CCEW Charity Commission profile

MARFAN TRUST

Registered charity 1198847 · organisation 5196588

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
5 May 2022
Removed
Not supplied
Financial period
1 January 2025 – 31 December 2025
Latest income
£178,887
Latest expenditure
£300,520
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: 24 Oakfield Lane, KESTON, Kent, BR2 6BY

Website recorded by the regulator: www.marfantrust.org (displayed as text)

02 Activities

What the charity does

Marfan Trust raises funds to support medical research so that more is know about Marfan syndrome and its management. The results of our internationally recognised research enables doctors and surgeons to provide better treatment for patients in the short and long term. Our helpline and website www.marfantrust.org provide information. An annual supporter information day is held in October.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 October 2026
Date Annual Return Received
29 October 2026
Date Accounts Received
29 October 2026
Total Gross Income
£178,887
Total Gross Expenditure
£300,520
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 October 2025
Date Annual Return Received
30 October 2025
Date Accounts Received
30 October 2025
Total Gross Income
£287,083
Total Gross Expenditure
£246,011
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Cycle Reference
AR23
Reporting Due Date
31 October 2024
Date Annual Return Received
31 October 2024
Date Accounts Received
31 October 2024
Total Gross Income
£631,283
Total Gross Expenditure
£31,059
Fin Period Start Date
5 May 2022
Fin Period End Date
31 December 2022
Ar Cycle Reference
AR22
Reporting Due Date
31 October 2023
Date Annual Return Received
1 February 2024
Date Accounts Received
1 February 2024
Total Gross Income
£0
Total Gross Expenditure
£0

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Due Date
31 October 2026
Ar Received Date
29 October 2026
Total Gross Income
£178,887
Total Gross Expenditure
£300,520
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
28
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
1 January 2024
Fin Period End Date
31 December 2024
Ar Due Date
31 October 2025
Ar Received Date
30 October 2025
Total Gross Income
£287,083
Total Gross Expenditure
£246,011
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
28
Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Due Date
31 October 2024
Ar Received Date
31 October 2024
Total Gross Income
£631,283
Total Gross Expenditure
£31,059
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
28
Latest Fin Period Submitted Ind
No
Fin Period Order Number
4
Ar Cycle Reference
AR22
Fin Period Start Date
5 May 2022
Fin Period End Date
31 December 2022
Ar Due Date
31 October 2023
Ar Received Date
1 February 2024
Total Gross Income
£0
Total Gross Expenditure
£0
Charity Raises Funds From Public
No
Charity Receives Govt Funding Contracts
No
Charity Receives Govt Funding Grants
No
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
0

05 Official extract

Charity Annual Return Partb

Latest Fin Period Submitted Ind
No
Fin Period Order Number
3
Ar Cycle Reference
AR23
Fin Period Start Date
1 January 2023
Fin Period End Date
31 December 2023
Ar Due Date
31 October 2024
Ar Received Date
31 October 2024
Income Donations And Legacies
19533
Income Other Trading Activities
0
Income Charitable Activities
0
Income Investments
2356
Income Other
609394
Income Total Income And Endowments
631283
Income Legacies
0
Income Endowments
0
Expenditure Raising Funds
£208
Expenditure Charitable Expenditure
£30,851
Expenditure Other
0
Expenditure Total
31059
Expenditure Investment Management
0
Expenditure Grants Institution
0
Expenditure Governance
3232
Expenditure Support Costs
0
Expenditure Depreciation
1220
Gain Loss Investment
0
Gain Loss Pension Fund
0
Gain Loss Revaluation Fixed Investment
0
Gain Loss Other
0
Reserves
£600,224
Assets Total Fixed
12186
Assets Own Use
5436
Assets Long Term Investment
6750
Defined Benefit Pension Scheme
0
Assets Other Assets
£622,434
Assets Total Liabilities
£34,396
Assets Current Investment
0
Assets Total Assets And Liabilities
£600,224
Creditors One Year Total Current
34396
Creditors Falling Due After One Year
0
Assets Cash
£613,416
Funds Endowment
0
Funds Unrestricted
600224
Funds Restricted
0
Funds Total
600224
Count Employees
3
Charity Only Accounts
Yes

06 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

07 Official extract

Charity Classification

Classification Code
202
Classification Type
Who
Classification Description
Elderly/old People
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
201
Classification Type
Who
Classification Description
Children/young People
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
102
Classification Type
What
Classification Description
Education/training
Classification Code
309
Classification Type
How
Classification Description
Acts As An Umbrella Or Resource Body
Classification Code
310
Classification Type
How
Classification Description
Other Charitable Activities
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
306
Classification Type
How
Classification Description
Provides Services
Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research

08 Official extract

Charity Event History

Charity Name
MARFAN TRUST
Charity Event Order
2
Event Type
Asset transfer in
Date Of Event
2024-03-14T00:00:00
Reason
Funds transferred (incor)
Assoc Organisation Number
328070
Assoc Registered Charity Number
328070
Assoc Charity Name
THE MARFAN TRUST
Charity Name
MARFAN TRUST
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2022-05-05T00:00:00

09 Official extract

Charity Governing Document

Governing Document Description
CIO - FOUNDATION Registered 05 May 2022
Charitable Objects
THE OBJECTS OF THE CIO ARE: TO ADVANCE EDUCATION REGARDING, AND PROMOTE RESEARCH INTO THE NATURE OF, MARFAN SYNDROME AND RELATED CONNECTIVE TISSUE DISORDERS, METHODS OF TREATMENT AND TO DISSEMINATE THE USEFUL RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE PUBLIC; AND THE PRESERVATION AND PROTECTION OF THE HEALTH OF PERSONS WITH MARFAN SYNDROME AND RELATED CONNECTIVE TISSUE DISORDERS AND THE RELIEF OF NEED OF PERSONS WITH MARFAN SYNDROME AND RELATED CONNECTIVE TISSUE DISORDERS AND THEIR FAMILIES BY PROVIDING ADVICE AND SUPPORT.

10 Official extract

Charity Policy

Policy Name
Investment
Policy Name
Safeguarding policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Engaging external speakers at charity events policy and procedures
Policy Name
Conflicting interests
Policy Name
Social media policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Paying staff
Policy Name
Internal charity financial controls policy and procedures