01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- CIO
- Registered
- 5 March 2024
- Removed
- Not supplied
- Financial period
- 5 March 2024 – 31 March 2025
- Latest income
- £8,134
- Latest expenditure
- £963
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: 16, OCKENDEN ROAD, LITTLEHAMPTON, 16, OCKENDEN ROAD, BN17 7FH
Website recorded by the regulator: www.desmoidaiduk.com (displayed as text)
02 Activities
What the charity does
Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 5 March 2024
- Fin Period End Date
- 31 March 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 31 January 2026
- Date Annual Return Received
- 14 January 2026
- Date Accounts Received
- 14 January 2026
- Total Gross Income
- £8,134
- Total Gross Expenditure
- £963
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 5 March 2024
- Fin Period End Date
- 31 March 2025
- Ar Due Date
- 31 January 2026
- Ar Received Date
- 14 January 2026
- Total Gross Income
- £8,134
- Total Gross Expenditure
- £963
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 0
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
- Classification Code
- 309
- Classification Type
- How
- Classification Description
- Acts As An Umbrella Or Resource Body
- Classification Code
- 101
- Classification Type
- What
- Classification Description
- General Charitable Purposes
- Classification Code
- 207
- Classification Type
- Who
- Classification Description
- The General Public/mankind
07 Official extract
Charity Event History
- Charity Name
- DESMOID AID UK
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2024-03-05T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION Registered 05 Mar 2024
- Charitable Objects
- TO RELIEVE CHARITABLE NEEDS OF PEOPLE DIAGNOSED WITH DESMOID-TYPE FIBROMATOSIS (ALSO KNOWN AS AGGRESSIVE FIBROMATOSIS AND DESMOID TUMOURS) AND THOSE WHO CARE FOR THEM FOR THE PUBLIC BENEFIT BY THE PROVISION OF:A. FINANCIAL GRANTS TO PEOPLE DIAGNOSED WITH DESMOID-TYPE FIBROMATOSIS;B. EDUCATION AND INFORMATION TO RAISE PUBLIC AWARENESS AND PROMOTE THE EFFECTIVE CARE OF PEOPLE AFFECTED BY DESMOID TUMOURS;C. ANY OTHER ADDITIONAL SUPPORT TO PEOPLE AFFECTED BY DESMOID TUMOURS AND RELATED CONDITIONS AS TRUSTEES SEE FIT.THERE IS NO GEOGRAPHICAL LIMITS WITHIN ENGLAND AND WALES.
09 Official extract
Charity Policy
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Complaints policy and procedures