CCEW Charity Commission profile

NATIONAL DOWN SYNDROME POLICY GROUP

Registered charity 1204298 · organisation 5207032

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
10 August 2023
Removed
Not supplied
Financial period
1 April 2024 – 31 March 2025
Latest income
£1,624
Latest expenditure
£8,718
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: PO BOX 576 PO BOX, TUNBRIDGE WELLS, TN2 9WJ

Website recorded by the regulator: https://ndspg.org/ (displayed as text)

02 Activities

What the charity does

To relieve the needs of people with Down syndrome, their parents, families, and carers by the provision of forums to facilitate discussion between people with Down syndrome, organisations that represent them, and organisations that provide support, care, or services to people with Down syndrome.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
4 September 2025
Date Accounts Received
4 September 2025
Total Gross Income
£1,624
Total Gross Expenditure
£8,718
Fin Period Start Date
10 August 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
20 January 2025
Date Accounts Received
20 January 2025
Total Gross Income
£20,514
Total Gross Expenditure
£2,467

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
4 September 2025
Total Gross Income
£1,624
Total Gross Expenditure
£8,718
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
15
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
10 August 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
20 January 2025
Total Gross Income
£20,514
Total Gross Expenditure
£2,467
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Employees Salary Over 60k
No
Count Volunteers
20

05 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities

07 Official extract

Charity Event History

Charity Name
NATIONAL DOWN SYNDROME POLICY GROUP
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2023-08-10T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - FOUNDATION Registered 10 Aug 2023
Charitable Objects
TO RELIEVE THE NEEDS OF PEOPLE WITH DOWN SYNDROME, THEIR PARENTS, FAMILIES, AND CARERS, IN ENGLAND, SCOTLAND AND WALES, IN PARTICULAR BUT NOT EXCLUSIVELY BYA) THE PROVISION OF FORUMS TO FACILITATE DISCUSSION BETWEEN PEOPLE WITH DOWN SYNDROME, ORGANISATIONS THAT REPRESENT THEM, AND ORGANISATIONS THAT PROVIDE SUPPORT, CARE, OR SERVICES TO PEOPLE WITH DOWN SYNDROME.B) THE COLLATION AND DISSEMINATION OF INFORMATION AND BEST PRACTICE IN THE SUPPORT OF PEOPLE WITH DOWN SYNDROME IN ACCESSING SERVICES, IN PARTICULAR, BUT NOT EXCLUSIVELY, IN MATERNITY CARE, HEALTHCARE, EDUCATION, HOUSING, SOCIAL CARE AND EMPLOYMENT.C) THE PROVISION OF SUPPORT TO LOCAL SUPPORT GROUPS TO FACILITATE CLOSER NETWORKING AND HELP IMPROVE KNOWLEDGE AND SKILLS WITH THE AIM TO HELP THEM BE MORE EFFECTIVE IN THE WORK THEY DO.

09 Official extract

Charity Policy

Policy Name
Serious incident reporting policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures