01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- New
- Charity type
- CIO
- Registered
- 5 November 2025
- Removed
- Not supplied
- Financial period
- Not supplied – Not supplied
- Latest income
- Not supplied
- Latest expenditure
- Not supplied
- Gift Aid
- No
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: 107 Highfields, Shrewsbury, SY2 5PJ, 107 Highfields, Shrewsbury, SY2 5PJ
Website recorded by the regulator: https://www.myskeletaldysplasia.org.uk/ (displayed as text)
02 Activities
What the charity does
Operating throughout England and Wales and dedicated to improving the lives of people with skeletal dysplasia and their families. Our work spans advocacy, education, research, community support, and international collaboration. We exist to bridge gaps in policy, practice, and lived experience
03 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
04 Official extract
Charity Classification
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 306
- Classification Type
- How
- Classification Description
- Provides Services
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 104
- Classification Type
- What
- Classification Description
- Disability
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
05 Official extract
Charity Event History
- Charity Name
- FOUNDATION EXPLORING SKELETAL DYSPLASIAS TOGETHER (FEST)
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2025-11-05T00:00:00
06 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION Registered 05 Nov 2025
- Charitable Objects
- THE OBJECT OF THE CIO IS TO PRESERVE AND PROTECT THE HEALTH OF PERSONS AFFECTED BY SKELETAL DYSPLASIA COMMONLY KNOWN AS RESTRICTED GROWTH BY:- ADVANCING THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF GROWTH RESTRICTIVE SKELETAL DYSPLASIA; PROMOTING RESEARCH INTO THE MANAGEMENT OF SKELETAL DYSPLASIAS AND TO PUBLISH THE USEFUL RESULTS THEREOF; INFORMING ALL PEOPLE INTERESTED IN SKELETAL DYSPLASIAS BY COLLATING A COLLECTION OF THE MOST UP-TO-DATE SCIENTIFIC INFORMATION, BOTH MEDICAL AND PSYCHOSOCIAL; AND SHARING RESEARCH, INNOVATION AND COLLABORATIONS, AS WELL AS CLINICAL AND PATIENT SUPPORT EXPERIENCE, THAT CAN POSITIVELY CHANGE THE LIVES OF THOSE WITH SKELETAL DYSPLASIAS. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH [SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005] AND [SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008].