01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- CIO
- Registered
- 9 November 2023
- Removed
- Not supplied
- Financial period
- 1 September 2024 – 31 December 2025
- Latest income
- £491,462
- Latest expenditure
- £634,269
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: 10 Nidderdale Walk, Baildon, SHIPLEY, West Yorkshire, BD17 6TW
Website recorded by the regulator: www.bdfa-uk.org.uk (displayed as text)
02 Activities
What the charity does
A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 1 September 2024
- Fin Period End Date
- 31 December 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 31 October 2026
- Date Annual Return Received
- 3 June 2026
- Date Accounts Received
- 3 June 2026
- Total Gross Income
- £491,462
- Total Gross Expenditure
- £634,269
- Fin Period Start Date
- 9 November 2023
- Fin Period End Date
- 31 August 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 30 June 2025
- Date Annual Return Received
- 5 June 2025
- Date Accounts Received
- 7 July 2025
- Total Gross Income
- £0
- Total Gross Expenditure
- £0
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 1 September 2024
- Fin Period End Date
- 31 December 2025
- Ar Due Date
- 31 October 2026
- Ar Received Date
- 3 June 2026
- Total Gross Income
- £491,462
- Total Gross Expenditure
- £634,269
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- Yes
- Count Salary Band 70001 80000
- 1
- Count Volunteers
- 25
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 9 November 2023
- Fin Period End Date
- 31 August 2024
- Ar Due Date
- 30 June 2025
- Ar Received Date
- 5 June 2025
- Total Gross Income
- £0
- Total Gross Expenditure
- £0
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 0
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Country
- Geographic Area Description
- Northern Ireland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Scotland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 306
- Classification Type
- How
- Classification Description
- Provides Services
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 104
- Classification Type
- What
- Classification Description
- Disability
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 102
- Classification Type
- What
- Classification Description
- Education/training
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
07 Official extract
Charity Event History
- Charity Name
- BATTEN DISEASE FAMILY ASSOCIATION CIO
- Charity Event Order
- 2
- Event Type
- Asset transfer in
- Date Of Event
- 2025-12-11T00:00:00
- Reason
- Transfer of funds
- Assoc Organisation Number
- 3974269
- Assoc Registered Charity Number
- 1084908
- Assoc Charity Name
- BATTEN DISEASE FAMILY ASSOCIATION
- Charity Name
- BATTEN DISEASE FAMILY ASSOCIATION CIO
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2023-11-09T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- CIO - ASSOCIATION Registered 09 Nov 2023
- Charitable Objects
- THE OBJECTS OF THE CIO ARE:TO PRESERVE AND PROTECT THE HEALTH AND WELLBEING OF PERSONS AFFECTED BY ALL TYPES OF NEURONAL CERIOD LIPOFUSCINOSIS (NCL) COMMONLY KNOWN AS BATTEN DISEASE.TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF BATTEN DISEASE AND ITS IMPLICATIONS FOR THE FAMILY, IN PARTICULAR BUT NOT EXCLUSIVELY BY SUPPORTING AND CONDUCTING RESEARCH INTO THE MANAGEMENT OF BATTEN DISEASE AND TO PUBLISH THE USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO BATTEN DISEASE.
09 Official extract
Charity Other Names
- Charity Name Id
- 674400
- Charity Name Type
- Working name
- Charity Name
- BDFA
10 Official extract
Charity Policy
- Policy Name
- Complaints policy and procedures
- Policy Name
- Paying staff
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Bullying and harassment policy and procedures
- Policy Name
- Engaging external speakers at charity events policy and procedures
- Policy Name
- Serious incident reporting policy and procedures
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Social media policy and procedures
- Policy Name
- Volunteer management
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Safeguarding vulnerable beneficiaries
- Policy Name
- Investment
- Policy Name
- Conflicting interests
- Policy Name
- Investing charity funds policy and procedures
- Policy Name
- Risk management
- Policy Name
- Complaints handling
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures