01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- CIO
- Registered
- 25 January 2023
- Removed
- Not supplied
- Financial period
- 25 January 2025 – 24 January 2026
- Latest income
- £134,454
- Latest expenditure
- £21,148
- Gift Aid
- Yes
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: 81 JENNINGS ROAD, ST. ALBANS, AL1 4NY
02 Activities
What the charity does
To relieve the need and protect the health of children and their families affected by Spinal Muscular Atrophy (SMA) throughout England & Wales for the public benefit by:a. Working to improve the understanding and knowledge of Spinal Muscular Atrophy (SMA) among the public.b. Providing financial support to further advance clinical research into Spinal Muscular Atrophy (SMA).
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 25 January 2025
- Fin Period End Date
- 24 January 2026
- Ar Cycle Reference
- AR26
- Reporting Due Date
- 24 November 2026
- Date Annual Return Received
- 31 July 2026
- Date Accounts Received
- 31 July 2026
- Total Gross Income
- £134,454
- Total Gross Expenditure
- £21,148
- Fin Period Start Date
- 25 January 2024
- Fin Period End Date
- 24 January 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 24 November 2025
- Date Annual Return Received
- 15 June 2025
- Date Accounts Received
- 15 June 2025
- Total Gross Income
- £135,566
- Total Gross Expenditure
- £175,148
- Fin Period Start Date
- 25 January 2023
- Fin Period End Date
- 24 January 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 24 November 2024
- Date Annual Return Received
- 12 October 2024
- Date Accounts Received
- 12 October 2024
- Total Gross Income
- £188,798
- Total Gross Expenditure
- £5,724
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR26
- Fin Period Start Date
- 25 January 2025
- Fin Period End Date
- 24 January 2026
- Ar Due Date
- 24 November 2026
- Ar Received Date
- 31 July 2026
- Total Gross Income
- £134,454
- Total Gross Expenditure
- £21,148
- Grant Making Is Main Activity
- Yes
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 0
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 25 January 2024
- Fin Period End Date
- 24 January 2025
- Ar Due Date
- 24 November 2025
- Ar Received Date
- 15 June 2025
- Total Gross Income
- £135,566
- Total Gross Expenditure
- £175,148
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 25
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 3
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 25 January 2023
- Fin Period End Date
- 24 January 2024
- Ar Due Date
- 24 November 2024
- Ar Received Date
- 12 October 2024
- Total Gross Income
- £188,798
- Total Gross Expenditure
- £5,724
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 0
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 104
- Classification Type
- What
- Classification Description
- Disability
- Classification Code
- 310
- Classification Type
- How
- Classification Description
- Other Charitable Activities
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
07 Official extract
Charity Event History
- Charity Name
- Research SMA
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2023-01-25T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION Registered 25 Jan 2023 as amended on 01 Jan 2026
- Charitable Objects
- THE OBJECTS ARE:TO RELIEVE THE NEED AND PROTECT THE HEALTH OF CHILDREN AND THEIR FAMILIES AFFECTED BY SPINAL MUSCULAR ATROPHY (SMA) THROUGHOUT ENGLAND & WALES FOR THE PUBLIC BENEFIT BY:WORKING TO IMPROVE THE UNDERSTANDING AND KNOWLEDGE OF SPINAL MUSCULAR ATROPHY (SMA) AMONG THE PUBLIC.PROVIDING FINANCIAL SUPPORT TO FURTHER ADVANCE CLINICAL RESEARCH INTO SPINAL MUSCULAR ATROPHY (SMA).
09 Official extract
Charity Other Names
- Charity Name Id
- 663764
- Charity Name Type
- Previous name
- Charity Name
- RALLY ROUND RUPERT
10 Official extract
Charity Policy
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures