CCEW Charity Commission profile

ORTHOSTATIC TREMOR UK SUPPORT GROUP

Registered charity 1215490 · organisation 5267950

01 Identity

Registration and reporting

Registration status
Registered
Reporting status
New
Charity type
CIO
Registered
23 October 2025
Removed
Not supplied
Financial period
Not supplied – Not supplied
Latest income
Not supplied
Latest expenditure
Not supplied
Gift Aid
Yes
Owns or uses land
No
In administration
No
Insolvent
No
CIO
Yes

Public contact address: 223 QUEENS ROAD, LONDON, SW19 8NX

Website recorded by the regulator: https://www.orthostatictremoruksupportgroup.co.uk/ (displayed as text)

02 Activities

What the charity does

Orthostatic Tremor (OT) is a rare and poorly understood disorder. Our annual conference and local social groups provide opportunities for those diagnosed with Orthostatic Tremor to meet others for mutual support and advice on coping with it. We keep them informed through our Facebook page, newsletters, website and a Members Booklet, and information leaflets to raise awareness of OT.

03 Official extract

Charity Area Of Operation

Geographic Area Type
Region
Geographic Area Description
Throughout England And Wales
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Northern Ireland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No
Geographic Area Type
Country
Geographic Area Description
Scotland
Parent Geographic Area Type
Continent
Parent Geographic Area Description
Europe
Welsh Ind
No

04 Official extract

Charity Classification

Classification Code
308
Classification Type
How
Classification Description
Sponsors Or Undertakes Research
Classification Code
309
Classification Type
How
Classification Description
Acts As An Umbrella Or Resource Body
Classification Code
306
Classification Type
How
Classification Description
Provides Services
Classification Code
104
Classification Type
What
Classification Description
Disability
Classification Code
203
Classification Type
Who
Classification Description
People With Disabilities
Classification Code
307
Classification Type
How
Classification Description
Provides Advocacy/advice/information

05 Official extract

Charity Event History

Charity Name
ORTHOSTATIC TREMOR UK SUPPORT GROUP
Charity Event Order
1
Event Type
CIO registration
Date Of Event
2025-10-23T00:00:00

06 Official extract

Charity Governing Document

Governing Document Description
CIO - FOUNDATION Registered 23 Oct 2025
Charitable Objects
THE OBJECTS OF THE CIO ARETO RELIEVE THE NEED AND PROTECT THE HEALTH OF INDIVIDUALS, THEIR FAMILIES AND CARERS AFFECTED BY ORTHOSTATIC TREMOR ACROSS THE UK FOR THE PUBLIC BENEFIT BY:(1) PROVIDING ACTIVE COMMUNICATION BETWEEN THOSE DIAGNOSED WITH ORTHOSTATIC TREMOR OFFERING THEM FRIENDSHIP, REASSURANCE AND REDUCING THEIR SOCIAL ISOLATION.(2) RAISING AWARENESS OF THE PROGRESSIVE DISABLING NEUROLOGICAL CONDITION OF ORTHOSTATIC TREMOR.(3) PROMOTING KNOWLEDGE, UNDERSTANDING AND ACKNOWLEDGEMENT OF ORTHOSTATIC TREMOR WITHIN THE MEDICAL PROFESSION AND SUPPORT SERVICES.(4) ENCOURAGING RESEARCH AND POTENTIAL TREATMENTS OF ORTHOSTATIC TREMOR.NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE.

07 Official extract

Charity Policy

Policy Name
Complaints handling
Policy Name
Financial reserves policy and procedures
Policy Name
Volunteer management
Policy Name
Safeguarding policy and procedures
Policy Name
Social media policy and procedures
Policy Name
Serious incident reporting policy and procedures
Policy Name
Complaints policy and procedures
Policy Name
Risk management
Policy Name
Conflicting interests
Policy Name
Campaigns and political activity policy and procedures
Policy Name
Trustee conflicts of interest policy and procedures
Policy Name
Investing charity funds policy and procedures
Policy Name
Internal charity financial controls policy and procedures
Policy Name
Internal risk management policy and procedures
Policy Name
Investment
Policy Name
Safeguarding vulnerable beneficiaries
Policy Name
Engaging external speakers at charity events policy and procedures
Policy Name
Bullying and harassment policy and procedures