01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- New
- Charity type
- CIO
- Registered
- 7 November 2024
- Removed
- Not supplied
- Financial period
- Not supplied – Not supplied
- Latest income
- Not supplied
- Latest expenditure
- Not supplied
- Gift Aid
- No
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: 6 GORHAM DRIVE, DOWNSWOOD, MAIDSTONE, ME15 8UU
Website recorded by the regulator: www.hopeforhermione.com (displayed as text)
02 Activities
What the charity does
Hope for Hermione's Primary purposes are;- For the advancement of education to raise awareness of Beta Propeller Accumulation Neurodegeneration (BPAN).- For the advancement of health and saving lives by raising funds to support research to find a cure for BPAN.- To provide support and services to individuals, families, caregivers and friends of those affected by BPAN.
03 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
04 Official extract
Charity Classification
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 302
- Classification Type
- How
- Classification Description
- Makes Grants To Organisations
- Classification Code
- 207
- Classification Type
- Who
- Classification Description
- The General Public/mankind
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 205
- Classification Type
- Who
- Classification Description
- Other Charities Or Voluntary Bodies
05 Official extract
Charity Event History
- Charity Name
- HOPE FOR HERMIONE
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2024-11-07T00:00:00
06 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION Registered 07 Nov 2024
- Charitable Objects
- TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF THOSE DIAGNOSED WITH BETA-PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION (BPAN) AND THEIR FAMILIES AND CARERS BY:- GRANT FUNDING EXTERNAL ORGANISATIONS TO UNDERTAKE RESEARCH INTO ALL AREAS OF BPAN;- PROVIDING OR ASSISTING IN THE PROVISION OF EQUIPMENT, FACILITIES AND SERVICES NOT NORMALLY PROVIDED BY THE STATUTORY AUTHORITIES;- PROVIDING SUPPORT, EDUCATION AND PRACTICAL ADVICE ON LIVING WITH AND MANAGING BPAN; AND- EDUCATING AND RAISING AWARENESS OF BPAN AMONGST THE WIDER PUBLIC.
07 Official extract
Charity Policy
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Complaints handling
- Policy Name
- Investment
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Engaging external speakers at charity events policy and procedures
- Policy Name
- Investing charity funds policy and procedures
- Policy Name
- Volunteer management
- Policy Name
- Complaints policy and procedures
- Policy Name
- Social media policy and procedures
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Campaigns and political activity policy and procedures
- Policy Name
- Conflicting interests
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Safeguarding vulnerable beneficiaries
- Policy Name
- Serious incident reporting policy and procedures
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Bullying and harassment policy and procedures
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Risk management