: 1 April 2023
Fin Period End Date: 31 March 2024
Ar Due Date: 31 January 2025
Ar Received Date: 30 January 2025
Total Gross Income: £7,455
Total Gross Expenditure: £10,758
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 10

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR23
Fin Period Start Date: 22 December 2021
Fin Period End Date: 31 March 2023
Ar Due Date: 31 January 2024
Ar Received Date: 14 May 2024
Total Gross Income: £16,079
Total Gross Expenditure: £12,565
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 7

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

Classification Code: 206
Classification Type: Who
Classification Description: Other Defined Groups

07 Official extract

Charity Event History

Charity Name: GORLIN SYNDROME GROUP
Charity Event Order: 2
Event Type: Asset transfer in
Date Of Event: 2022-01-26T00:00:00
Reason: Funds transferred (incor)
Assoc Organisation Number: 3998639
Assoc Registered Charity Number: 1096361
Assoc Charity Name: GORLIN SYNDROME GROUP

Charity Name: GORLIN SYNDROME GROUP
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2021-12-22T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 22 Dec 2021
Charitable Objects: THE CHARITY'S OBJECTS ("THE OBJECTS") ARE:(A)THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY GORLIN SYNDROME AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TO(B)THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO GORLIN SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY.(C)THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF GORLIN SYNDROME AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

09 Official extract

Charity Policy

Policy Name: Social media policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Complaints handling

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Safeguarding policy and procedures

Policy Name: Bullying and harassment policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Investing charity funds policy and procedures

Policy Name: Campaigns and political activity policy and procedures

Policy Name: Trustee expenses policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Engaging external speakers at charity events policy and procedures