CCEW Charity Commission profile

PECTUS MATTERS

Registered charity 1208486 · organisation 5232942

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
CIO
Registered
31 May 2024
Removed
Not supplied
Financial period
1 January 2025 – 31 December 2025
Latest income
£10,339
Latest expenditure
£1,221
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: Society for Cardiothoracic Surgery, ROYAL COLLEGE OF SURGEONS ENGLAND, 38-43 LINCOLN'S INN FIELDS, LONDON, WC2A 3PE

Website recorded by the regulator: pectusmatters.co.uk (displayed as text)

02 Activities

What the charity does

Pectus Matters is a charity that supports and advocates for patients with pectus conditions in the UK. We do this by offering advice, creating learning materials, attending meetings with key stakeholders and decision-makers, and creating patient-centred projects where we use our charitable funds to directly support patients with pectus conditions. We are based remotely across the UK.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 October 2026
Date Annual Return Received
12 October 2026
Date Accounts Received
12 October 2026
Total Gross Income
£10,339
Total Gross Expenditure
£1,221
Fin Period Start Date
31 May 2024
Fin Period End Date
31 December 2024
Ar Cycle Reference
AR24
Reporting Due Date
31 October 2025
Date Annual Return Received
17 September 2025
Date Accounts Received
17 September 2025
Total Gross Income
£3,926
Total Gross Expenditure
£1,531

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Due Date
31 October 2026
Ar Received Date
12 October 2026
Total Gross Income
£10,339
Total Gross Expenditure
£1,221
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
15
Latest Fin Period Submitted Ind
No
Fin Period Order Number
2
Ar Cycle Reference
AR24
Fin Period Start Date
31 May 2024
Fin Period End Date
31 December 2024
Ar Due Date
31 October 2025
Ar Received Date
17 September 2025
Total Gross Income
£3,926
Total Gross Expenditure
£1,531
Grant Making Is Main Activity
No
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
2

05 Official extract

Charity Area Of Operation

Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
207
Classification Type
Who
Classification Description
The General Public/mankind
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information
Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
103
Classification Type
What
Classification Description
The Advancement Of Health Or Saving Of Lives
Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
309
Classification Type
How
Classification Description
Acts As An Umbrella Or Resource Body

07 Official extract

Charity Event History

Charity Name
PECTUS MATTERS
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2024-05-31T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
CIO - FOUNDATION Registered 31 May 2024
Charitable Objects
3.1 THE OBJECTS OF THE CIO ARE FOR THE PUBLIC BENEFIT TO RELIEVE THE NEEDS OF PEOPLE SUFFERING FROM AND AFFECTED BY PECTUS MALFORMATIONS OR DEFORMITIES, THEIR FAMILIES AND CARERS IN PARTICULAR BUT NOT EXCLUSIVELY BY:3.1.1 PROVIDING OR ASSISTING IN PROVIDING INFORMATION AND SOURCES OF ADVICE ABOUT PECTUS MALFORMATIONS AND DEFORMITIES;3.1.2 ADVANCING EDUCATION AND KNOWLEDGE ABOUT PECTUS MALFORMATIONS AND DEFORMITIES WITH THE AIM OF RAISING AWARENESS OF THEM AND IMPROVING STANDARDS OF CARE FOR THOSE SUFFERING FROM THEM;3.1.3 SUPPORTING RESEARCH INTO THE CAUSES, PREVENTION AND TREATMENT OF PECTUS MALFORMATIONS AND DEFORMITIES AND DISSEMINATING THE RESULTS OF SUCH RESEARCH; AND3.1.4 PROVIDING FINANCIAL ASSISTANCE TO SUPPORT TRAVELLING EXPENSES AND ACCOMMODATION COSTS INCURRED BY PATIENTS RECEIVING TREATMENT FOR PECTUS MALFORMATIONS OR DEFORMITIES

09 Official extract

Charity Policy

Policy Name
Internal risk management policy and procedures
Policy Name
Financial reserves policy and procedures
Policy Name
Safeguarding policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Internal charity financial controls policy and procedures