01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- Trust
- Registered
- 5 February 2024
- Removed
- Not supplied
- Financial period
- 6 April 2024 – 5 April 2025
- Latest income
- £1,840,647
- Latest expenditure
- £1,414,123
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- No
Public contact address: 2nd Floor Knightsbridge Gate, 75 Knightsbridge, London, SW1X 7BF
Website recorded by the regulator: www.endfa.uk (displayed as text)
02 Activities
What the charity does
The Charity promotes or assists in the promotion of research into the nature, causes, diagnosis, prevention, treatment and cure of Friedreich's Ataxia or other related conditions, including the development of findings of research into practical applications for the prevention, treatment and cure of Friedreich's Ataxia or other related conditions. The Charity also educates the public to increase aw
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 6 April 2024
- Fin Period End Date
- 5 April 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 5 February 2026
- Date Annual Return Received
- 3 February 2026
- Date Accounts Received
- 3 February 2026
- Total Gross Income
- £1,840,647
- Total Gross Expenditure
- £1,414,123
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 6 April 2024
- Fin Period End Date
- 5 April 2025
- Ar Due Date
- 5 February 2026
- Ar Received Date
- 3 February 2026
- Total Gross Income
- £1,840,647
- Total Gross Expenditure
- £1,414,123
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 0
05 Official extract
Charity Annual Return Partb
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 6 April 2024
- Fin Period End Date
- 5 April 2025
- Ar Due Date
- 5 February 2026
- Ar Received Date
- 3 February 2026
- Income Donations And Legacies
- 1512070
- Income Other Trading Activities
- 328577
- Income Charitable Activities
- 0
- Income Investments
- 0
- Income Other
- 0
- Income Total Income And Endowments
- 1840647
- Income Legacies
- 0
- Income Endowments
- 0
- Expenditure Raising Funds
- £1,385,260
- Expenditure Charitable Expenditure
- £28,863
- Expenditure Other
- 0
- Expenditure Total
- 1414123
- Expenditure Investment Management
- 0
- Expenditure Grants Institution
- 0
- Expenditure Governance
- 28863
- Expenditure Support Costs
- 28863
- Expenditure Depreciation
- 0
- Gain Loss Investment
- 0
- Gain Loss Pension Fund
- 0
- Gain Loss Revaluation Fixed Investment
- 0
- Gain Loss Other
- 0
- Reserves
- £426,524
- Assets Total Fixed
- 0
- Assets Own Use
- 0
- Assets Long Term Investment
- 0
- Defined Benefit Pension Scheme
- 0
- Assets Other Assets
- £538,129
- Assets Total Liabilities
- £111,605
- Assets Current Investment
- 0
- Assets Total Assets And Liabilities
- £426,524
- Creditors One Year Total Current
- 111605
- Creditors Falling Due After One Year
- 0
- Assets Cash
- £169,417
- Funds Endowment
- 0
- Funds Unrestricted
- 426524
- Funds Restricted
- 0
- Funds Total
- 426524
- Count Employees
- 0
- Charity Only Accounts
- Yes
06 Official extract
Charity Area Of Operation
- Geographic Area Type
- Country
- Geographic Area Description
- United States
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Germany
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Italy
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Netherlands
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Australia
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Oceania
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- France
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Canada
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
07 Official extract
Charity Classification
- Classification Code
- 302
- Classification Type
- How
- Classification Description
- Makes Grants To Organisations
- Classification Code
- 206
- Classification Type
- Who
- Classification Description
- Other Defined Groups
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
08 Official extract
Charity Event History
- Charity Name
- ENDFA (UK)
- Charity Event Order
- 1
- Event Type
- Standard registration
- Date Of Event
- 2024-02-05T00:00:00
09 Official extract
Charity Governing Document
- Governing Document Description
- TRUST DEED DATED 09 NOV 2023AS AMENDED BY DEED DATED 01 FEB 2024
- Charitable Objects
- THE OBJECTS OF THE CHARITY (THE “OBJECTS”) ARE SPECIFICALLY RESTRICTED TO THE PROTECTION AND PROMOTION OF THE HEALTH OF THE PUBLIC IN PARTICULAR BY:3.1 PROMOTING OR ASSISTING IN THE PROMOTION OF RESEARCH INTO THE NATURE, CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF FRIEDREICH’S ATAXIA OR OTHER RELATED CONDITIONS (BY MECHANISM, CLINICAL PRESENTATION OR OTHER FACTORS), INCLUDING THE DEVELOPMENT OF FINDINGS OF RESEARCH INTO PRACTICAL APPLICATIONS FOR THE PREVENTION, TREATMENT AND CURE OF FRIEDREICH’S ATAXIA OR OTHER RELATED CONDITIONS; AND 3.2 EDUCATING THE PUBLIC TO INCREASE AWARENESS OF FRIEDREICH’S ATAXIA OR OTHER RELATED CONDITIONS.
10 Official extract
Charity Policy
- Policy Name
- Trustee conflicts of interest policy and procedures