01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- Submission Received
- Charity type
- CIO
- Registered
- 17 October 2024
- Removed
- Not supplied
- Financial period
- 17 October 2024 – 30 September 2025
- Latest income
- £118,116
- Latest expenditure
- £18,278
- Gift Aid
- Yes
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: WESTFIELD LODGE, OLD MILL LANE, BRAY, MAIDENHEAD, SL6 2BG
Website recorded by the regulator: www.actionforbpan.com (displayed as text)
02 Activities
What the charity does
Action for BPAN supports individuals with BPAN (Beta-Propeller Protein-Associated Neurodegeneration), a rare neurodegenerative disorder. We fundraise for research, raise awareness, and provide support to families affected by BPAN. Based in the UK and operating globally, we collaborate with medical professionals and communities to improve lives and advance treatments and cures for BPAN.
03 Official extract
Charity Annual Return History
- Fin Period Start Date
- 17 October 2024
- Fin Period End Date
- 30 September 2025
- Ar Cycle Reference
- AR25
- Reporting Due Date
- 30 July 2026
- Date Annual Return Received
- 21 July 2026
- Date Accounts Received
- 21 July 2026
- Total Gross Income
- £118,116
- Total Gross Expenditure
- £18,278
04 Official extract
Charity Annual Return Parta
- Latest Fin Period Submitted Ind
- Yes
- Fin Period Order Number
- 1
- Ar Cycle Reference
- AR25
- Fin Period Start Date
- 17 October 2024
- Fin Period End Date
- 30 September 2025
- Ar Due Date
- 30 July 2026
- Ar Received Date
- 21 July 2026
- Total Gross Income
- £118,116
- Total Gross Expenditure
- £18,278
- Grant Making Is Main Activity
- No
- Count Govt Contracts
- 0
- Count Govt Grants
- £0
- Charity Has Trading Subsidiary
- No
- Does Trustee Receive Any Benefit
- No
- Trustee Payments Acting As Trustee
- No
- Trustee Receives Payments Services
- No
- Trustee Receives Other Benefit
- No
- Trustee Resigned Employment
- No
- Count Volunteers
- 8
05 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Jersey
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Scotland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Italy
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Australia
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Oceania
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- United States
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- France
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Guernsey
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Spain
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Switzerland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Isle Of Man
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Netherlands
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Canada
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- North America
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Northern Ireland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Germany
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Sweden
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
06 Official extract
Charity Classification
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 104
- Classification Type
- What
- Classification Description
- Disability
- Classification Code
- 302
- Classification Type
- How
- Classification Description
- Makes Grants To Organisations
- Classification Code
- 102
- Classification Type
- What
- Classification Description
- Education/training
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 207
- Classification Type
- Who
- Classification Description
- The General Public/mankind
07 Official extract
Charity Event History
- Charity Name
- ACTION FOR BPAN
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2024-10-17T00:00:00
08 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION Registered 17 Oct 2024
- Charitable Objects
- THE OBJECTS OF THE CIO ARE TO PRESERVE AND PROTECT THE GOOD HEALTH OF THOSE SUFFERING FROM BETA PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION (BPAN) BY:-MAKING GRANTS TO VETTED MEDICAL PROFESSIONALS TO CARRY OUT RESEARCH FOR A CURE OR TREATMENT OF THE CONDITION AND TO PROVIDE SUPPORT TO CAREGIVERS OF THOSE WITH BETA-PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION (BPAN);PROVIDING USEFUL INFORMATION FROM UK BPAN SPECIALIST DOCTORS, SIGNPOSTING AND HELPING NAVIGATE THE SUPPORT AVAILABLE BY SHARING PERSONAL EXPERIENCES TO ENSURE THEY CAN ACCESS SERVICES THAT MAY BE BENEFICIAL TO THEM; ANDPROMOTING AWARENESS AND ADVANCE THE EDUCATION OF BETA-PROPELLER PROTEIN[1]ASSOCIATED NEURODEGENERATION (BPAN) FOR THE GENERAL PUBLIC AND HEALTH PROFESSIONALS USING A VARIETY OF DIFFERENT MEDIUMS.
09 Official extract
Charity Policy
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Conflicting interests
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Social media policy and procedures
- Policy Name
- Complaints policy and procedures
- Policy Name
- Volunteer management
- Policy Name
- Complaints handling
- Policy Name
- Risk management
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Serious incident reporting policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Safeguarding vulnerable beneficiaries
- Policy Name
- Bullying and harassment policy and procedures
- Policy Name
- Internal charity financial controls policy and procedures