INSULINOMA CHARITY UK — Charity Commission profile

01 Identity

Registration and reporting

Registration status: Registered
Reporting status: Submission Received
Charity type: CIO
Registered: 26 September 2023
Removed: Not supplied
Financial period: 6 April 2025 – 5 April 2026
Latest income: £25,143
Latest expenditure: £6,427
Gift Aid: No
Owns or uses land: No
In administration: No
Insolvent: No
CIO: Yes

Public contact address: 96 EMPRESS AVENUE, WEST MERSEA, COLCHESTER, ESSEX, CO5 8BL

Website recorded by the regulator: www.insulinoma.co.uk (displayed as text)

02 Activities

What the charity does

We provide support, education, and advocacy for individuals and families affected by an insulinoma, a rare type of neuroendocrine tumour. Operating throughout the UK, we offer peer support groups, evidence-based resources, patient-friendly summaries of clinical guidelines, and promote research to improve care and awareness. Our work empowers patients and enhances treatment outcomes.

03 Official extract

Charity Annual Return History

Fin Period Start Date: 6 April 2025
Fin Period End Date: 5 April 2026
Ar Cycle Reference: AR26
Reporting Due Date: 5 February 2027
Date Annual Return Received: 7 October 2026
Date Accounts Received: 7 October 2026
Total Gross Income: £25,143
Total Gross Expenditure: £6,427

Fin Period Start Date: 6 April 2024
Fin Period End Date: 5 April 2025
Ar Cycle Reference: AR25
Reporting Due Date: 5 February 2026
Date Annual Return Received: 12 January 2026
Date Accounts Received: 12 January 2026
Total Gross Income: £4,112
Total Gross Expenditure: £1,056

Fin Period Start Date: 26 September 2023
Fin Period End Date: 5 April 2024
Ar Cycle Reference: AR24
Reporting Due Date: 5 February 2025
Date Annual Return Received: 29 November 2024
Date Accounts Received: 5 February 2025
Total Gross Income: £6,992
Total Gross Expenditure: £0

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind: Yes
Fin Period Order Number: 1
Ar Cycle Reference: AR26
Fin Period Start Date: 6 April 2025
Fin Period End Date: 5 April 2026
Ar Due Date: 5 February 2027
Ar Received Date: 7 October 2026
Total Gross Income: £25,143
Total Gross Expenditure: £6,427
Grant Making Is Main Activity: No
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 8

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 2
Ar Cycle Reference: AR25
Fin Period Start Date: 6 April 2024
Fin Period End Date: 5 April 2025
Ar Due Date: 5 February 2026
Ar Received Date: 12 January 2026
Total Gross Income: £4,112
Total Gross Expenditure: £1,056
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 11

Latest Fin Period Submitted Ind: No
Fin Period Order Number: 3
Ar Cycle Reference: AR24
Fin Period Start Date: 26 September 2023
Fin Period End Date: 5 April 2024
Ar Due Date: 5 February 2025
Ar Received Date: 29 November 2024
Total Gross Income: £6,992
Total Gross Expenditure: £0
Grant Making Is Main Activity: No
Count Govt Contracts: 0
Count Govt Grants: £0
Charity Has Trading Subsidiary: No
Does Trustee Receive Any Benefit: No
Trustee Payments Acting As Trustee: No
Trustee Receives Payments Services: No
Trustee Receives Other Benefit: No
Trustee Resigned Employment: No
Count Volunteers: 6

05 Official extract

Charity Area Of Operation

Geographic Area Type: Region
Geographic Area Description: Throughout England And Wales
Welsh Ind: No

06 Official extract

Charity Classification

Classification Code: 101
Classification Type: What
Classification Description: General Charitable Purposes

Classification Code: 207
Classification Type: Who
Classification Description: The General Public/mankind

Classification Code: 307
Classification Type: How
Classification Description: Provides Advocacy/advice/information

Classification Code: 308
Classification Type: How
Classification Description: Sponsors Or Undertakes Research

Classification Code: 103
Classification Type: What
Classification Description: The Advancement Of Health Or Saving Of Lives

07 Official extract

Charity Event History

Charity Name: INSULINOMA CHARITY UK
Charity Event Order: 1
Event Type: CIO registration
Date Of Event: 2023-09-26T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description: CIO - FOUNDATION Registered 26 Sep 2023
Charitable Objects: THE RELIEF OF PERSONS SUFFERING OR AT RISK OF SUFFERING FROM INSULINOMA AND THEIR FAMILIES BY ADVANCING THE EDUCATION OF THE PUBLIC, INCLUDING MEDICAL PRACTITIONERS, IN ALL ASPECTS OF INSULINOMA BY PROMOTING RESEARCH INTO ITS CAUSES, AND TREATMENT AND BY DISSEMINATING THE USEFUL RESULTS OF SUCH RESEARCH.

09 Official extract

Charity Policy

Policy Name: Risk management

Policy Name: Complaints handling

Policy Name: Investment

Policy Name: Safeguarding policy and procedures

Policy Name: Trustee conflicts of interest policy and procedures

Policy Name: Conflicting interests

Policy Name: Trustee expenses policy and procedures

Policy Name: Internal risk management policy and procedures

Policy Name: Internal charity financial controls policy and procedures

Policy Name: Financial reserves policy and procedures

Policy Name: Complaints policy and procedures

Policy Name: Investing charity funds policy and procedures

Policy Name: Serious incident reporting policy and procedures

Policy Name: Social media policy and procedures

Policy Name: Volunteer management

Policy Name: Safeguarding vulnerable beneficiaries

Policy Name: Bullying and harassment policy and procedures