01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- CIO
- Registered
- 6 March 2024
- Removed
- Not supplied
- Financial period
- 1 January 2025 – 31 December 2025
- Latest income
- £51
- Latest expenditure
- £2,230
- Gift Aid
- Yes
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: Lytchett House, 13 Freeland Park, Wareham Road, Poole, Dorset, BH16 6FA
Website recorded by the regulator: https://pcdsupport.org.uk/ (displayed as text)
02 Activities
What the charity does
1.Provide support to patients and their carers who have, or are suspected of having, PCD 2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public. 3.To promote research to aid diagnosis and treatment of patients with PCD. 4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 1 January 2025
- Fin Period End Date
- 31 December 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 31 October 2026
- Date Annual Return Received
- 24 October 2026
- Date Accounts Received
- 24 October 2026
- Total Gross Income
- £51
- Total Gross Expenditure
- £2,230
- Fin Period Start Date
- 6 March 2024
- Fin Period End Date
- 31 December 2024
- Ar Cycle Reference
- AR24
- Reporting Due Date
- 31 October 2025
- Date Annual Return Received
- 30 October 2025
- Date Accounts Received
- 30 October 2025
- Total Gross Income
- £0
- Total Gross Expenditure
- £0
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 1 January 2025
- Fin Period End Date
- 31 December 2025
- Ar Due Date
- 31 October 2026
- Ar Received Date
- 24 October 2026
- Total Gross Income
- £51
- Total Gross Expenditure
- £2,230
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 15
- Latest Fin Period Submitted Ind
- No
- Fin Period Order Number
- 2
- Ar Cycle Reference
- AR24
- Fin Period Start Date
- 6 March 2024
- Fin Period End Date
- 31 December 2024
- Ar Due Date
- 31 October 2025
- Ar Received Date
- 30 October 2025
- Total Gross Income
- £0
- Total Gross Expenditure
- £0
- Grant Making Is Main Activity
- Yes
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 10
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Northern Ireland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Scotland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 306
- Classification Type
- How
- Classification Description
- Provides Services
- Classification Code
- 302
- Classification Type
- How
- Classification Description
- Makes Grants To Organisations
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 309
- Classification Type
- How
- Classification Description
- Acts As An Umbrella Or Resource Body
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
07 Official extract
Charity Event History
- Charity Name
- PRIMARY CILIARY DYSKINESIA SUPPORT UK
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2024-03-06T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION Registered 06 Mar 2024
- Charitable Objects
- FOR THE PUBLIC BENEFIT TO PRESERVE AND PROTECT THE HEALTH AND TO RELIEVE THE NEEDS OF PATIENTS, WHO HAVE OR ARE SUSPECTED OF HAVING PRIMARY CILIARY DYSKINESIA (PCD) AND THEIR CARERS IN THE UNITED KINGDOM [INCLUDING SCOTLAND AND NORTHERN IRELAND] IN PARTICULAR BUT NOT EXCLUSIVELY BY:- RAISING AWARENESS OF PCD BY PROVIDING INFORMATION TO THE MEDICAL COMMUNITY AND THE GENERAL PUBLIC. - ENCOURAGING THE ADVANCEMENT OF MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF PCD, PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED
09 Official extract
Charity Other Names
- Charity Name Id
- 676588
- Charity Name Type
- Working name
- Charity Name
- PCD SUPPORT UK
10 Official extract
Charity Policy
- Policy Name
- Social media policy and procedures
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Engaging external speakers at charity events policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Financial reserves policy and procedures