01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- CIO
- Registered
- 17 January 2022
- Removed
- Not supplied
- Financial period
- 2 January 2025 – 1 January 2026
- Latest income
- £73,333
- Latest expenditure
- £160,850
- Gift Aid
- Yes
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: 31A Berrymede Road, LONDON, W4 5JE
Website recorded by the regulator: www.PCDresearch.org (displayed as text)
02 Activities
What the charity does
To advance the health of children and adults with Primary Ciliary Dyskinesia (PCD) by supporting research intoA) Understanding PCDB) Novel therapeutic targets and therapies for PCDC) Advocating for improved standard of care for people with PCD
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 2 January 2025
- Fin Period End Date
- 1 January 2026
- Ar Cycle Reference
- AR26
- Reporting Due Date
- 1 November 2026
- Date Annual Return Received
- 28 September 2026
- Date Accounts Received
- 28 September 2026
- Total Gross Income
- £73,333
- Total Gross Expenditure
- £160,850
- Fin Period Start Date
- 2 January 2024
- Fin Period End Date
- 1 January 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 1 November 2025
- Date Annual Return Received
- 23 October 2025
- Date Accounts Received
- 23 October 2025
- Total Gross Income
- £238,634
- Total Gross Expenditure
- £19,254
- Fin Period Start Date
- 2 January 2023
- Fin Period End Date
- 1 January 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 1 November 2024
- Date Annual Return Received
- 3 September 2024
- Date Accounts Received
- 3 September 2024
- Total Gross Income
- £40,802
- Total Gross Expenditure
- £11,691
- Fin Period Start Date
- 17 January 2022
- Fin Period End Date
- 1 January 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 1 November 2023
- Date Annual Return Received
- 10 October 2023
- Date Accounts Received
- 10 October 2023
- Total Gross Income
- £153,776
- Total Gross Expenditure
- £2,468
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR26
- Fin Period Start Date
- 2 January 2025
- Fin Period End Date
- 1 January 2026
- Ar Due Date
- 1 November 2026
- Ar Received Date
- 28 September 2026
- Total Gross Income
- £73,333
- Total Gross Expenditure
- £160,850
- Grant Making Is Main Activity
- No
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 0
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 2 January 2024
- Fin Period End Date
- 1 January 2025
- Ar Due Date
- 1 November 2025
- Ar Received Date
- 23 October 2025
- Total Gross Income
- £238,634
- Total Gross Expenditure
- £19,254
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 0
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 3
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 2 January 2023
- Fin Period End Date
- 1 January 2024
- Ar Due Date
- 1 November 2024
- Ar Received Date
- 3 September 2024
- Total Gross Income
- £40,802
- Total Gross Expenditure
- £11,691
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 0
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 4
- Ar Cycle Reference
- AR23
- Fin Period Start Date
- 17 January 2022
- Fin Period End Date
- 1 January 2023
- Ar Due Date
- 1 November 2023
- Ar Received Date
- 10 October 2023
- Total Gross Income
- £153,776
- Total Gross Expenditure
- £2,468
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 0
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Country
- Geographic Area Description
- Spain
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Switzerland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Australia
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Oceania
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Portugal
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- United States
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Denmark
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Greece
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Israel
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Asia
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- France
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Norway
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Italy
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Japan
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Asia
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Germany
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 302
- Classification Type
- How
- Classification Description
- Makes Grants To Organisations
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 202
- Classification Type
- Who
- Classification Description
- Elderly/old People
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 207
- Classification Type
- Who
- Classification Description
- The General Public/mankind
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
- Classification Code
- 206
- Classification Type
- Who
- Classification Description
- Other Defined Groups
07 Official extract
Charity Event History
- Charity Name
- PCD RESEARCH
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2022-01-17T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION REGISTERED 17 JAN 2022AMENDED ON 24 JUN 2024
- Charitable Objects
- THE OBJECT OF THE CIO IS TO ADVANCE THE HEALTH OF CHILDREN AND ADULTS WITH PRIMARY CILIARY DYSKINESIA (PCD), INVOLVING INHERITED MOTILE OR NON-MOTILE CILIARY DYSFUNCTION. THE CIO WILL CARRY OUT THIS OBJECT FOR THE PUBLIC BENEFIT BY VARIOUS MEANS, INCLUDING: • FUNDING AND SUPPORTING PURE SCIENTIFIC AND APPLIED/TRANSLATIONAL RESEARCH TO UNDERSTAND INHERITED CILIARY DYSFUNCTION; • ADVOCATING FOR AN EFFECTIVE CARE REGIME AND THERAPIES FOR PCD; • PROVIDING PATIENT VOICE TO ENSURE THAT RESEARCH AND THERAPEUTICS REFLECT LIVED EXPERIENCES OF PEOPLE WITH PCD; AND • RAISING AWARENESS ABOUT INHERITED CILIOPATHIES. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008
09 Official extract
Charity Policy
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Conflicting interests
- Policy Name
- Serious incident reporting policy and procedures
- Policy Name
- Bullying and harassment policy and procedures
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Investing charity funds policy and procedures
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Complaints policy and procedures