01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- CIO
- Registered
- 18 April 2024
- Removed
- Not supplied
- Financial period
- 18 April 2024 – 31 March 2025
- Latest income
- £60,140
- Latest expenditure
- £29,130
- Gift Aid
- No
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: Henleaze Business Centre, Henleaze House, 13 Harbury Road, BRISTOL, BS9 4PN
Website recorded by the regulator: www.curecdkl5.org.uk (displayed as text)
02 Activities
What the charity does
To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 18 April 2024
- Fin Period End Date
- 31 March 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 31 January 2026
- Date Annual Return Received
- 26 January 2026
- Date Accounts Received
- 26 January 2026
- Total Gross Income
- £60,140
- Total Gross Expenditure
- £29,130
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 18 April 2024
- Fin Period End Date
- 31 March 2025
- Ar Due Date
- 31 January 2026
- Ar Received Date
- 26 January 2026
- Total Gross Income
- £60,140
- Total Gross Expenditure
- £29,130
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Employees Salary Over 60k
- No
- Count Volunteers
- 0
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Isle Of Man
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Scotland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Jersey
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Northern Ireland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 302
- Classification Type
- How
- Classification Description
- Makes Grants To Organisations
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 205
- Classification Type
- Who
- Classification Description
- Other Charities Or Voluntary Bodies
- Classification Code
- 104
- Classification Type
- What
- Classification Description
- Disability
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 306
- Classification Type
- How
- Classification Description
- Provides Services
- Classification Code
- 204
- Classification Type
- Who
- Classification Description
- People Of A Particular Ethnic Or Racial Origin
07 Official extract
Charity Event History
- Charity Name
- CDKL5 UK
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2024-04-18T00:00:00
- Charity Name
- CDKL5 UK
- Charity Event Order
- 2
- Event Type
- Asset transfer in
- Date Of Event
- 2024-06-17T00:00:00
- Reason
- Transfer of funds
- Assoc Organisation Number
- 5031035
- Assoc Registered Charity Number
- 1149099
- Assoc Charity Name
- CDKL5 UK
08 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION Registered 18 Apr 2024
- Charitable Objects
- THE OBJECTS OF THE CIO ARETO PRESERVE AND PROTECT THE HEALTH OF INDIVIDUALS DIAGNOSED WITH AND AFFECTED BY CDKL5 IN PARTICULAR BY:A PROVIDING ASSISTANCE AND ADVOCACY IN THE FORM OF SUPPORT GROUPS FOR THE PATIENT COMMUNITY.B PROVIDING UP TO DATE AND RELEVANT INFORMATION TO INDIVIDUALS AND THEIR REPRESENTATIVE DIAGNOSED WITH THE CONDITION AND TO MEDICAL PROFESSIONALS AS A MEANS OF IMPROVING UNDERSTANDING AND RAISING AWARENESS OF CDKL5 C PROMOTING AND SUPPORT RESEARCH IN CDKL5
09 Official extract
Charity Policy
- Policy Name
- Social media policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Complaints policy and procedures
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Volunteer management
- Policy Name
- Risk management
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Bullying and harassment policy and procedures
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Internal charity financial controls policy and procedures