01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received Late
- Charity type
- CIO
- Registered
- 27 January 2023
- Removed
- Not supplied
- Financial period
- 1 October 2023 – 28 February 2025
- Latest income
- £134,340
- Latest expenditure
- £174,625
- Gift Aid
- Yes
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: CARPENTER BOX, Amelia House, Crescent Road, WORTHING, West Sussex, BN11 1RL
Website recorded by the regulator: keepmebreathing.com (displayed as text)
02 Activities
What the charity does
Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 1 October 2023
- Fin Period End Date
- 28 February 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 28 December 2025
- Date Annual Return Received
- 29 December 2025
- Date Accounts Received
- 29 December 2025
- Total Gross Income
- £134,340
- Total Gross Expenditure
- £174,625
- Fin Period Start Date
- 27 January 2023
- Fin Period End Date
- 30 September 2023
- Ar Cycle Reference
- AR23
- Reporting Due Date
- 30 July 2024
- Date Annual Return Received
- 4 December 2024
- Date Accounts Received
- 4 December 2024
- Total Gross Income
- £345,092
- Total Gross Expenditure
- £32,103
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 1 October 2023
- Fin Period End Date
- 28 February 2025
- Ar Due Date
- 28 December 2025
- Ar Received Date
- 29 December 2025
- Total Gross Income
- £134,340
- Total Gross Expenditure
- £174,625
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- Yes
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- Yes
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 50
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR23
- Fin Period Start Date
- 27 January 2023
- Fin Period End Date
- 30 September 2023
- Ar Due Date
- 30 July 2024
- Ar Received Date
- 4 December 2024
- Total Gross Income
- £345,092
- Total Gross Expenditure
- £32,103
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 18
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 207
- Classification Type
- Who
- Classification Description
- The General Public/mankind
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 101
- Classification Type
- What
- Classification Description
- General Charitable Purposes
- Classification Code
- 302
- Classification Type
- How
- Classification Description
- Makes Grants To Organisations
07 Official extract
Charity Event History
- Charity Name
- KEEP ME BREATHING
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2023-01-27T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION Registered 27 Jan 2023
- Charitable Objects
- TO ASSIST IN THE TREATMENT AND CARE OF PERSONS SUFFERING FROM CONGENITAL CENTRAL HYPOVENTILATION SYNDROME (CCHS), BY:I. THE PROVISION OF GRANTS TO ORGANISATIONS FOCUSING ON THE ADVANCEMENT IN UNDERSTANDING AND TREATMENT OF CCHS.II. ADVANCING THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO CCHS.
09 Official extract
Charity Policy
- Policy Name
- Complaints policy and procedures
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Volunteer management
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Paying staff
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Conflicting interests
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Complaints handling
- Policy Name
- Investing charity funds policy and procedures
- Policy Name
- Risk management