CCEW Charity Commission profile

PALLISTER-KILLIAN SYNDROME UK

Registered charity 1201662 · organisation 5209401

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
20 January 2023
Removed
Not supplied
Financial period
1 April 2024 – 31 March 2025
Latest income
£12,528
Latest expenditure
£1,748
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: 10 SHEEPFOLD LANE, AMERSHAM, HP7 9EL

Website recorded by the regulator: www.pksuk.org (displayed as text)

02 Activities

What the charity does

To support families, individuals and professionals who are affected by or who come into contact with Pallister-Killian Syndrome. To support medical research into Pallister-Killian Syndrome.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 January 2026
Date Annual Return Received
14 January 2026
Date Accounts Received
14 January 2026
Total Gross Income
£12,528
Total Gross Expenditure
£1,748
Fin Period Start Date
20 January 2023
Fin Period End Date
31 March 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 January 2025
Date Annual Return Received
1 January 2025
Date Accounts Received
1 January 2025
Total Gross Income
£7,048
Total Gross Expenditure
£2,397

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 April 2024
Fin Period End Date
31 March 2025
Ar Due Date
31 January 2026
Ar Received Date
14 January 2026
Total Gross Income
£12,528
Total Gross Expenditure
£1,748
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
6
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
20 January 2023
Fin Period End Date
31 March 2024
Ar Due Date
31 January 2025
Ar Received Date
1 January 2025
Total Gross Income
£7,048
Total Gross Expenditure
£2,397
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
8

05 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
102
Classification Type
What
Classification Description
Education/training
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
306
Classification Type
How
Classification Description
Provides Services

07 Official extract

Charity Event History

Charity Name
PALLISTER-KILLIAN SYNDROME UK
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2023-01-20T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - FOUNDATION Registered 20 Jan 2023
Charitable Objects
THE OBJECTS ARE:TO RELIEVE THE NEED AND PROTECT THE HEALTH OF PATIENTS AND THEIR FAMILIES AFFECTED BY PALLISTER-KILLIAN SYNDROME THROUGHOUT ENGLAND & WALES FOR THE PUBLIC BENEFIT BY:WORKING TO IMPROVE THE UNDERSTANDING AND KNOWLEDGE OF PALLISTER-KILLIAN SYNDROME AMONG THE PUBLIC.PROVIDING FINANCIAL SUPPORT TO FURTHER ADVANCE CLINICAL RESEARCH INTO PALLISTER-KILLIAN SYNDROME.

09 Official extract

Charity Other Names

Charity Name Id
661544
Charity Name Type
Working name
Charity Name
PKS UK

10 Official extract

Charity Policy

Policy Name
Campaigns and political activity policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Trustee expenses policy and procedures
Policy Name
Bullying and harassment policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Engaging external speakers at charity events policy and procedures
Policy Name
Investing charity funds policy and procedures