01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- CIO
- Registered
- 14 December 2023
- Removed
- Not supplied
- Financial period
- 14 December 2023 – 5 April 2025
- Latest income
- £3,666
- Latest expenditure
- £2,562
- Gift Aid
- Yes
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: 19 Langley Road, LONDON, SW19 3NZ
02 Activities
What the charity does
To preserve and protect good health among and relieve the needs of people living with FSHD, their families and carers, in particular but not exclusively by raising awareness of FSHD within the general public, medical and scientific communities and support medical and scientifc organisations or indivduals with activities and projects to further the Charity's overall objectives.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 14 December 2023
- Fin Period End Date
- 5 April 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 5 February 2026
- Date Annual Return Received
- 3 February 2026
- Date Accounts Received
- 3 February 2026
- Total Gross Income
- £3,666
- Total Gross Expenditure
- £2,562
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 14 December 2023
- Fin Period End Date
- 5 April 2025
- Ar Due Date
- 5 February 2026
- Ar Received Date
- 3 February 2026
- Total Gross Income
- £3,666
- Total Gross Expenditure
- £2,562
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 3
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Scotland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Northern Ireland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 104
- Classification Type
- What
- Classification Description
- Disability
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 102
- Classification Type
- What
- Classification Description
- Education/training
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 302
- Classification Type
- How
- Classification Description
- Makes Grants To Organisations
- Classification Code
- 117
- Classification Type
- What
- Classification Description
- Other Charitable Purposes
- Classification Code
- 205
- Classification Type
- Who
- Classification Description
- Other Charities Or Voluntary Bodies
- Classification Code
- 101
- Classification Type
- What
- Classification Description
- General Charitable Purposes
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
- Classification Code
- 207
- Classification Type
- Who
- Classification Description
- The General Public/mankind
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 202
- Classification Type
- Who
- Classification Description
- Elderly/old People
07 Official extract
Charity Event History
- Charity Name
- FSHD UK CHARITY
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2023-12-14T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION Registered 14 Dec 2023
- Charitable Objects
- THE OBJECTS OF THE CIO ARE: TO PRESERVE AND PROTECT GOOD HEALTH AMONG, AND RELIEVE THE NEEDS OF, PEOPLE LIVING WITH FSHD, THEIR FAMILIES AND CARERS, IN PARTICULAR BUT NOT EXCLUSIVELY BY: (A) PROVIDING INFORMATION, HELP AND SUPPORT TO SUCH PEOPLE AND THEIR FAMILIES AND CARERS; (B) MAKING FINANCIAL DONATIONS TO SUPPORT ORGANISATIONS AND INDIVIDUALS CARRYING OUT RESEARCH INTO FSHD, THE USEFUL RESULTS OF WHICH WILL BE PUBLISHED FOR PUBLIC BENEFIT; AND (C) RAISING AWARENESS OF FSHD WITHIN THE GENERAL PUBLIC, MEDICAL AND SCIENTIFIC COMMUNITIES. (D) SUPPORT MEDICAL AND SCIENTIFIC ORGANISATIONS OR INDIVIDUALS WITH ACTIVITIES AND PROJECTS TO FURTHER THE CHARITY?S OVERALL OBJECTIVE OF HELPING TO RELIEVE THE BURDEN ON, AND IMPROVE QUALITY OF LIFE FOR, PEOPLE LIVING WITH FSHD.
09 Official extract
Charity Other Names
- Charity Name Id
- 674467
- Charity Name Type
- Working name
- Charity Name
- FSHD UK
10 Official extract
Charity Policy
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Bullying and harassment policy and procedures
- Policy Name
- Investing charity funds policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Social media policy and procedures