CCEW Charity Commission profile

MUSCULAR DYSTROPHY FUNDRAISING

Registered charity 1212619 · organisation 5256126

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
Submission Received
Charity type
Trust
Registered
21 March 2025
Removed
Not supplied
Financial period
1 January 2025 – 31 December 2025
Latest income
£19,421
Latest expenditure
£13,489
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
No

Public contact address: 16 Paskin Close, Fradley, Lichfield, WS13 8NZ

02 Activities

What the charity does

The charity raises funds to help people who suffer from rare Muscular Dystrophies, their families and carers in particular, but not exclusively, by the provision of support & advice. The charity also provided support for ongoing research into rare muscular dystrophies through diagnosis, prevention and treatment.

03 Official extract

Charity Annual Return History

Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Cycle Reference
AR25
Reporting Due Date
31 October 2026
Date Annual Return Received
7 October 2026
Total Gross Income
£19,421
Total Gross Expenditure
£13,489

04 Official extract

Charity Annual Return Parta

Latest Fin Period Submitted Ind
Yes
Fin Period Order Number
1
Ar Cycle Reference
AR25
Fin Period Start Date
1 January 2025
Fin Period End Date
31 December 2025
Ar Due Date
31 October 2026
Ar Received Date
7 October 2026
Total Gross Income
£19,421
Total Gross Expenditure
£13,489
Grant Making Is Main Activity
Yes
Count Govt Contracts
0
Count Govt Grants
£0
Charity Has Trading Subsidiary
No
Does Trustee Receive Any Benefit
No
Trustee Payments Acting As Trustee
No
Trustee Receives Payments Services
No
Trustee Receives Other Benefit
No
Trustee Resigned Employment
No
Count Volunteers
12

05 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England
Welsh Ind
No

06 Official extract

Charity Classification

Classification Code
301
Classification Type
How
Classification Description
Makes Grants To Individuals
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
302
Classification Type
How
Classification Description
Makes Grants To Organisations
Classification Code
205
Classification Type
Who
Classification Description
Other Charities Or Voluntary Bodies
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities

07 Official extract

Charity Event History

Charity Name
MUSCULAR DYSTROPHY FUNDRAISING
Charity Event Order
1
Event Type
Standard registration
Date Of Event
2025-03-21T00:00:00

08 Official extract

Charity Governing Document

Governing Document Description
TRUST DEED DATED 10 MAR 2025
Charitable Objects
THE OBJECTS ARE:THE RELIEF OF PERSONS SUFFERING FROM RARE MUSCULAR DYSTROPHIES AND THEIR FAMILIES AND CARERS IN PARTICULAR BUT NOT EXCLUSIVELY BY THE PROVISION OF SUPPORT AND ADVICE AND WORKING TO SUPPORT ONGOING RESEARCH INTO RARE MUSCULAR DYSTROPHIES THROUGH DIAGNOSIS, PREVENTION AND TREATMENT.

09 Official extract

Charity Other Names

Charity Name Id
692560
Charity Name Type
Previous name
Charity Name
EVANS FAMILY MUSCULAR DYSTROPHY FUNDRAISING

10 Official extract

Charity Policy

Policy Name
Investing charity funds policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Volunteer management
Policy Name
Financial reserves policy and procedures
Policy Name
Conflicting interests
Policy Name
Complaints handling